Hi there...I'm new here. My 13 month old son has a GJ button, and has thrown up constantly since about 2 months old. We always thought it was just severe reflux, until we had a motility study done on him, giving us this diagnosis. Our docs/hospital is great (Childrens Hosp of Wisc) but of course, no cure.
We've started a natural supplement regime, prescribed to us thru a pediatrician who specializes in only holistic medicine. Our GI specialist has given us his blessing to go this route...may as well try and see. Has anyone else tried this route???
My baby has nasty violent vomiting episodes and eats NOTHING by mouth...only the J-port on his button while I vent out his G-port into a diaper. He's so far behind developmentally compared to his twin brother...I hate watching him in pain every single day.
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Baby has Pseudo Obstruction
- By Sweater20
- Posted September 2, 2009 at 5:26 pm · 2 replies
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- By mselvig
- Posted September 3, 2009 at 9:15 am
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Hi there,
I too live in Wisc and my daughter spent the first four months of her life at Childrens in Minneapolis. She had a GJ when we brought her home and I had to vent her G all the time. She has horrible reflux and I consulted a nutritionist. Have you thought about that? It's helped us alot. Our nutritionist had us put our daughter on a Soy formula and other fiber supplements which helped her tremendously. She's now 18 mon. old and has only a Gtube. We don't give her formula anymore and have started to give her pureed foods through her tube. She's a much happier baby.
Anyway, just wanted to tell you I've been there, know what you're going through. My daughter eats nothing by mouth still, we do alot of speech therapy.
I would say consult a nutritionist and if you don't have one I can give you the name of a really good on who does consultations over the phone. (I live in Eau Claire, WI)
I will keep you in my thoughts and prayers, it's horrible seeing your baby suffer...I know.
Deb
- By Sweater20
- Posted September 3, 2009 at 9:52 am
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HI Deb,
Thanks for the reply. My son has been closely monitored by a dietitian since birth (he was born just over 2lbs). He has been on Neocate with added Pedialyte (for the loss fluids during venting). My son has more than reflux - he has a motility disease. So no matter what food passes thru him, his nerves don't work properly, causing him pain and vomiting. We feed him thru the J-port since he vomits so much, he can keep his food and grow this way.
Thank you for your thoughts and prayers, and I hope your daughter can get past this nasty reflux and some day eat by mouth and be rid of her tube.
Thank you, Annie
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