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About Being Thirsty

bardan
  • By bardan · New reply yesterday at 9:26 pm
  • In Home IV feeding (HPN, parenteral nutrition) · 11 replies
  • As some of you know my hubby has a G-tube. He is allowed to eat a small amount of pudding and 'pudding thick' milk at meal times now as 'recreational feeding'. But he gets very thirsty through the day ...

Intense J tube pain & other issues

dolphin12969
  • By dolphin12969 · New reply yesterday at 2:04 pm
  • In Home tube feeding (HEN, enteral nutrition) · 4 replies
  • I had my J tube surgically placed in January with a 7" incision. I take formula, additional water & meds through my tube. In spite of religiously flushing the heck out of it, on Friday (5/17) it became ...

When a J~tube is necessary...

jerZgirl
  • By jerZgirl · New reply yesterday at 12:54 pm
  • In Home tube feeding (HEN, enteral nutrition) · 1 reply
  • Can anyone tell me at what point did you or your doctor feel you needed a feeding tube? Was it due to not eating, not eating enough, or just extreme low weight ...

When a J~tube is necessary...

jerZgirl
  • By jerZgirl · New reply yesterday at 12:40 pm
  • In Home tube feeding (HEN, enteral nutrition) · 1 reply
  • Can anyone tell me at what point did you or your doctor feel you needed a feeding tube? Was it due to not eating, not eating enough, or just extreme low weight ...

Vacation Away From TPN dependent child?

winonaj
  • By winonaj · New reply yesterday at 10:43 am
  • In Home IV feeding (HPN, parenteral nutrition) · 3 replies
  • My husband and I are the only ones who do the TPN connection at night (and dressing changes) for my 2.5 year old son, who has been on TPN since birth. One time his parents did the disconnect, but so far ...

Vitamin shortage

RCarol
  • By RCarol · New reply May 24, 2013
  • In Home IV feeding (HPN, parenteral nutrition) · 17 replies
  • Those on tpn know that occasionally there are ingredient shortages like the lipids. Well, this week, the vitamins have gone on the endangered list! My tpn was delivered with three viles of vitamins to ...

One year with the Tube and I owe a thanks to all of you.

p37307
  • By p37307 · New reply May 24, 2013
  • In Out and about · 22 replies
  • I want everyone on here and at Oley to know that it was your stories and resources, as a community, that convinced me to change my living will and get a feeding tube last April 16, 2012 and get a feeding ...

Who's gunna let me know

cole0345
  • By cole0345 · New reply May 24, 2013
  • In Home IV feeding (HPN, parenteral nutrition) · 15 replies
  • I a getting my J- tube on Wednesday and then: who tells me if I use a pump, gravity, or bolus to feed? Who is going to tell me what formula to use and calculate it? All they told me was when to report ...

Any Suggestions

mchapstick
  • By mchapstick · New reply May 23, 2013
  • In Family and friends · 1 reply
  • My father had cancer of his duodenal 24 years ago. They did a new prcoedure at the University of PA by leaving him cut open and shot a dose of radiation on the site where he had his cancer. The procedure ...

Please help!

nwhite2
  • By nwhite2 · New reply May 23, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 7 replies
  • I have a 13mo old boy with sbs. He started eating last September, small amounts but its something! Then around february or so he stopped wanting to eat completely. I believe really bad acid reflux caused ...

Questions concerning G-tube

Tauno
  • By Tauno · New reply May 23, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 12 replies
  • My wife has advanced Alzheimers. She is unable to communicate. She has a 20 french G-Tube . We use the bolus method of feeding. We feed her 4 times daily. 20 cc's of warm water to flush, 30 cc's of room ...

New member

kjdoubek
  • By kjdoubek · New reply May 23, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 2 replies
  • I'm new to long term tube feeding. It isn't the tube feeding that I'm having issues with so much as the inability to eat. I'm allowed up to full liquids, but the last two weeks I've been "cheating" a ...

G-Tube Opening Stretched & Leaks

bardan
  • By bardan · New reply May 23, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 5 replies
  • My hubby's G-Tube opening stretched because the nurse(s) pushed the feeding bag tube into it too far too many times. When we take the bag connectionb out of the tube, the cap closes, but the tube leaks ...

Who supplies your TPN? TPN or Death?

skp817
  • By skp817 · New reply May 23, 2013
  • In Home IV feeding (HPN, parenteral nutrition) · 16 replies
  • New to site. My mother lives in FL (76) and had stage 3 Ovarian Cancer last April and this April she found out her small intestines is covered with tumors that have caused several intestinal blockages ...

Not tolerating Jejunal feeding

mama-ryck
  • By mama-ryck · New reply May 22, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 6 replies
  • I am here on the behalf of my best friend who has suffered greatly from gastroparesis. She has been in and out of the hospital countless times for dehydration, low BP and now malnutrition. She has a G ...

G-Tube Leak

Brentwoodwalla
  • By Brentwoodwalla · New reply May 22, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 12 replies
  • My 32YO daughter has a G-tube that is leaking very bad for last 3 years. For first 15 years it did not leak at all. We have switched from Mikey to Mini brand G-tube. The surgeon advised us to change to ...

Do you feel things moving?

gastromomma
  • By gastromomma · New reply May 22, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 3 replies
  • My last J tube balloon deflated after only 6 weeks and fell out and I had a new one placed about a week ago. I am a neurotic mess that it is going to happen again. This one has a much longer "tail" after ...

Gattex

chuda

Please Help!!!!

nwhite2
  • By nwhite2 · New reply May 21, 2013
  • In Parents' corner · 1 reply
  • I have a 13mo old boy with sbs. He started eating last September, small amounts but its something! Then around february or so he stopped wanting to eat completely. I believe really bad acid reflux caused ...

Portable hen pump

Mom2jandm
  • By Mom2jandm · New reply May 18, 2013
  • In Home tube feeding (HEN, enteral nutrition) · 9 replies
  • My last question for tonight, I promise. So my dr had told me the hen pump would be portable. I have a 4 yo and 5yo and can not be attached to the IV pump all day to feed. My dme company says they do ...

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