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J tube feeds
- By josada · New reply 4:16 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 4 replies
- I appreciate all of the information shared regarding J tube feeds with a pump. Does anyone bolus small amounts into a J tube ...
fatigue
- By janasowk · New reply 4:11 pm
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 20 replies
- Is chronic fatigue pretty much the norm for most people on here? I have pseudo-obstruction and I am a full time college student and have a busy active life, but I could seriously sleep all day if i could ...
Let's get together
- By Sanford · New reply 3:55 pm
- Discussion in Out and about · 6 replies
- I think it's about time to start a local support group. Nothing too formal, but I was thinking we could either rotate informally between homes, or go out for coffee. I'm in NYC (Da Bronx). Anyone interested ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · New reply 3:01 pm
- Journal · 2 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Weaning From TPN..
- By cheneyfox · New reply yesterday at 10:03 pm
- Journal · 5 replies
- Well I am excited because for the next 2 days I have to measure everything that goes in and out of my body. Oh Boy... Gotta love measuring poo.. I know, we have all had to do it, but still.. It ain't ...
Does anyone have suggestions for Bile Reflux? Has anyone been to Mayo?
- By JeniMac · New reply November 5, 2009
- Journal · 29 replies
- Recently my bile reflux has gotten so bad that sometimes when I bend over, bile comes into my mouth & sometimes my nose. I finally bought bed raisers to help at nighttime, but this is ridiculous. Does ...
Finding qualified home health care providers
- By Matt_M · New reply November 5, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 4 replies
- Hello all. I'm new to the group and the whole topic. My elderly mother has recently been placed on TPN as a part of her Crohn's treatment. She is still in the hospital, but hopes to be discharged soon ...
Need Advice about AMT feeding extensions
- By peg07 · New reply November 5, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 10 replies
- To those of you who have AMT balloon buttons. How long do you use your feeding extension tubes? The AMT website says they should be changed every two to three weeks. Is that your experience? I went longer ...
Going To Wean Off Of TPN
- By cheneyfox · New reply November 5, 2009
- Journal · 5 replies
- Leaving soon to go to Omaha for 2 weeks to wean off TPN onto their IRP diet. I hope it works. It will be great to NOT have to carry my bag around with me. I am hopeful... I long for a break from my recent ...
Calorie questions...
- By jackrabbit · New reply November 5, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
- I've talked b4 about wanting to switch to a homemade blender diet, but I can't afford it right now. I cannot afford any food whatsoever, so am unsure what to do about my constant hunger. Perhaps the hunger ...
Mad and thankful at the same time
- By sacarver · New reply November 5, 2009
- Journal · 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
getting a Hickman's: deep breath
- By Woeful · New reply November 4, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Nothing like short notice. I get a call today that my outpatient surgery is scheduled for this Friday. They are going to try and drain this ovarian mass (the thinking being it's not cancer but fluid build-up ...
Inspire members featured
- By Brian · New reply November 4, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
I need a Gtube with a pill port
- By DungBeetle · New reply November 4, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 15 replies
- I am being told of new meds on the market that could really help my guy who is 100% Gtube (no swallow/gap reflex) to help manage his crohn's dx~~~alas, the meds are pill and must keep whole to work in ...
A Joyful Place
- By grannylu · Posted November 4, 2009
- Journal · 0 replies
- Just wanted to say thank you to part of my daily "inspiration." On FB, I receive occasional inspirational messages, and today's was ". . . that to burn out the pain, just find a place filled with joy ...
lipids?
- By momto2girls · New reply November 4, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Hi, I've been reading some discussions here since my daughter started on TPN a little over a week ago. I have a question about lipids..I've read that some have 2 bags to hang or a double chambered bag ...
RECURRENT LINE INFECTIONS
- By Daughterhelpingmom · New reply November 4, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 42 replies
- My mom has been on HPN for approximately 3 months. She's had two picc lines and a Hickman catheter. The Hickman has only been in 13 days and already she's back in the hospital with another infection ...
Food-deprivation driving me mad - help!
- By jackrabbit · New reply November 3, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 4 replies
- The damaged nerves in my face affect my tongue, teeth, and the roof of my mouth. Any flavor, texture, or temperature difference causes murderous pain which lasts for days, hence the reason for my g-tube ...
TPN and Clotting Factors
- By cheneyfox · New reply November 2, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 reply
- Flew about 600 miles yesterday for my follow up appointment. I was told today that the blood work they did yesterday came back with a PTT abnormality. How does TPN affect clotting factor? My bp was elevated ...
has anyone had surgery after going on TPN?
- By Woeful · New reply November 2, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 6 replies
- I guess I'm addressing this question to anyone who has lost most of their intestines (in particular, all of their ileum), or to those like me who don't have a colostomy because you no longer have bowel ...
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The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Oley Foundation Support Community is sponsored by the Oley Foundation in partnership with Inspire.