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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Discussions
Finding qualified home health care providers
- By Matt_M · Posted November 3, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 4 replies
- Hello all. I'm new to the group and the whole topic. My elderly mother has recently been placed on TPN as a part of her Crohn's treatment. She is still in the hospital, but hopes to be discharged soon ...
Need Advice about AMT feeding extensions
- By peg07 · Posted November 3, 2009
- In Home tube feeding (HEN, enteral nutrition) · 13 replies
- To those of you who have AMT balloon buttons. How long do you use your feeding extension tubes? The AMT website says they should be changed every two to three weeks. Is that your experience? I went longer ...
getting a Hickman's: deep breath
- By Woeful · Posted November 2, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Nothing like short notice. I get a call today that my outpatient surgery is scheduled for this Friday. They are going to try and drain this ovarian mass (the thinking being it's not cancer but fluid build-up ...
Let's get together
- By Sanford · Posted November 2, 2009
- In Out and about · 6 replies
- I think it's about time to start a local support group. Nothing too formal, but I was thinking we could either rotate informally between homes, or go out for coffee. I'm in NYC (Da Bronx). Anyone interested ...
Profuse sweating during infusions
- By Judi-1 · Posted October 28, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 2 replies
- I have been on HPN for 18 years. Over the past several years, I have been experiencing profuse sweating beginning about four to five hours into my twelve hour infusion. I am literally drenched so that ...
lipids?
- By momto2girls · Posted October 28, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Hi, I've been reading some discussions here since my daughter started on TPN a little over a week ago. I have a question about lipids..I've read that some have 2 bags to hang or a double chambered bag ...
Calorie questions...
- By jackrabbit · Posted October 27, 2009
- In Home tube feeding (HEN, enteral nutrition) · 7 replies
- I've talked b4 about wanting to switch to a homemade blender diet, but I can't afford it right now. I cannot afford any food whatsoever, so am unsure what to do about my constant hunger. Perhaps the hunger ...
I need a Gtube with a pill port
- By DungBeetle · Posted October 26, 2009
- In Home tube feeding (HEN, enteral nutrition) · 15 replies
- I am being told of new meds on the market that could really help my guy who is 100% Gtube (no swallow/gap reflex) to help manage his crohn's dx~~~alas, the meds are pill and must keep whole to work in ...
Food-deprivation driving me mad - help!
- By jackrabbit · Posted October 26, 2009
- In Home tube feeding (HEN, enteral nutrition) · 4 replies
- The damaged nerves in my face affect my tongue, teeth, and the roof of my mouth. Any flavor, texture, or temperature difference causes murderous pain which lasts for days, hence the reason for my g-tube ...
has anyone had surgery after going on TPN?
- By Woeful · Posted October 25, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 6 replies
- I guess I'm addressing this question to anyone who has lost most of their intestines (in particular, all of their ileum), or to those like me who don't have a colostomy because you no longer have bowel ...
C. Diff
- By kayjay35 · Posted October 24, 2009
- In Home tube feeding (HEN, enteral nutrition) · 8 replies
- Has anyone contracted c. diff while having a j-tube? My husband received his first j-tube in January 2008 and has had c. diff 3 times since then. It usually occurs shortly after having his tube changed ...
balloon popping in the GJ tube
- By prettykitty · Posted October 24, 2009
- In Home tube feeding (HEN, enteral nutrition) · 6 replies
- Has anyone had trouble with the balloon that holds a GJ tube in place deflating before they are scheduled to get the tube replaced? Do your tubes fall out completely as a result? I had this happen in ...
Feed Pump Question
- By Duran · Posted October 23, 2009
- In Home tube feeding (HEN, enteral nutrition) · 13 replies
- Hi - I'm new to Oley/Inspire and am looking for opinions on feeding pumps. Planning to get a pump for g-tube feedings for my son, but want one that you can clean the bags and tubing without using the ...
TPN and Clotting Factors
- By cheneyfox · Posted October 21, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 1 reply
- Flew about 600 miles yesterday for my follow up appointment. I was told today that the blood work they did yesterday came back with a PTT abnormality. How does TPN affect clotting factor? My bp was elevated ...
my first year "anniversary"
- By Woeful · Posted October 21, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 5 replies
- So next week is my first-year "anniversary" of when my life changed forever. Did that date stick out in anyone else's mind? 12 months later and I'm still firmly stuck in the shellshock/denial stage, I ...
J tube users - used for drainage only?
- By Woeful · Posted October 21, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 12 replies
- I think I asked this question a while back, but can't remember now (too much clutter in my head these days). Is there anyone here who has a J tube that is used for drainage, NOT for feeding? (I'm fed ...
Please support health care reform!
- By daviandsteve · Posted October 21, 2009
- In Out and about · 1 reply
- No one should have to sell all their posessions and face the loss of their home because their spouse (primary breadwinner) is ill, can no longer work, and has been racking up huge medical expenses! It's ...
RECURRENT LINE INFECTIONS
- By Daughterhelpingmom · Posted October 20, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 42 replies
- My mom has been on HPN for approximately 3 months. She's had two picc lines and a Hickman catheter. The Hickman has only been in 13 days and already she's back in the hospital with another infection ...
results of tpn snafu
- By cp20855 · Posted October 19, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 2 replies
- Okay, I admit it: I really messed up husband's infusion yesterday. Without all the details, what I did was use the pump set for hydration on the TPN. Thus, TPN had NO ramp up or ramp down time, no famotidine ...
Stoma bleeding - normal?
- By jackrabbit · Posted October 18, 2009
- In Home tube feeding (HEN, enteral nutrition) · 4 replies
- I know, I know, all I ever do on this forum is ask questions, but hey, I'm brand new to this. Previously I wore a gauze pad under the PEG's rubber stopper 24/7 (changing it once a day, of course) to help ...
