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Journals

J-tube ?

Rodeogrl02
  • By Rodeogrl02 · Posted September 11, 2009
  • 7 replies
  • I've had a J-tube for 2 1/2 months now, I went to see my surgeon due to pain (but by the time I got into see him the pain was controlled but he had to put silver nitrate on these cells that form a bubble ...

How do you deal with cravings for REAL food

mountainwoman
  • By mountainwoman · Posted September 10, 2009
  • 8 replies
  • Hi, everyone, I am new to this forum. I have a question, how do you deal with cravings for solid (real food) I think there is a grilled chicken salad calling me on the phone to come and get it. LOL ...

Surviving

cheneyfox
  • By cheneyfox · Posted September 7, 2009
  • 5 replies
  • Having had Crohn's disease since I was 13 with multiple resections over the years I now have short bowel syndrome. Over the years I had been on TPN but the last couple of years I have been on it more ...

The Loss of My Only Daughter, Tierney Nicole Eggert

Mom2Tierney
  • By Mom2Tierney · Posted September 5, 2009
  • 28 replies
  • I wish I had been aware of the C.A.R.E. group while my beautiful daughter, Tierney, was still alive. Unfortunately, I lost her to Cardiac Arrhythmia/Congenital Heart Disease on March 21, 2009. For a 19-year-old ...

ANYONE...?

margamouse
  • By margamouse · Posted September 1, 2009
  • 20 replies
  • Quick question...I'm having a terrible time with dizziness and weakness. Started yesterday afternoon. Anyone else dealing with this? Is this normal for GP? Thanks ...

Has anyone been to mayo clinic???

Rodeogrl02
  • By Rodeogrl02 · Posted August 31, 2009
  • 5 replies
  • I've had gastroparesis (severely) for 10 years now, and had a j-tube put in on july 3rd,2009 (I know great way to spend the fourth) anyway because of that and juvenille osteoporosis, dysautonomia, arthritis ...

Had a Great Day!

margamouse
  • By margamouse · Posted August 31, 2009
  • 4 replies
  • Wow, was yesterday different from the last few weeks! I felt really good and finally managed to meet our son at an amusement park (Knoebel's Grove) to spend the day together. It's free admittance which ...

J-Tube problem

Rodeogrl02
  • By Rodeogrl02 · Posted August 29, 2009
  • 5 replies
  • I had a j-tube put in on July 3rd after having 2 surgeries to put and fix a g/j tube then an exploratory surgery to fix all that with a final result a J-tube. I take 14 hour feedings at night thru the ...

Billy Says

WebDude
  • By WebDude · Posted August 28, 2009
  • 2 replies
  • Be who you are and say what you feel --- 'Cause those that matter --- Don't mind And those that mind --- Don't Matter ...

Nuttin' Honey

WebDude
  • By WebDude · Posted August 28, 2009
  • 0 replies
  • “ Life isn't about waiting out the storm, it's about learning to dance in the rain ...

comedy of errors

margamouse
  • By margamouse · Posted August 24, 2009
  • 7 replies
  • Saturday was a bit weird. Went to take lettuce and tomato out of the bottom drawer of the frig to make my husband a stuffed tomato. There is a 12 pack of soda two shelves higher. of course, just like ...

I hate insurances

shan789
  • By shan789 · Posted August 18, 2009
  • 42 replies
  • I have been fighting with Jake's insurance over his feeding bags for his cecostomy flushes. For the last year we have been getting 30 bags a month. When I called last week to reorder I was told that they ...

Blonde moment

margamouse
  • By margamouse · Posted August 17, 2009
  • 7 replies
  • Does anyone out there know where I can get restaurant cards (business card size, I believe) that you can hand out? I had seen them on a site, requested some months ago and never received them. Now I can't ...

CADD PRizm pump drama

LynS
  • By LynS · Posted August 14, 2009
  • 9 replies
  • This morning I woke up at 1 AM to the beeping of the pump telling me there was no more infusion. The bag was not half empty as it should have been, but still full! I started it again but discovered in ...

Does anyone have suggestions for Bile Reflux? Has anyone been to Mayo?

JeniMac
  • By JeniMac · Posted August 12, 2009
  • 30 replies
  • Recently my bile reflux has gotten so bad that sometimes when I bend over, bile comes into my mouth & sometimes my nose. I finally bought bed raisers to help at nighttime, but this is ridiculous. Does ...

Why me ?? what next??

DGSTRICK
  • By DGSTRICK · Posted August 12, 2009
  • 7 replies
  • Its me again. I have been soo sick the past few days. since Friday I have been in bed most of the day. too weak to do anything. My kids do not understand that sometimes I just do not have the energy to ...

g-tube

sherri09
  • By sherri09 · Posted August 10, 2009
  • 7 replies
  • My baby boy got a g-tube about a mounth a go. And he still has it. He was in the ut nicu untill he was 2 1/2mos and know he is 3 mos he will be4 mos on the 14. When well they take it out and what age ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · Posted August 10, 2009
  • 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

Domperidone update

JeniMac
  • By JeniMac · Posted August 9, 2009
  • 23 replies
  • Okay...it's been about a week & a half & the Domperidone is definitely helping my nausea, but I have not noticed any improvements on the pain when I eat solid food. I'm still trying to give it time though ...

no place like home

Jesana
  • By Jesana · Posted August 9, 2009
  • 5 replies
  • so I went on Monday and had the baclofen pump replaced. they had a difficult time placeing the iv at least they put numbing medicine . finally the surgeon came he was able to put one in my foot. I liked ...

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