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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · Posted 7:22 pm
- 0 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
Today is a Good Day
- By cheneyfox · Posted 5:17 pm
- 0 replies
- After my recent life or death battle with my on going intestinal problems I am finally doing much better. I pray it continues. But I have learned much in the last 3 years. Mostly that being a patient ...
Diagnosed with Gastroparesis - Any Advice Appreciated!
- By Ando · Posted November 15, 2009
- 1 reply
- I was diagnosed with gastroparesis, and before diagnosis I gained 50 pounds. Over 1/3 of my body weight. I cannot eat very much, but try and eat 1,000 calories/day, but it is painful. The doctors I have ...
Modular feeds
- By HelenB8 · Posted November 14, 2009
- 3 replies
- Ben is going into Great Ormond Street hospital for a trial of modular feeds. He is doing better being fed into the jejunum but has not gained any weight for nearly 2 years! Our dr thinks he cannot tolerate ...
ANYONE HAVE A MIC-EY J-TUBE?????
- By Rodeogrl02 · Posted November 13, 2009
- 15 replies
- I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...
In the Interest of Why?
- By SuperGroverT · Posted November 12, 2009
- 0 replies
- This came to me in a flash last night. I thought it might be worth sharing. If you want to learn more, please contact Grover via Ning at: http://ning.com/supergrovert or http://supergrovert.com and http://freegrovert.blogspot.com ...
In the Interest of Why
- By SuperGroverT · Posted November 12, 2009
- 0 replies
- There is an inherent beauty in innocence. I see it in Avery’s eyes still, yet I know it won’t be there forever. Invevitably, she’ll encounter something, somewhere, someday that makes her understand ...
PEG Tube placement recovery ?
- By Rodeogrl02 · Posted November 11, 2009
- 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · Posted November 6, 2009
- 9 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Weaning From TPN..
- By cheneyfox · Posted November 6, 2009
- 5 replies
- Well I am excited because for the next 2 days I have to measure everything that goes in and out of my body. Oh Boy... Gotta love measuring poo.. I know, we have all had to do it, but still.. It ain't ...
A Joyful Place
- By grannylu · Posted November 4, 2009
- 0 replies
- Just wanted to say thank you to part of my daily "inspiration." On FB, I receive occasional inspirational messages, and today's was ". . . that to burn out the pain, just find a place filled with joy ...
Mad and thankful at the same time
- By sacarver · Posted November 3, 2009
- 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
Going To Wean Off Of TPN
- By cheneyfox · Posted November 2, 2009
- 5 replies
- Leaving soon to go to Omaha for 2 weeks to wean off TPN onto their IRP diet. I hope it works. It will be great to NOT have to carry my bag around with me. I am hopeful... I long for a break from my recent ...
Thank you.
- By mom101 · Posted October 31, 2009
- 1 reply
- SuperGroverT - Thank you for sharing you and yor son's journey. I am a mom of a soon-to-be 13 year old who started off with a life threatening heart defect at birth - had surgery at 1 week and also left ...
Update on nausea
- By Zacolton · Posted October 30, 2009
- 7 replies
- Just an update on my previous post. My nausea is almost gone now, no idea why, just gone, but anyways I'm working slowly and carefully on reintroducing food and regaining strength. I hope now that I'm ...
Week 2 of diarrhea!!!
- By Rodeogrl02 · Posted October 29, 2009
- 15 replies
- So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...
The Reasonable Curmudeon
- By GlennS · Posted October 29, 2009
- 0 replies
- My journal is my blog, The Reasonable Curmudgeon, at: http://thereasonablecurmudgeon.blogspot. com ...
The Journey of Super Grover T
- By SuperGroverT · Posted October 29, 2009
- 0 replies
- My son, Grover Thomas Hood, is 3 years old. Grover has yet to eat an entire meal without the aid of his G-Tube. Truthfully, starting with this part of the story is likely not the best first step, but ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Gastroparesis is bad, this is worse
- By Lynee · Posted October 26, 2009
- 40 replies
- Many of you know me as I've been posting here for several months. I've garnered strength and support from this group as well as hopefully helping a few people along the way. There are a few special friendships ...
