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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Journals
eosinophilic
- By shan789 · Posted May 24, 2009
- 25 replies
- Jake is currently being treated for this and I want to find out as much as possible about this disease. He is taking pulimcort slurry. 1 vial of pulimcort mixed with 5 packets of splenda ...
about me
- By tammijo · Posted May 23, 2009
- 3 replies
- hi my name is tammi and i have a nissen fundoplication and delayed motitilty problems with my esophagus and stomach and my fundo wrap is very tight and long so had to have a j-tube put in last week and ...
Neurontin fro Delayed Gastric Emptying?
- By HelenB8 · Posted May 23, 2009
- 5 replies
- We saw Ben's peadiatrician and he feels a lot of Ben's delayed emptying is down to nerve damage in his gut from the EGID and from the rotavirus he had lst year. Ben was already on amitriptyline for neuropathic ...
WHAT A GREAT VACATION...NOT
- By margamouse · Posted May 22, 2009
- 4 replies
- My husband was on vacation this week. We spent three days traveling to and from Temple and sitting there having tests done. One day at our local hospital waiting to have j-tube changed to a Mic-Key (OH...MY...GOSH ...
Intestinal infections
- By Darkanian · Posted May 21, 2009
- 0 replies
- So, I feel better and then I cannot go to the bathroom. The only things that come out are blood and green mucous. Will not be the first time. Seems as if I see alot of infections since my bowels no longer ...
Another diagnoses/Jake
- By shan789 · Posted May 21, 2009
- 0 replies
- We saw the GI today and she finally listened to me. The only thing is I don't know wheater to be happy sad or what. After asking how he was doing and not liking that he's still not eating the way he should ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
First time discourage to blenderize
- By VegasCTB · Posted May 19, 2009
- 7 replies
- I spoke to a nutritionist/dietician yesterday about my options of going to blenderized feeding and the first thing she said was to discourage me from doing it. I sometimes thing that when someone is on ...
What can be done
- By Hop · Posted May 16, 2009
- 10 replies
- My son is almost 8 years old and has short bowel syndrome. He lost more than half. He seems to have alot of gas. Does anyone know anything that can help with this ...
Jake turning 13
- By shan789 · Posted May 13, 2009
- 9 replies
- Tomorrow Jake will be 13 yrs. old. It has been such a long year for us. Some times I wondered if he'd make it to this day. With the help of several medications he is able to eat some and go to school ...
Blended diet
- By Sanford · Posted May 13, 2009
- 6 replies
- I'm thinking about switching, at least in part, to a blended diet, since eating much of anything these days cause my j-tube to leak a lot. I'd appreciate it if someone could point me to cookbooks, literature ...
bad day
- By margamouse · Posted May 11, 2009
- 15 replies
- Just having a bad day today. Crying because I feel lousy. And feel like I'm ruining my husband's life with this stupid gp. He's on vacation next week and we have to go for a three hour ride to Temple ...
Questions about TPN stability!!
- By vaw2511 · Posted May 7, 2009
- 14 replies
- Hi Everyone, We had a very interesting conversation with our Special Needs Kaiser Pharmacist today. We are taking a 2 week trip at the end of May to Yellowstone and Mt Rushmore. Normally for 2 weeks we ...
I'm a nervous wreck!
- By Sanford · Posted May 5, 2009
- 13 replies
- Well, today I went for a tilt-table test, since I've been having trouble with my blood pressure for a while now. Someone here mentioned last year that it sounded like autonomic neuropathy. First, I had ...
Oley at Digestive Disease Week in IL
- By Katie_S · Posted May 5, 2009
- 0 replies
- Hi Everyone, The Oley Foundation has an exhibit booth at Digestive Disease Week, 2009. We are looking for volunteers to set up and run the booth. This is a great opportunity to help out Oley and get access ...
mic-key
- By margamouse · Posted May 4, 2009
- 11 replies
- This may sound like a dumb question but here goes....can a mic-key button be used for j-tube feeding or just g-tube? I've got a j-tube and the idea of just a little button sitting there rather than this ...
a new doc
- By margamouse · Posted May 4, 2009
- 7 replies
- saw a new gi doc friday. Dr. Parkman at Temple University Hospital in Philadelphia. What a great group people. He's running more tests, some that were done previously but not in a while. Also seemed surprised ...
Boy do I lack proper info
- By VegasCTB · Posted May 3, 2009
- 10 replies
- The more I read about everyone and thier tubes, the more I really do not know about my husband's. He has had the tube since 7/30/07 but I do not even know what kind he really has. I know it was referred ...
Husabnd Has Esphageal Cancer
- By Tigerette · Posted May 2, 2009
- 68 replies
- My husband was dignosis with esphageal cancer in Oct 9, 2008, he's been on chemo, then on March 16, 2009 went in for major surgery, to remove all his lymp nodes, and mostly all his stomach, now he has ...
Consistency
- By Darkanian · Posted May 2, 2009
- 5 replies
- How am I feeling better? When we start feeling better it becomes a little scary. Maybe I should not panic . Maybe I should be thankful for feeling better and take it in stride. I have been downing paprika ...
