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New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · Posted 7:22 pm
- Journal · 0 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
Dealing with a hugely unsupportive caregiver
- By jackrabbit · New reply 5:22 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 6 replies
- I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...
Today is a Good Day
- By cheneyfox · Posted 5:17 pm
- Journal · 0 replies
- After my recent life or death battle with my on going intestinal problems I am finally doing much better. I pray it continues. But I have learned much in the last 3 years. Mostly that being a patient ...
When is too much too much
- By aloha64 · New reply 4:41 pm
- Journal · 7 replies
- I just got the news that I may be having surgery for an infection surrounding my knee replacement. I had a revision last Jan '09. The infection is probably from the many PICC lines I have had. Infections ...
Leakage on PEG
- By bbidals · Posted 3:32 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
- Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...
Triumphing inspite of Tube Feeding (Athletics, College, Traveling and More!
- By mldelucchi · New reply 2:43 pm
- Discussion in Out and about · 13 replies
- To those interested from reading the topic title; I've started this forum in hopes of galvanizing some good advice from all those who were born with, and those who later in life took on, a dependency ...
Mic-KEY button "sucked in"
- By PeytonsParents · New reply 1:05 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...
Michael Moore's warning for Canada - he's CLUELESS
- By jackrabbit · New reply 12:41 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- I know it's not new to rant about Michael Moore, but his inane statement about Canada's healthcare system make me really mad. From Yahoo news: Documentary filmmaker Michael Moore says Canadians have to ...
PEG Tube placement recovery ?
- By Rodeogrl02 · New reply 10:22 am
- Journal · 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
Adapter
- By dees · New reply yesterday at 9:57 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 reply
- Any ideas on a new adapter for my 20 french tube? Only 10 wks & I've had to change out my adapter. The Boston Scientific 20fr Y port adapter is designed for those who use a pump, but I use cans and the ...
The biggest GTube in Food Inc the film
- By DungBeetle · New reply November 18, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
- I know I said I wanted a pill port and didn't care how big the stoma needed to be~~well, I changed my mind after seeing the biggest dang stoma and "button" on a COW in the film Food Inc. They are using ...
Line sepsis experiences
- By regbrigidmom · New reply November 17, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 3 replies
- Brigid is 4, and has had a central line of one sort or another (first a port, then a broviac because the port reservoir turned to cement from her TPN) for 2 years. I'll leave out the lead-up story (it's ...
Food-deprivation driving me mad - help!
- By jackrabbit · New reply November 16, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 9 replies
- The damaged nerves in my face affect my tongue, teeth, and the roof of my mouth. Any flavor, texture, or temperature difference causes murderous pain which lasts for days, hence the reason for my g-tube ...
ANYONE HAVE A MIC-EY J-TUBE?????
- By Rodeogrl02 · New reply November 16, 2009
- Journal · 15 replies
- I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...
Vivonex RTF Formula & Rate
- By ranee · New reply November 16, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
- I have been switched off of Peptimen which I could feed at a rate of up to 120mL / hr to Vivonex which they said I could not feed faster than 40mL / hr. This requires that I feed 24hours a day and is ...
Diagnosed with Gastroparesis - Any Advice Appreciated!
- By Ando · New reply November 16, 2009
- Journal · 1 reply
- I was diagnosed with gastroparesis, and before diagnosis I gained 50 pounds. Over 1/3 of my body weight. I cannot eat very much, but try and eat 1,000 calories/day, but it is painful. The doctors I have ...
Asking g-tube athletes - questions about formula's fat level
- By jackrabbit · New reply November 15, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
- Before my injury I had a muscular, rock hard physique. Post-injury I lost 25 lbs of muscle, and my leanmass-fat ratio changed drastically. After having the PEG tube inserted I've gained back 11 lbs, but ...
Husabnd Has Esphageal Cancer
- By Tigerette · New reply November 15, 2009
- Journal · 68 replies
- My husband was dignosis with esphageal cancer in Oct 9, 2008, he's been on chemo, then on March 16, 2009 went in for major surgery, to remove all his lymp nodes, and mostly all his stomach, now he has ...
J tube replacement w/o anestesia
- By ranee · New reply November 15, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- I recently had my J tube replaced for the 2nd time- only was shocked when the dr at a well known clinic did it with no warning and no anestesia or pain meds. Let's just say it was a bloody and painful ...
Modular feeds
- By HelenB8 · New reply November 15, 2009
- Journal · 3 replies
- Ben is going into Great Ormond Street hospital for a trial of modular feeds. He is doing better being fed into the jejunum but has not gained any weight for nearly 2 years! Our dr thinks he cannot tolerate ...
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The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Oley Foundation Support Community is sponsored by the Oley Foundation in partnership with Inspire.