Hello, My Son In Law is in the hospital again. This time they had to take out his colon and he has an illestomy and two years ago had to have a small bowel resection because of the Crohns and they found cancer. This past January he had more small bowel removed and they said he had stage 4 small bowel cancer. This time, he had surgery last week because he had air in his abdomen and they said they had to take the colon out. He now has the allowed small bowel left in order to live and he has not even healed yet and again has an obstuction in the small bowel, that the doctor's are saying is from active Crohns still in his small bowel. My poor, poor son in law can't get a break. What now? What if he needs more small bowel taken out? How can he live with no Colon and not enough small intestine to absorb nutrients? So much, too much. He just turned 30 2 weeks ago. When the surgeons opened him up last week and came back to us he said he didn't see anymore cancer, but now he has active Crohns again. We all can't believe it.
Does anyone out there have small bowel syndrome without a Colon? Can you live? He can't even heal from his surgery last week. We are all going out of our minds. Sorry if this email is jumbled up but I can't type as fast as my mind wants me to and I may not be clear on everything.
-2 Years ago he had about 3 feet of small bowel removed, they found small bowel cancer.
-Went on Chemo for 6 months, was fine until this last January (2013)
-January, 2013 went into surgery for an obstruction and they found cancer, stage 4, been on chemo since end of January
-May of 2013 (present) he had to have his colon removed because they found air in his abdomen all throughout his large intestine.
-They took out the large intestine, has stoma and they took out one other bad part of small intestine because of active Crohns. Doctors said he has just enough small bowel to live.
-Now, present he has an obstruction and is recouperating from his surgery from taking out his Colon. They are going to try to go
through the stoma tomorrow to see if they can find the obstruction.
Thanks and God Bless