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I FEEL LIKE CRAP & AM GETTING THE RUN AROUND FROM MY DOCTORS!!!!!

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Does anyone know what I can do, I'm so fatigued and really tired every day no matter how much I sleep or rest, I have dysautonomia, and some times anemia or other low wbcs or platelets, the hematologist says it my dysautonomia and the neurologists says it's the low blood counts, I don't know what to do!!!I'm so frustrated I've called a couple of times today and both are like whatever (well the hematologist anyway) and the neurologist has not gotten back or returned my phone call and it's now after hours, and I left 3 msgs. I have a body like an ancient person, I have osteoporosis, vitamin d deficiency thats not responding to the treatment i've been on for months. Also somethings abnormal w/ my hip joint so I'm in pain every day -i'm in physical therapy but the therapist is afraid to manipulate or push it too much cuz she thinks there's more going on and wondered why my pcp didn't send me to an orthapedic specialist for more testing. I can hardly walk after therapy or riding my horses. I also have a j-tube, pituitary adenoma, thyroid nodule. I'm sick of feeling sick and getting teh run around or no answers to the point that I get upset and start crying for no reason !!!!!!HELP IF ANYONE HAS ANY INFO!!!!!!!!!!!!!!!!!!!!!!!!My dysautonomia is just being treated with mestinon liquid (to go thru my j-tube and propranalol) shouldn't they be doing more???? Other people I hear get ivig therapy and stuff like that????

Helpful links from the Oley Foundation

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