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I think it's about time to start a local support group. Nothing too formal, but I was thinking we could either rotate informally between homes, or go out for coffee. I'm in NYC (Da Bronx). Anyone interested can contact me through Team Inspire or through Oley (I'm currently on call and they have my cell phone).
Hi, Sanford.
It's a fur piece from Atlanta or I would be there with bells on. I was glad to see your post because we hadn't heard much from you lately. I was actually thinking I should touch base and be sure you are OK.
Congratulations on taking the initiative to form a support group. I wish for one in Atlanta, but haven't yet taken the steps to do something about it.
Best wishes! Marie
Hi, Marie. I haven't posted much to the website lately, but behind the scenes, I've been pretty busy, I'm on call at the moment for Oley and so people have been calling my cell phone. I'm pretty good.
Hi, Sanford. I'm glad you are one of the current resources for Oley and that its working for you. And all of you out there, I hope you are utilizing the fabulous resources of the Oley Foundation (www.oley.org). May all of us have a sunny day (even if its raining or snowing where you are).
Blessings, Marie
Wish I were closer, Louisiana is just a tad bit away from driving there. Would love to sit down and visit with everyone.
Liz
Way too far away from where I live (Washington), but I wish you good luck.
It would be wonderful of all states had support groups for people with feeding tubes.
Jessie
I would love to do that but am in il
Sanford,
I hope you have better luck starting a group than we did. Two people from our area came up to us at the Oley meeting and said the would like to have a support group. So, Steve drafted a letter telling about CPOG: Chesapeake Potomac Oley Group, and Cathy sent it out on Oley's letterhead to, I think, all Oley members in DC, MD and VA. We received very few responses, certainly not enough to go to the effort of finding a place to meet, obtaining speakers who can address the needs of both parenteral and enteral pumpers, etc. So . . . I guess it's not gonna happen. I KNOW there are lots more consumers out there! But, I can't blame them; we live in a pretty spread out area, and besides, it's so much more convenient to just go on line to get the support you need.
I would think having a support group would be easier in NYC. Lots of people there, and excellent transportation: no beltway to deal with, just hop on the subway.
Have you had Cathy do a mailing? I'd be happy to send you a copy of our letter and you can adapt it.
Keep us posted!
Davi
If you want, you can email me the letter. ANd thanks. Do you guys have my email address?
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