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Journals
no place like home
- By Jesana · Posted August 9, 2009
- 5 replies
- so I went on Monday and had the baclofen pump replaced. they had a difficult time placeing the iv at least they put numbing medicine . finally the surgeon came he was able to put one in my foot. I liked ...
Cares Clothing LLC for special needs
- By annlove · Posted August 4, 2009
- 10 replies
- Hello, My name is Ann Lee. Last year my sister passed away from a rare Cancer, Leiomyosarcoma. Losing her was painful. In her memory, and because of her, I put all my energy and compassion into designing ...
perteton?
- By margamouse · Posted August 3, 2009
- 5 replies
- Has anyone tried this Perteton stuff? Here's the site...http://www.perteton.com/index.htm l. It sounds interesting but...... I was just wondering if anyone on site has tried this herbal help and did it ...
I TRIED...I FAILED
- By margamouse · Posted August 2, 2009
- 18 replies
- Just a little venting here. My nephew got married yesterday!!! I did get to see the ceremony which was beautiful! Came time for the reception which started at 5 pm. My husband and I got there a few minutes ...
DJ
- By DamianJay · Posted August 2, 2009
- 2 replies
- My son was born at 28 weeks in Reading Hospital. At 32 weeks he developed NEC. He was transfered to Hershey Medical Center on June 12, 2007. He had his first surgery that day. Ever since then he has had ...
i want to say thank u
- By dj121655 · Posted July 29, 2009
- 2 replies
- i'd like to say thank u to everyone who replyed to my post, yesterday ...
I did it!
- By JeniMac · Posted July 29, 2009
- 22 replies
- I know this is a little late...my apologies...but I just want to thank ALL of you that gave me the courage & encouragement I needed in order to make my first venture alone! :) I did make it to St. Louis ...
how i feel
- By dj121655 · Posted July 28, 2009
- 3 replies
- i feel very alone due to the depression i have which is a result of my psuedo-obstructioon bowel syndrome and rsd of my knee that means i have to walk with polio-crutches and a wheelchair. in the past ...
Lost in space
- By fonz · Posted July 27, 2009
- 0 replies
- I was. Puter took a dive right after the Oley conf. in St. Petes otherwise I'd have posted sooner. What fun it was in St. Petes. Cher and I met lottsa nice folks with good hearts. We had a good time for ...
missed family vacation
- By tpnmom21 · Posted July 18, 2009
- 5 replies
- Hi, i have a daughter with down syndrom and chronically ill. She is on tpn, has a g-tube, j-tube, ileostomy, and central line. The family was planning a vacation to the beach and the morning we were leaving ...
Jake Update
- By shan789 · Posted July 15, 2009
- 2 replies
- Since last Saturday Jake has been in Denver, Colorado. He is attending a camp for kids ages 11 to 17 with bladder and bowel dysfunctions. I haven't really had a chance to talk to him, but they post pictures ...
gtube clothes from 6months-12months for a boy
- By jmkaya · Posted July 15, 2009
- 0 replies
- hi everybody...i have some clothes that have holes cut on the side for the extension tube...if anybody is interested...i have gotten rid of quite a bit but if i could help anybody out and you could use ...
problem with backpack
- By cp20855 · Posted July 14, 2009
- 7 replies
- This seems almost too trivial to post, but -- We prop the backpack up and lean it against a wall. When the TPN volume is 1000 ml, the plastic bag containing the TPN hangs nicely from the velcro strap ...
hurray!!
- By margamouse · Posted July 13, 2009
- 6 replies
- Saw surgeon today. Got on his scale and he was happy with the fact that I've actually put on 6 lbs. since I stopped using the feeding tube a month ago. Said I'm still on the thin side but seemed to be ...
A second suicide attempt
- By Judi-1 · Posted July 12, 2009
- 7 replies
- I can barely believe it myself but my husband again attempted suicide but this time it was what is called "suicide by cop". He actually got into a Rambo type of situation, armed to the teeth with an arsenal ...
ROugh week no feeds new bad news I am devastated
- By DGSTRICK · Posted July 9, 2009
- 28 replies
- I am not having a good week at all. I am in soo much pain all the time now. I have not been able to feed at all this week. Just Tea and Water. When I fook the feeding in the feeding tube I feel like my ...
excessive lympnodes in colon
- By shan789 · Posted July 9, 2009
- 5 replies
- I'm asking for my sister, she doesn't have thenet, if she did she wouldn't have time. She has a 3 yr. old with DiGeoge syndrome, autism, tethered cord syndrome, and GI problems. He had upper and lower ...
Negative biopsy yipee!
- By nmhusky · Posted July 8, 2009
- 7 replies
- Well I got back from the Mayo just in time for the Fourth. The surgeon removed samples from was is left the base of my tongue. All samples came back benign. NO MALIGNANCY. So the celebration of our country's ...
Essential Tremors
- By Darkanian · Posted July 7, 2009
- 41 replies
- I was just diagnosed with essential tremors from reglan. Great.... another thing to deal with ...
Update!
- By Maloreigh · Posted July 6, 2009
- 0 replies
- So apparently I've been pretty delinquent in posting on here.... for a long time, but after going to the conference in St. Pete's I have been completely re--energized to connect with people here and really ...
