Journals
- By cofiftyseven · Posted November 26, 2008
- 2 replies
- Last year I had all but 40cm of my small bowel removed. I have been on HPN ever since. At my last Doctor visit my gastroenterologist has suggested I take infusions of Remicade. I would like to hear from ...
- By 4feet · Posted November 26, 2008
- 6 replies
- I've had trouble eating since having most of my small intestine removed. My hemotologist prescriped "pangestyme", it's a pancreatic enzyme. I take 1 with snack, 2 with meals. It has really helped. Since ...
- By FaithandHope · Posted November 20, 2008
- 7 replies
- My user name is Hope and Faith, because sometimes that's all you have left as a parent. My daughter has had short bowel since birth. She is the most precious thing to me and I feel so blessed to have ...
- By 4feet · Posted November 16, 2008
- 1 reply
- I get severe abdominal cramps when I eat and also nausea and sometimes vomittting. Does anyone know how to relieve these symptoms? I have short bowel syndrome (had most of my small intestine removed ...
- By Kathryn1972 · Posted November 15, 2008
- 6 replies
- I am new to the forum and have only just started posting. I have severe gastroparesis and Behcets Disease. I have been on and off TPN for a few years, but 5 months ago it was decided I needed to go on ...
- By tah08 · Posted November 14, 2008
- 3 replies
- Last year 2007 I kept having this sharp pain on my right side of my head and neck, plus a sore throat, so I went to Primed and they treated as a cold and it lighten up, but didn't go away, then I went ...
- By 4feet · Posted November 10, 2008
- 3 replies
- Looking for a good GI doctor in the Phoenix, AZ area ...
- By 4feet · Posted November 10, 2008
- 0 replies
- I have short bowel syndrome and am looking for anyone who may know of a good GI doctor in the Phoenix, AZ area. 4feet ...
- By shan789 · Posted November 7, 2008
- 11 replies
- So we ended up at the ER last night, with a very clogged NG tube. The dr. had a nurse try to unclog it, but it wouldn't budge. So they ended up putting in a new one. This one is a little bigger, and last ...
- By Jameson · Posted November 1, 2008
- 4 replies
- before I had to have most of my small intestine removed when I was 16, thus changing my life, I had no aspirations in life. I didn't want to go to college, and I cared nothing about school. After getting ...
- By shan789 · Posted October 29, 2008
- 10 replies
- We only had one good night with the tube not getting plugged. It just seems to get plugged 4 hours into the feed. I have started watering down the formula, and flushing with soda, and running 100cc through ...
- By DGSTRICK · Posted October 24, 2008
- 4 replies
- My DOctor had been goign to refer me back to home care since July. I finally got a call this wek and the case manager was kind of mythed with me and siad that as I was young I should be more mobile and ...
- By shan789 · Posted October 23, 2008
- 10 replies
- We saw his surgeon today, not real good, he lost a lb. So he added a feed during the afternoon, so he's getting 1000ML of formula a day. He told Jake the NG tube stays in until, he reaches 110lbs( he's ...
- By shan789 · Posted October 20, 2008
- 8 replies
- Hi, Jake is still not eating much at all. He is eating about 200 to 400 caloeies a day. He's still getting what he needs through his NG tube. The only problem is that his NG tube keeps getting clogged ...
- By mommysworld96 · Posted October 15, 2008
- 4 replies
- Expanding my horizons through Google, I have found you all. My name is Beckie, I am a single Mom of 4. What brings me to you is my daughter, and my inspiration, Hannah. She just turned 7 this June. She ...
- By tierney · Posted October 13, 2008
- 1 reply
- I am so not thrilled about doing these feeds. We tried this before and I just got sick. I am doing so well with school and I don't want to fall behind again. I hate this so much. I agreed to it if they ...
- By shan789 · Posted October 12, 2008
- 4 replies
- I took Jake to see the surgeon on Wednesday, and he admitted him to the hospital right away. After many test, the upper scope showed he had sever gastritis, and a very bad stomach infection. He ended ...
- By tierney · Posted September 28, 2008
- 6 replies
- Everybody, who has health issues, always has that one support. Every time that I am sad, angry, or something, I never have no idea who to talk to. I just feel like screaming. This prison that I am in ...
- By starlitesonata · Posted September 22, 2008
- 4 replies
- I am having a good day today. Nobody to agrevate me. I even can for the winter all week. Our friend Bob came over and we made salsa.. I wish with each passing day I can have surgery. I feel as though ...
- By tierney · Posted September 21, 2008
- 1 reply
- Everything is just so crazy these days. I have to worry about school and my health. It's so hard because I stress out. I haven't been in the hospital for about a month now. That is always a good thing ...
