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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
The Reasonable Curmudeon
- By GlennS · Posted October 29, 2009
- 0 replies
- My journal is my blog, The Reasonable Curmudgeon, at: http://thereasonablecurmudgeon.blogspot. com ...
The Journey of Super Grover T
- By SuperGroverT · Posted October 29, 2009
- 0 replies
- My son, Grover Thomas Hood, is 3 years old. Grover has yet to eat an entire meal without the aid of his G-Tube. Truthfully, starting with this part of the story is likely not the best first step, but ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Gastroparesis is bad, this is worse
- By Lynee · Posted October 26, 2009
- 40 replies
- Many of you know me as I've been posting here for several months. I've garnered strength and support from this group as well as hopefully helping a few people along the way. There are a few special friendships ...
Pulmanry Problems ??????CONFUSED!!!!!
- By Rodeogrl02 · Posted October 22, 2009
- 13 replies
- I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...
OR/bad news
- By shan789 · Posted October 20, 2009
- 10 replies
- Toady was very long. Jake had his disempaction this afternoon. His surgeon found several blockages in different parts of his colon, one located next to his cecostomy tube. The doctor suggested we try ...
I FEEL LIKE CRAP & AM GETTING THE RUN AROUND FROM MY DOCTORS!!!!!
- By Rodeogrl02 · Posted October 15, 2009
- 10 replies
- Does anyone know what I can do, I'm so fatigued and really tired every day no matter how much I sleep or rest, I have dysautonomia, and some times anemia or other low wbcs or platelets, the hematologist ...
Well I have decided
- By cheneyfox · Posted October 15, 2009
- 5 replies
- I figured out I am gonna die anyway and I am sick and tired of sitting at home waiting for this to happen. And I am sick and tired of my entire day being spent on my medical stuff. I have been afraid ...
Medical Professionals Don't Always Know More Than I Do!
- By cheneyfox · Posted October 14, 2009
- 1 reply
- For all the years I have been sick I have learned that just because a doctor can't find what's wrong with me doesn't mean that something ISN'T WRONG! I have been told I didn't have intestinal blockages ...
Not Feeling Well
- By cheneyfox · Posted October 14, 2009
- 1 reply
- It is amazing. I feel good one day and not so good the next. I have been going and going.. diarrhea, for the last 3 days and it has caught up with me. Now I am very weak and I don't want to get up and ...
cecostomy/backed up?
- By shan789 · Posted October 13, 2009
- 8 replies
- The last 3 nights when Jake does his flush he is getting a lot of the solution leaking out around his tube. He has also had a lot of thick smelly poo leaking out. He has also had some smearing the last ...
You KNow What I like???
- By cheneyfox · Posted October 13, 2009
- 8 replies
- I like my shiney fingernails. I like that my hair is growing. I like feeling stronger. I enjoy not having to eat. So today I refuse to complain, AT ALL, about my TPN! I am THANKFUL... Now if only I can ...
Recurrent Stoma granulation tissue problems and diarrhea issues w/ j-tube
- By Rodeogrl02 · Posted October 12, 2009
- 10 replies
- I keep getting these intestional looking things that my surgeon says are granulation tissue that form a bubley like thing nect to my stoma of my j-tube coming like from in the tract. I've been in literally ...
When is too much too much
- By aloha64 · Posted October 11, 2009
- 7 replies
- I just got the news that I may be having surgery for an infection surrounding my knee replacement. I had a revision last Jan '09. The infection is probably from the many PICC lines I have had. Infections ...
I think I may have a J-Tube Problem
- By Rodeogrl02 · Posted October 11, 2009
- 4 replies
- I've had my J-tube (right into my intestine) for 4 months now, I have had severe nausea and diarrhe for the past few weeks. Anyways, it was replaced about a week ago thru interventional radiology, it ...
Sudden onset of Nausea and diarrhea
- By Rodeogrl02 · Posted October 10, 2009
- 3 replies
- I've been on tube TPN at night for 4 months now, the first couple of months were okay, but now i'm so nauseated like there is something a lump in my throat and I feel like I am going to vomit but there ...
Yesterday SUCKED!
- By cheneyfox · Posted October 9, 2009
- 10 replies
- It wasn't because I was feeling bad or having pain, etc. It was just realizing my situation in its entirety. Thinking I will always have to be a medical project. My bedroom and fridge are filled with ...
3Y+2z=MC2
- By Sanford · Posted October 7, 2009
- 8 replies
- Speaking of formulas..... After giving some people advice during the last few weeks about how it's okay to occasionally take a day off from pumping, I decided that while an occasional day might be okay ...
Mind Tricks and Illness
- By cheneyfox · Posted October 6, 2009
- 0 replies
- Funny, yesterday I woke up and I felt fine. No pain, nausea, diarrhea. So I kept myself busy and as I usually do I started to believe I was fine. You know, not sick at all. But by the afternoon my pain ...
Traveling w/ Feed pump,pole and formula?????
- By Rodeogrl02 · Posted October 6, 2009
- 6 replies
- I've only had my J-tube since July, and rely on it for 95% of my nutrition due to severe gastroparesis. I have not gone anywhere out of state with it yet. I have a Kangaroo E-pump, that has to hook to ...
