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Jaundice

BagGuy
  • By BagGuy · Posted 4:41 pm
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 0 replies
  • I have been on TPN for going on 4 yrs. I had surgery and lost my entire small intestine. I have been doing great with the situation. A couple months ago I developed jaundice. The Dr has been working with ...

Meeting someone like me!

lilpeeps
  • By lilpeeps · New reply 4:03 pm
  • Journal · 3 replies
  • A new post for my blog.. http://thrivingsbs.blogspot.com/2014/04/ meeting-someone-like-me.html Have a good day! Michelle ...

Cerebral Palsy and Dysmotility/Dysphagia/Jackhammer Esophagus

Ling44
  • By Ling44 · New reply 2:32 pm
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
  • Hi all, I am currently living in Denmark and was supposed to receive a FEES test (live video of eating) yesterday. I arrived at my appointment early, and 45 minutes into when I was supposed to be seen ...

mourning

alovelyfall
  • By alovelyfall · New reply 9:39 am
  • Discussion in Poetry, prose, etc. · 7 replies
  • I feel as though I lost a friend, a soul mate, a lover... One that was not separate from, but shared the same heart beat, the same thoughts, and the same life. How does one describe such profound loss ...

Traveling

lsellbee
  • By lsellbee · New reply yesterday at 11:38 pm
  • Discussion in Out and about · 2 replies
  • I am going to Maine this weekend for a wedding. This is the first time I am traveling with a G-tube. I am on 24/7 feeds, I HAVE READ all of the recommendations in the travel section, plus done a Google ...

expired formula

donnanae
  • By donnanae · New reply yesterday at 7:01 pm
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • I have a silly question. I have a couple of cases of formula that will expire soon (may)..Is it ok to use when it is only a little expired?? My insurance does not cover it, and I certainly can't afford ...

Visit to hematologist & pulmonologist

candacepoet
  • By candacepoet · New reply yesterday at 5:24 pm
  • Journal · 19 replies
  • Well, I went for my six month checkup at the hematologist today, and it looks like I have iron deficiency anemia again, so I will be going into the City for two ferritin infusions. No big deal, and could ...

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply yesterday at 3:25 pm
  • Journal · 67 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Reversal Surgery..

drayco_
  • By drayco_ · New reply yesterday at 3:11 pm
  • Journal · 34 replies
  • Hey everyone. Hope everyone is doing well. Missed talking to a lot of you.. So I had my ileostomy reversal surgery on Feb 24th. I just got back from the hospital last night. It was pretty rough. Luckily ...

Am I on the Transplant list?

Kbrose
  • By Kbrose · New reply yesterday at 2:18 am
  • Discussion in 15 to 30 · 8 replies
  • Already, so no lie five days after my evaluation, I get a call from my coordinator and she asks me to come down as soon as I get the chance. At this point I'm like omgoodness! We get to talk about the ...

Glucose levels and canned nutrition

SenorRick

10 years after my smallbbowel resection

goldenfingers
  • By goldenfingers · New reply April 14, 2014
  • Discussion in Poetry, prose, etc. · 3 replies
  • any help would be appreciated I am so miserable and I have had no direction. I haven't seen a GI doctor since my surgery in 2004. I don't know if anything is new and has changed but the constant burning ...

Broken jaw & unable to open mouth the eat

Judi-1
  • By Judi-1 · New reply April 13, 2014
  • Discussion in Family and friends · 12 replies
  • I have a very dear friend whose face/jaw was brutally assaulted resulting in a condition that doesn't enable him to open his mouth or move his lips. His lower jaw was split in half and he has a plate ...

Calories

Belmay
  • By Belmay · New reply April 13, 2014
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
  • I've been on feeding tube since August 2013. Breast cancer in my stomach made it impossible for food to get out of my stomach, so J tube solves the problem. I also have a G tube to drain stomach. About ...

Calories

Belmay
  • By Belmay · Posted April 12, 2014
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • I've been on feeding tube since August 2013. Breast cancer in my stomach made it impossible for food to get out of my stomach, so J tube solves the problem. I also have a G tube to drain stomach. About ...

Exhaustion and Pain

Boothwink
  • By Boothwink · New reply April 12, 2014
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 6 replies
  • Hi everyone in the uk,US and around the world. I'm really suffering with extreme exhaustion and pain,I'm about 7 weeks into my first TPN script,my bloodwork is ok a bit in and out but ok,just wondering ...

ER Doc blames my PTSD for my pain

Kez182
  • By Kez182 · New reply April 12, 2014
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • I have not been able to feed using my J-tube without extreme pain for 3 months now. I get 30-40 minutes in and my stomach starts filling with acid or bile. Then my instines start spasming it almost feels ...

Sleeping - a poem

candacepoet
  • By candacepoet · New reply April 11, 2014
  • Journal · 17 replies
  • Good morning, everyone. While you were sleeping, I wrote this poem in the pre-dawn hours while Loofa slept in the bed next to me. He was a good boy, staying asleep while I changed my stoma gear, and is ...

Feeling off, tube not in the right place yet again

Staylor2021
  • By Staylor2021 · New reply April 11, 2014
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
  • So I haven't posted much on this site because I am on a bunch of sites and we'll I feel like I have been able to get the support I wanted/needed from others sites. Sadly that isn't happening anymore so ...

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About this community

The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Oley Foundation, an Inspire trusted partner.