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Why are we here?

Brian
  • By Brian · New reply 3:24 pm
  • Journal · 112 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

HELP PLEASE

DEE26
  • By DEE26 · New reply 11:33 am
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • I HAVE A FATHER-IN-LAW WHO IS CONSIDERING A FEEDING TUBE. HE HAD CANCER ABOUT 30 YRS AGO AND AS A RESULT OF RADIATION HE CAN NO LONGER EAT WITHOUT ASPIRATING. WE HAVE SEARCHED FOR ALL KINDS OF OPTIONS ...

tooth decay

signal10
  • By signal10 · New reply 10:13 am
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • Hi, My daughter has a j-tube. She takes nothing by mouth, A recent check up at the dentist showed that every single tooth was decayed. The dentists said this was xerostomia which is caused by not eating ...

G-Tube Life?

Floyd
  • By Floyd · New reply 10:03 am
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • I am passing 2.5 years with my original g-tube and wonder how long they last on the average. At the Oley conference I heard from some manufacturers that they should last at least one year. My doctor has ...

J- tube confusion

SeussRN1
  • By SeussRN1 · New reply 9:16 am
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
  • I have idopathic gastroparesis and currently am TPN dependent. I was recently removed off my TPN for a 2 week trial and lost 14lbs and ended up in the hospital. I have in the past had a G-J tube and anything ...

WHO DO YOU USE FOR YOUR SUPPLIES?

LQ
  • By LQ · New reply October 7, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
  • HELLO, WE ARE CURRENTLY WITH AN AGENCY THAT I AM VERY UNHAPPY WITH. I CONTACTED NUTRITHRIVE AND THEY DO NOT WORJ WITH OUT INS COMPANY UNITED HEALTH CARE PPO OR TEXAS MEDICAID. SO THEY ARE OUT. I CAN NOT ...

CRAMPING WHILE ON HEN VIA J-TUBE?

LQ
  • By LQ · New reply October 6, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • MY DAUGHTER RECENTLY GOT A J-TUBE FOR FEEDINGS, WE LEFT THE HOSPITAL RUNNING 50ml per hour and he wanted her running fast enough to get all 1000 ml done in 10 hours. However when ever we increase it even ...

Which company? Which pump? Any teenagers out there?

LQ
  • By LQ · New reply October 6, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • Hello everyone, We are searching out which Home health company to use when my dd goes home. We have a few questions for you all please, (1) What kind of pump do you prefer? It looks like she will be on ...

Having that support

tierney
  • By tierney · New reply October 6, 2008
  • Journal · 6 replies
  • Everybody, who has health issues, always has that one support. Every time that I am sad, angry, or something, I never have no idea who to talk to. I just feel like screaming. This prison that I am in ...

Still sick

shan789
  • By shan789 · New reply October 5, 2008
  • Journal · 12 replies
  • It's been 3 weeks and Jake doesn't seem to getting better. He has been vomiting off and on since his Mickey button, for his cecostomy, was placed. We have been to the Dr. office and ER a lot in the past ...

how is your BM's on TPN

stekcsf
  • By stekcsf · New reply October 2, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 5 replies
  • do you poop when you are on tpn only? My daughter does nothing by mouth- only tpnright now. Also can anyone help me understand when we use TPN I thought it went all through the veins....but does it go ...

Oy, the tsuris!

Sanford
  • By Sanford · New reply October 2, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 8 replies
  • Well. I just spent 3 days in Roosevelt Hospital here in Manhattan. I have a long standing problem with anemia, and on Monday, it came to a head again. I walked two blocks from the subway to work, and ...

Today is a good day

starlitesonata
  • By starlitesonata · New reply October 2, 2008
  • Journal · 4 replies
  • I am having a good day today. Nobody to agrevate me. I even can for the winter all week. Our friend Bob came over and we made salsa.. I wish with each passing day I can have surgery. I feel as though ...

PEPTINEX DT DISCONTINUED HOW IS IT AFFECTING YOU?

ShannonCanada
  • By ShannonCanada · New reply October 1, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • IS THIS AFFECTING YOU OR YOUR CHILD? Hello, my name is Shannon I am 29yrs old and have been living with an unknown motility disorder, for 15 yrs now. I have a GJ tube, that feeds me into the intestines ...

I'm trying to be happy for him

Jameson
  • By Jameson · New reply September 30, 2008
  • Journal · 4 replies
  • My younger brother just got engaged to the girl of his dreams. Believe me, I'm as happy for him as a brother can be. But at the same time, I'm upset. I think the reason I'm a little upset is because I ...

Conference? New to all this. - please help

LQ
  • By LQ · New reply September 26, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
  • Hello everyone, My 19 yo dd just got her j-tube last Friday after being on TPN for 7 weeks with 2 medic ports and wound up with a septic - blood infection and in ICU for 4 days. We have now been in the ...

Roux-en-Y jejunostomy button

Ems-mom
  • By Ems-mom · Posted September 22, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • Emily has had a G-J tube for 4 years. She had a mickey button for 6 years prior to that. I liked the Mickey button because I could change it myself. We had to go with the G-J tube because she needed to ...

Just clearing my mind

tierney
  • By tierney · New reply September 22, 2008
  • Journal · 1 reply
  • Everything is just so crazy these days. I have to worry about school and my health. It's so hard because I stress out. I haven't been in the hospital for about a month now. That is always a good thing ...

g-j tube busting

Ems-mom
  • By Ems-mom · New reply September 22, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 1 reply
  • My child has had a g-j tube for 10 years, and we have never had any trouble. We had it changed out right before school started. The balloon busted after 4 days. We went back,replaced with another one ...

switch from Mickey button to Foley style

josada
  • By josada · New reply September 21, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • I am an adult. I just had to switch from a Mickey button to a Foley style G tube. Any suggestions on how to keep the new style secured and tight against my stomach besides tape? I work with babies and ...

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The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Oley Foundation Support Community is sponsored by the Oley Foundation in partnership with Inspire.