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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active discussions
Bile Draining Methods
- By cdpmom · Posted yesterday at 10:56 pm
- In Parents' corner · 0 replies
- My son has had a g tube for a year, and was "upgraded" to a g/j tube in August due to bilious vomiting. Feeding through the j port has dramatically improved his ability to tolerate feeds, but lately ...
Mickey G-J tube
- By SBMom4 · New reply yesterday at 10:53 pm
- In Parents' corner · 10 replies
- I am new to the group....hoping someone can help! My daughter had her Gtube removed in January (due to increased aspiration pnuemonia) and they placed a low profile Mickey G-J tube. She is on continous ...
Dealing with a hugely unsupportive caregiver
- By jackrabbit · New reply yesterday at 9:18 pm
- In Home tube feeding (HEN, enteral nutrition) · 7 replies
- I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...
Triumphing inspite of Tube Feeding (Athletics, College, Traveling and More!
- By mldelucchi · New reply yesterday at 9:08 pm
- In Out and about · 14 replies
- To those interested from reading the topic title; I've started this forum in hopes of galvanizing some good advice from all those who were born with, and those who later in life took on, a dependency ...
Adult PEG tubers
- By Katie811 · New reply yesterday at 8:49 pm
- In Out and about · 52 replies
- I would really like to hear from some other adults that use PEG tubes. I have been on my tube for almost 2 yrs, not having any problems, but would like to meet some other "tubers" out there. As far as ...
Leakage on PEG
- By bbidals · Posted yesterday at 3:32 pm
- In Home tube feeding (HEN, enteral nutrition) · 0 replies
- Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...
Mic-KEY button "sucked in"
- By PeytonsParents · New reply yesterday at 1:05 pm
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...
Michael Moore's warning for Canada - he's CLUELESS
- By jackrabbit · New reply yesterday at 12:41 pm
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- I know it's not new to rant about Michael Moore, but his inane statement about Canada's healthcare system make me really mad. From Yahoo news: Documentary filmmaker Michael Moore says Canadians have to ...
Adapter
- By dees · New reply November 19, 2009
- In Home tube feeding (HEN, enteral nutrition) · 1 reply
- Any ideas on a new adapter for my 20 french tube? Only 10 wks & I've had to change out my adapter. The Boston Scientific 20fr Y port adapter is designed for those who use a pump, but I use cans and the ...
The biggest GTube in Food Inc the film
- By DungBeetle · New reply November 18, 2009
- In Home tube feeding (HEN, enteral nutrition) · 2 replies
- I know I said I wanted a pill port and didn't care how big the stoma needed to be~~well, I changed my mind after seeing the biggest dang stoma and "button" on a COW in the film Food Inc. They are using ...
Line sepsis experiences
- By regbrigidmom · New reply November 17, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 3 replies
- Brigid is 4, and has had a central line of one sort or another (first a port, then a broviac because the port reservoir turned to cement from her TPN) for 2 years. I'll leave out the lead-up story (it's ...
Food-deprivation driving me mad - help!
- By jackrabbit · New reply November 16, 2009
- In Home tube feeding (HEN, enteral nutrition) · 9 replies
- The damaged nerves in my face affect my tongue, teeth, and the roof of my mouth. Any flavor, texture, or temperature difference causes murderous pain which lasts for days, hence the reason for my g-tube ...
Vivonex RTF Formula & Rate
- By ranee · New reply November 16, 2009
- In Home tube feeding (HEN, enteral nutrition) · 3 replies
- I have been switched off of Peptimen which I could feed at a rate of up to 120mL / hr to Vivonex which they said I could not feed faster than 40mL / hr. This requires that I feed 24hours a day and is ...
Asking g-tube athletes - questions about formula's fat level
- By jackrabbit · New reply November 15, 2009
- In Home tube feeding (HEN, enteral nutrition) · 2 replies
- Before my injury I had a muscular, rock hard physique. Post-injury I lost 25 lbs of muscle, and my leanmass-fat ratio changed drastically. After having the PEG tube inserted I've gained back 11 lbs, but ...
J tube replacement w/o anestesia
- By ranee · New reply November 15, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- I recently had my J tube replaced for the 2nd time- only was shocked when the dr at a well known clinic did it with no warning and no anestesia or pain meds. Let's just say it was a bloody and painful ...
Dressing Changes Once a Week
- By cheneyfox · New reply November 13, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 13 replies
- So, we all have some sort of IV line for our HPN, right? Well do we all have to go see a nurse every week to get the dressings changed? I think this is unnecessary. I can change my own dressing. i had ...
Adult TPN Patients, Be Part of Valuable and Exciting Quality of Life Study!
- By oleyfriends · New reply November 12, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 1 reply
- The Oley Foundation is conducting a quality of life study of adults on home parenteral nutrition (also called HPN or TPN). Your participation is vital as we seek to create a realistic and comprehensive ...
Feed Pump Question
- By Duran · New reply November 12, 2009
- In Home tube feeding (HEN, enteral nutrition) · 16 replies
- Hi - I'm new to Oley/Inspire and am looking for opinions on feeding pumps. Planning to get a pump for g-tube feedings for my son, but want one that you can clean the bags and tubing without using the ...
Calorie questions...
- By jackrabbit · New reply November 11, 2009
- In Home tube feeding (HEN, enteral nutrition) · 8 replies
- I've talked b4 about wanting to switch to a homemade blender diet, but I can't afford it right now. I cannot afford any food whatsoever, so am unsure what to do about my constant hunger. Perhaps the hunger ...
Can I still remain physically active/fit with a g-tube
- By jackrabbit · New reply November 11, 2009
- In Home tube feeding (HEN, enteral nutrition) · 22 replies
- My surgeon has never inserted a PEG tube in someone who's still able to walk. By this I assume he means he's only performed the procedure on disabled/bedridden/elderly/dying patients. I'm his first physically ...
