Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · Posted November 6, 2009
- 3 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Weaning From TPN..
- By cheneyfox · Posted November 6, 2009
- 5 replies
- Well I am excited because for the next 2 days I have to measure everything that goes in and out of my body. Oh Boy... Gotta love measuring poo.. I know, we have all had to do it, but still.. It ain't ...
A Joyful Place
- By grannylu · Posted November 4, 2009
- 0 replies
- Just wanted to say thank you to part of my daily "inspiration." On FB, I receive occasional inspirational messages, and today's was ". . . that to burn out the pain, just find a place filled with joy ...
Mad and thankful at the same time
- By sacarver · Posted November 3, 2009
- 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
Going To Wean Off Of TPN
- By cheneyfox · Posted November 2, 2009
- 5 replies
- Leaving soon to go to Omaha for 2 weeks to wean off TPN onto their IRP diet. I hope it works. It will be great to NOT have to carry my bag around with me. I am hopeful... I long for a break from my recent ...
Thank you.
- By mom101 · Posted October 31, 2009
- 1 reply
- SuperGroverT - Thank you for sharing you and yor son's journey. I am a mom of a soon-to-be 13 year old who started off with a life threatening heart defect at birth - had surgery at 1 week and also left ...
Update on nausea
- By Zacolton · Posted October 30, 2009
- 7 replies
- Just an update on my previous post. My nausea is almost gone now, no idea why, just gone, but anyways I'm working slowly and carefully on reintroducing food and regaining strength. I hope now that I'm ...
Week 2 of diarrhea!!!
- By Rodeogrl02 · Posted October 29, 2009
- 8 replies
- So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...
The Reasonable Curmudeon
- By GlennS · Posted October 29, 2009
- 0 replies
- My journal is my blog, The Reasonable Curmudgeon, at: http://thereasonablecurmudgeon.blogspot. com ...
The Journey of Super Grover T
- By SuperGroverT · Posted October 29, 2009
- 0 replies
- My son, Grover Thomas Hood, is 3 years old. Grover has yet to eat an entire meal without the aid of his G-Tube. Truthfully, starting with this part of the story is likely not the best first step, but ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Gastroparesis is bad, this is worse
- By Lynee · Posted October 26, 2009
- 40 replies
- Many of you know me as I've been posting here for several months. I've garnered strength and support from this group as well as hopefully helping a few people along the way. There are a few special friendships ...
Pulmanry Problems ??????CONFUSED!!!!!
- By Rodeogrl02 · Posted October 22, 2009
- 8 replies
- I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...
OR/bad news
- By shan789 · Posted October 20, 2009
- 10 replies
- Toady was very long. Jake had his disempaction this afternoon. His surgeon found several blockages in different parts of his colon, one located next to his cecostomy tube. The doctor suggested we try ...
I FEEL LIKE CRAP & AM GETTING THE RUN AROUND FROM MY DOCTORS!!!!!
- By Rodeogrl02 · Posted October 15, 2009
- 10 replies
- Does anyone know what I can do, I'm so fatigued and really tired every day no matter how much I sleep or rest, I have dysautonomia, and some times anemia or other low wbcs or platelets, the hematologist ...
Well I have decided
- By cheneyfox · Posted October 15, 2009
- 5 replies
- I figured out I am gonna die anyway and I am sick and tired of sitting at home waiting for this to happen. And I am sick and tired of my entire day being spent on my medical stuff. I have been afraid ...
Medical Professionals Don't Always Know More Than I Do!
- By cheneyfox · Posted October 14, 2009
- 1 reply
- For all the years I have been sick I have learned that just because a doctor can't find what's wrong with me doesn't mean that something ISN'T WRONG! I have been told I didn't have intestinal blockages ...
Not Feeling Well
- By cheneyfox · Posted October 14, 2009
- 1 reply
- It is amazing. I feel good one day and not so good the next. I have been going and going.. diarrhea, for the last 3 days and it has caught up with me. Now I am very weak and I don't want to get up and ...
cecostomy/backed up?
- By shan789 · Posted October 13, 2009
- 8 replies
- The last 3 nights when Jake does his flush he is getting a lot of the solution leaking out around his tube. He has also had a lot of thick smelly poo leaking out. He has also had some smearing the last ...
You KNow What I like???
- By cheneyfox · Posted October 13, 2009
- 8 replies
- I like my shiney fingernails. I like that my hair is growing. I like feeling stronger. I enjoy not having to eat. So today I refuse to complain, AT ALL, about my TPN! I am THANKFUL... Now if only I can ...
