Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Journals

Waking up in the middle of the night with the dry heaves

JeniMac
  • By JeniMac · Posted June 29, 2009
  • 20 replies
  • Okay...I know this is so disgusting, but I was wondering if anyone else with GP has experienced the same thing. There have been nights that I am woken up from sleeping by this overwhelming sense of nausea ...

Ben's PEGJ all done

HelenB8
  • By HelenB8 · Posted June 27, 2009
  • 9 replies
  • Ben's pegj is in. It was a bit of a performance intially as there was a debate about giving him IV steroids as he'd been on such a long course. Following argument as to who would give it he had 50mg prior ...

next....

margamouse
  • By margamouse · Posted June 26, 2009
  • 6 replies
  • Well, the meds to block the pain were working...now the problem. I was sitting in my chair, watching tv, my legs and arms started getting real heavy and everything started to go black, my heart rate went ...

Where to eat out (blenderized real food)

nmhusky
  • By nmhusky · Posted June 25, 2009
  • 7 replies
  • I thought I would start a list of restaurants that will cheerfully blenderize your meals. I can only list those that have actually blended my meals. I carry my own strainer just to be sure they get it ...

hi everyone!

tammijo
  • By tammijo · Posted June 23, 2009
  • 2 replies
  • I had my surgery on june 3rd where i had a myotomy done on my esophagus and a redo of my fundoplication and on june 10th i was discharged from the hospital and they pulled my j-tube out on this day ...

Confused

JeniMac
  • By JeniMac · Posted June 23, 2009
  • 2 replies
  • OKay...I know I have two things working against me: 1. GP 2. Dumping Syndrome. If I don't vomit, I suffer from dumping syndrome & a lot of the time GP causes me to vomit, either way I'm losing nutrients ...

Feeling alone

JeniMac
  • By JeniMac · Posted June 20, 2009
  • 16 replies
  • I'm really frustrated tonight. It is Saturday night & my friends all have plans, & I'm home. Yes, I feel very selfish in saying this, but it has been over a year since I've really enjoyed a social life ...

PEG-J for Ben next friday

HelenB8
  • By HelenB8 · Posted June 17, 2009
  • 11 replies
  • Ben is having his peg converted to the pegj next friday. Glad not to have too long to stress about it. He currently has a Fr 9 which will be changed to a 15 to accomodate the j. I asked the IR I spoke ...

Hope!

margamouse
  • By margamouse · Posted June 17, 2009
  • 5 replies
  • Went to Temple University Hospital yesterday for my test results. Everything looks good!! I was told by a doc at Hershey Med Center that my esophagus wasn't working normally, but the test I had done at ...

Almost a year with SBS

under3feet
  • By under3feet · Posted June 17, 2009
  • 7 replies
  • It's been 11 months since I had most of my small intestine removed. I have improved, but I'm still on TPN and still have trouble with food. When will I be able to eat again? I just want to eat and gain ...

Kaitlyn

kaitlynsmommy85
  • By kaitlynsmommy85 · Posted June 16, 2009
  • 0 replies
  • Kaitlyn will be having her second open heart surgery on June 24th,2009. She also finally got her 1st tooth in on the bottom. She was a pistol when she was cuttin the tooth through but she was strong about ...

Share your story via video!

TeamInspire
  • By TeamInspire · Posted June 15, 2009
  • 28 replies
  • Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

Feelings

nmhusky
  • By nmhusky · Posted June 12, 2009
  • 3 replies
  • I have been feeling kind of down lately. During my check-up at the Mayo last week the PET scan showed glucose uptake in several locations in my lungs and on the base of my tongue. The lung hotspots can ...

HERE WE GO AGAIN

margamouse
  • By margamouse · Posted June 12, 2009
  • 10 replies
  • Once again dealing with severe pain from the j-tube. Vicodin takes the edge off but it's getting very frustrating. Also, noticed the discharge around the mic-key is starting to get kind of green. Doesn't ...

looking forward

LoLo65
  • By LoLo65 · Posted June 11, 2009
  • 8 replies
  • I initially thought that journaling was like keeping a diary, the kind you wrote when you were 12 LOL I have begun to understand that journaling is a way to help you sort out how your feeling and help ...

Follow Inspire on Twitter and Facebook!

TeamInspire
  • By TeamInspire · Posted June 10, 2009
  • 32 replies
  • We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

Change is good

VegasCTB
  • By VegasCTB · Posted June 7, 2009
  • 0 replies
  • Well I have been doing the blenderized diet for a couple weeks now, and I think he's eating better than me. I fall into my bad habits of forgetting to eat or just munching all day so I don't really eat ...

I'm new to the group . . .

DawnWoj
  • By DawnWoj · Posted June 4, 2009
  • 14 replies
  • My name is Dawn and my son, Cullen, is having a g-tube inserted June 11th. He has a rare chromosome, which has effected his ability to swallow correctly. He is 16 months old and is just learning to crawl ...

J-tube is out but it won't heal and now 8 months later infected - hole

Mythree3sons
  • By Mythree3sons · Posted June 1, 2009
  • 8 replies
  • My J-tube fell out October 15, 2008. Other then it not healing it was doing fine until about 3 weeks ago when it got infected, swollen scar with bumps and pink about 1/2 inch all around. My Cardiothoraciac ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · Posted May 26, 2009
  • 6 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Helpful links from the Oley Foundation

Group leaders

You