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Journals

3 month check-up

nmhusky
  • By nmhusky · Posted October 6, 2009
  • 7 replies
  • Well my bride and i head back to the Mayo in Phoenix for a 3 month check-up with the radiologist, hematologist, and surgeon. It has been 2 years since diagnosis, 21 months since surgery, and 18 months ...

members

ALTHOM
  • By ALTHOM · Posted October 5, 2009
  • 0 replies
  • are their any other members in the tallahassee,fl area ...

Oh What a Life!

cheneyfox
  • By cheneyfox · Posted October 5, 2009
  • 0 replies
  • Not to bore anyone with my medical history but I have had many surgeries on my intestines cuz of Crohn's disease. Anyway I started having intense abdominal pain again. Actually I have had this off and ...

Grateful

daviandsteve
  • By daviandsteve · Posted October 1, 2009
  • 1 reply
  • Sometimes I feel sorry for myself, but then I read what others are going through and I realize I don't have it so bad. Yes, the diarrhea and bloating are quite annoying, especially when my sleep is impacted ...

My doctor's are gambling with my life!!!!

Rodeogrl02
  • By Rodeogrl02 · Posted September 29, 2009
  • 3 replies
  • So if you liv in wisconsin never go to wheaton fransiscan hospitals or doctors office specialists, they obviously think your live's aren't worth much. I started going there when I was in highschool but ...

cecostomy?

shan789
  • By shan789 · Posted September 28, 2009
  • 9 replies
  • For a week now my son has had poo draining around hid site. He has no granulation, so I'm a little confused. Any ideas? The only other thing I can think of is him being backed up, but doesn't have usual ...

J-tube option ?'s

Rodeogrl02
  • By Rodeogrl02 · Posted September 26, 2009
  • 4 replies
  • I have had my j-tube for almost 3 months and I have to get it switched in the beginning of october. (per my surgeons preference) So my question is, is my only option this long tube that hangspast my belt ...

Unknown Bone Marrow Problem???ANYONE????

Rodeogrl02
  • By Rodeogrl02 · Posted September 26, 2009
  • 23 replies
  • I'm 26 years old and this pastspring I had a bone marrow biopsy after tons of lab work, that showed my platelets and white bllod cells are always low, and occasionally by red blood cells. So we went for ...

Ah Another BEAUTIFUL DAY IN TEXAS!

cheneyfox
  • By cheneyfox · Posted September 25, 2009
  • 5 replies
  • Yep, awoke this morning with extreme abdominal pain and diarrhea.... again! it was so bad walking was difficult. But after a few hours of forcing myself to rest I felt better. I mowed the lawn (i know ...

My life is nuts!

Lynee
  • By Lynee · Posted September 24, 2009
  • 16 replies
  • What a crazy week. I've been having major pain issues with my tube and have been having more vomitting episodes lately. Have had diagnosed GP for about 2 1/2 years and just recently started "dumping ...

What a Difference a Day Makes!

cheneyfox
  • By cheneyfox · Posted September 24, 2009
  • 2 replies
  • Funny, I felt great yesterday. The night before I was awakened covered with sweat. This freaked me out because this is what was happening when I got Sepsis last month. But I awoke yesterday unscathed ...

Jtube breakage?

Jlou
  • By Jlou · Posted September 20, 2009
  • 3 replies
  • HI, all. Just joined. Hubby had esophageal cancer treated since last Feb. Have had Jtube in since March. We've been pinching it off to hook up, shoot water or meds, etc. Today it seems like it is breaking ...

Lipid Problems

LynS
  • By LynS · Posted September 20, 2009
  • 2 replies
  • When I started TPN four months ago I kept having problems feeling hot and swollen, with a very dry mouth, during the infusions, almost allergic. By accident the lipid bag was left off of one of my weekly ...

Severe nausea

Rodeogrl02
  • By Rodeogrl02 · Posted September 19, 2009
  • 5 replies
  • I have had my J-Tube since July, and have been gradually increasing my feed rate from 24 hrs to just at night, I am now up to 87 ml per hour, so it takes me about 14 hours, I have severe GP, and although ...

Some days can be more difficult than others....

cheneyfox
  • By cheneyfox · Posted September 18, 2009
  • 1 reply
  • I hate when I am so tired that my day is spent doing nothing constructive. I try to stay positive but if I listen to my head on days like these I get angry at myself for being a slug. So today I am making ...

THEY'VE GOT TO BE CRAZY!

margamouse
  • By margamouse · Posted September 18, 2009
  • 1 reply
  • I just got a bill from Temple University Hospital where I go to see Dr. Parkman for my gp. This bill covers my visit in May. I have to pay $120 for "ANALYSIS OF NEUROSTIMULATOR SYSTEM"! I think I'll stick ...

GP WON'T KILL ME!!!

margamouse
  • By margamouse · Posted September 17, 2009
  • 9 replies
  • WENT DOWN TO TEMPLE UNIVERSITY HOSPITAL TO SEE DR. PARKMAN YESTERDAY WITH A LIST OF QUESTIONS. HIS PA ANSWERED THE QUESTIONS AND HE SPENT MAYBE 3 MINUTES WITH ME. FIRST : GP WILL NOT KILL ME. PEOPLE WITH ...

I am a Person

cheneyfox
  • By cheneyfox · Posted September 17, 2009
  • 0 replies
  • They can cut me, prick me, knock me out... I am a patient They can drug me, lay me down, and even tie me to the bed... I am a patient. I can suffer pain, fevers and be discouraged... I am a patient. I ...

Botox (iv only been waitting for 2 years)

kloua
  • By kloua · Posted September 15, 2009
  • 2 replies
  • well this time 2moro i would of had my botox. im a bit on edge at the moment, not sure whats going to happen iv been being sick alday thou, and im sure im gonna get DKA again. if i do i dont think i will ...

looking forward to meeting a great group

jalenboyce
  • By jalenboyce · Posted September 13, 2009
  • 0 replies
  • Just joined oley foundation! Looking forward to getting support, tips, and meeting some new friends that can relate to me and Jalen. Jalen is doing awsome and has been infection free since January! If ...

Helpful links from the Oley Foundation

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