Bad Days

• By Woeful
• Posted August 23, 2009 at 1:55 pm
• Report post

There seems to be a lot of that going around :( Last week I started seriously contemplating just stopping my TPN altogether, and let nature take its course. I just can't seem to deal with all this and I'm well and truly tired of the pain and lying on the sofa watching the seasons and the world pass me by. I just want it all to be over. I am fortunate in that I have good doctors whom I really like and trust, though. Have you considered getting a new GI doc? Or scheduling a consultation (rather than appointment) with him and point blank letting him know how you feel, and ask him directly if he doesn't wish to be your doctor any more? All doctors definitely aren't created equal, so maybe you need to find one who is more compassionate, invested, and caring. *hugs*

• Reply

• By charliegirl3
• Posted August 24, 2009 at 5:32 pm
• Report post

Woeful,
Thanks, I will do that. I have a appointment on August 31. Hopefully it will come out on the positive side. I am going to ask him if he still wants to be my doc, Also, I took myself off domperdone. Was the nasty medicine I ever was on. Hop all is alittle better for you. please keep in touch.

• Reply

• By Woeful
• Posted August 27, 2009 at 11:41 am
• Report post

Are you still off the domperdone? How are you feeling? As for bad days, do you ever wonder why bad days seem to "blur together" yet good days always stand out? Whether or not you're sick? I wonder why that is...

• Reply

• By charliegirl3
• Posted August 27, 2009 at 8:31 pm
• Report post

Woeful,
I quit the domperidone. Could not handle the side effects. Yes I know the bad days blur together but when you are feeling good you get out and do things you love. I have my good days and bad. going to the doctor on Monday to see what else he has to help me. I am losing weight again and going in the wrong direction but I won't ever let them put a tube in me again. How are you doing. I hope you are having more good days than bad. Take care.

• Reply

• By Rodeogrl02
• Posted August 29, 2009 at 6:15 pm
• Report post

my gi dr has been great since first diagnosed with gastroparesis when i was 18, we've tried every medication out there in the US and botox injections in my stomach every few months, he said he would prescribe domperidone but wasn't sure where i could get a hold of it. So i was losing a battle with my weight and energy and malnurished so he admitted me to the hospital and put in a j-tube now i've went from 94 lbs to 106 lbs in 2 months.

• Reply

• By charliegirl3
• Posted August 29, 2009 at 10:39 pm
• Report post

there is a pharmacy in Mi that will ship it to you if you want I can give you the name and number. I had alot of bad side effects with that one including hot flashes and I was lactating enough to feed a army of babies and I have not had one of those for 17 years. it is embarrassing to look down and see your shirt all wet.

• Reply

Add to the discussion