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Discussions
Leakage on PEG
- By bbidals · Posted 3:32 pm
- In Home tube feeding (HEN, enteral nutrition) · 0 replies
- Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...
Dealing with a hugely unsupportive caregiver
- By jackrabbit · Posted November 18, 2009
- In Home tube feeding (HEN, enteral nutrition) · 6 replies
- I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...
Michael Moore's warning for Canada - he's CLUELESS
- By jackrabbit · Posted November 18, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- I know it's not new to rant about Michael Moore, but his inane statement about Canada's healthcare system make me really mad. From Yahoo news: Documentary filmmaker Michael Moore says Canadians have to ...
Triumphing inspite of Tube Feeding (Athletics, College, Traveling and More!
- By mldelucchi · Posted November 17, 2009
- In Out and about · 13 replies
- To those interested from reading the topic title; I've started this forum in hopes of galvanizing some good advice from all those who were born with, and those who later in life took on, a dependency ...
Mic-KEY button "sucked in"
- By PeytonsParents · Posted November 17, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...
Line sepsis experiences
- By regbrigidmom · Posted November 16, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 3 replies
- Brigid is 4, and has had a central line of one sort or another (first a port, then a broviac because the port reservoir turned to cement from her TPN) for 2 years. I'll leave out the lead-up story (it's ...
Vivonex RTF Formula & Rate
- By ranee · Posted November 14, 2009
- In Home tube feeding (HEN, enteral nutrition) · 3 replies
- I have been switched off of Peptimen which I could feed at a rate of up to 120mL / hr to Vivonex which they said I could not feed faster than 40mL / hr. This requires that I feed 24hours a day and is ...
J tube replacement w/o anestesia
- By ranee · Posted November 14, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- I recently had my J tube replaced for the 2nd time- only was shocked when the dr at a well known clinic did it with no warning and no anestesia or pain meds. Let's just say it was a bloody and painful ...
Adult TPN Patients, Be Part of Valuable and Exciting Quality of Life Study!
- By oleyfriends · Posted November 11, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 1 reply
- The Oley Foundation is conducting a quality of life study of adults on home parenteral nutrition (also called HPN or TPN). Your participation is vital as we seek to create a realistic and comprehensive ...
TPN
- By charliegirl3 · Posted November 10, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Does any one have the same problem I am having on Tpn. I am gaining so much weight on it and I don't like. I feel like A BLIMP. this is my last chance before they pit a tube in me. Is there exercices ...
Cecostomy for a quadrapalegic?
- By proudmom2x · Posted November 10, 2009
- In Family and friends · 1 reply
- Ok My daughter is 5 years old and has had a cecostomy for about a year now. It is wonderful. Well about 4 days after she had her surgery my Uncle whom is 50 years old had a 18 wheeler accident and rolled ...
Dressing Changes Once a Week
- By cheneyfox · Posted November 10, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 13 replies
- So, we all have some sort of IV line for our HPN, right? Well do we all have to go see a nurse every week to get the dressings changed? I think this is unnecessary. I can change my own dressing. i had ...
The biggest GTube in Food Inc the film
- By DungBeetle · Posted November 10, 2009
- In Home tube feeding (HEN, enteral nutrition) · 2 replies
- I know I said I wanted a pill port and didn't care how big the stoma needed to be~~well, I changed my mind after seeing the biggest dang stoma and "button" on a COW in the film Food Inc. They are using ...
hickman catheter removal
- By thelilangel · Posted November 9, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 2 replies
- i have had a hickman catheter in for about 4 months and i will be getting it removed soon. my doctors office schedualed the apointment with the surgen to remove it so i didn't get a chance to ask how ...
Skin red around Amt Button
- By peg07 · Posted November 8, 2009
- In Home tube feeding (HEN, enteral nutrition) · 3 replies
- Hi It is me again -- I had my first Amt button inserted on Thursday. It feels tight and the skin around the button is red. Is this the way it is suppose to be? Peg ...
Asking g-tube athletes - questions about formula's fat level
- By jackrabbit · Posted November 8, 2009
- In Home tube feeding (HEN, enteral nutrition) · 2 replies
- Before my injury I had a muscular, rock hard physique. Post-injury I lost 25 lbs of muscle, and my leanmass-fat ratio changed drastically. After having the PEG tube inserted I've gained back 11 lbs, but ...
Finding qualified home health care providers
- By Matt_M · Posted November 3, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 4 replies
- Hello all. I'm new to the group and the whole topic. My elderly mother has recently been placed on TPN as a part of her Crohn's treatment. She is still in the hospital, but hopes to be discharged soon ...
Need Advice about AMT feeding extensions
- By peg07 · Posted November 3, 2009
- In Home tube feeding (HEN, enteral nutrition) · 15 replies
- To those of you who have AMT balloon buttons. How long do you use your feeding extension tubes? The AMT website says they should be changed every two to three weeks. Is that your experience? I went longer ...
getting a Hickman's: deep breath
- By Woeful · Posted November 2, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Nothing like short notice. I get a call today that my outpatient surgery is scheduled for this Friday. They are going to try and drain this ovarian mass (the thinking being it's not cancer but fluid build-up ...
Let's get together
- By Sanford · Posted November 2, 2009
- In Out and about · 10 replies
- I think it's about time to start a local support group. Nothing too formal, but I was thinking we could either rotate informally between homes, or go out for coffee. I'm in NYC (Da Bronx). Anyone interested ...
