Conference? New to all this. - please help

• By oleyfriends
• Posted September 23, 2008 at 9:33 am

The 24th Annual Oley Consumer/Clinician Conference will be held June 29-July 2, 2009 at the Trade Winds Island Resorts (www.justletgo.com), St. Petersburg, Florida. Details to follow at http://www.oley.org/2009_Annual_Conference.html

• Reply
• Report post

• By LQ
• Posted September 23, 2008 at 3:03 pm

Thank you for the info
LaQuita

• Reply
• Report post

• By JenD
• Posted September 24, 2008 at 10:34 pm

The Oley conference was the best opportunity I have had since starting on tube feeding and TPN. This is where I found out about Nutrithrive and met so many other people dealing with the same issues that I am. If you can go next year I'm sure you would get a lot out of it. It was an invaluable experience.

-Jen

• Reply
• Report post

• By Sanford
• Posted September 26, 2008 at 12:23 am

I went to my first conference 3 weeks after I got my first tube in June of 2005. I've now been to Saratoga (05), Salt Lake City (06), Cape Cod (07), and San Diego (08). They have all been wonderful, and Oley helped save my life. I have met some of the most wonderful people, of every age, from newborns to octegenarians, with tubes of all sorts. You will never regret attending a conference.

Tips:

1. As I learned this year when they were the free gift, rolling backpacks are FABULOUS! The bag and pump stay in backpack with the tube snaking out the top. My shoulder doesn't get sore from carrying it over my shoulder, and I carry all sorts of stuff in the backpack, right on top of the pump.

2. Always make sure that you have an extra j-tube on hand. Kimberly-Clark recommends that their tubes be replaced every 4 months, so as soon as I have the new one put in, I call my supplier and order the next one. Not every hospital has the brand I use, so I bring my own. (I've seen jaws drop when I come in for the swap and hand them my own tube).

3. Always carry bandages, scissors, and tape with you. My stomas leak (I have separate j and g tubes), and the acid burns, so I always have supplies with me (well, not always. I have been known to make emergency stops at Duane Reade).

4. Keep awareness up of where excess tubing from the bagset is. I have caught it on doorknobs, chair arms, chair legs (especially rolling office chairs), and other people.

5. It takes time, but after a while, you realize that anything you can do without the tube, you can do with the tube. Just more carefully.

Hope this helps.

• Reply
• Report post

• By dreamlady1931
• Posted September 26, 2008 at 11:06 pm

Missing the conference is too bad. But, when i was dealing with Option Care for my at home supplies, they set up at least 2 group meetings for their clients where we got to meet and greet--network, talk to Oley Foundation reps, talking to a couple suppliers.

So, maybe you can talk to your home medical supply, nutrition supply company. Tell them Option Care did it! LOL

Good luck!
Mary

• Reply
• Report post

Add to the discussion