Oley Foundation Support Community

The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

The other poet in the familiy . . .

By daviandsteve · New reply 12:33 am
Journal · 3 replies
I am the only one in the family who does not write poetry (I do enjoy writing short stories and memoir-type stuff). My husband Steve occasionally write humorous poems; his most infamous one began "My ...

Any Trach Patients or Caregivers?

By Duvie · Posted yesterday at 11:58 pm
Journal · 0 replies
Duvie has a feeding tube and a trach, since Oct 8, 2009. Seems I'm always giving advice on feeding tube problems, but never talk about trach issues. Duvie doesn't care for most respirtory nurses to suction ...

Protein....

By evictionofpancreas · New reply yesterday at 11:33 pm
Journal · 18 replies
Need to find some different proteins I can eat and was wondering if anyone had suggestions. I have a protein powder which I love I am just tired of the monotony. It can not be anything animal, although ...

Keeping Hydrated During Hot Summers

By Duvie · New reply yesterday at 11:15 pm
Journal · 7 replies
We all have to realize that it is more difficult for many patients to stay hydrated during warmer or hotter days. Many patients have a caregiver to help. Caregivers, such as Jo & I, need to be aware of ...

Stoma pain

By Peggie1 · New reply yesterday at 9:26 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
I was having a blackish secretion from my stoma which was very painful when it occurred. I also was having heart burn at night. I started taking Prevacid sprinkles (they will dissolve) or Lansoprazole ...

Gastroparesis Blog

By 19Aquarius77 · New reply yesterday at 8:59 pm
Journal · 1 reply
Please check out my new blog. It's still in the works, but it will have recipes, links to medical info and much more. Currently my story is posted there, tips on nausea relief and important info on PPI ...

Question-baking soda & feeding tube

By Flipflop77 · New reply yesterday at 6:37 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 22 replies
I hope someone has experience or advice on this. I have a NJ tube and its been clogging a lot. I have been flushing it several times a day with warm water and coke like my dr told me to when they put ...

Tube change--Sedation necessary???

By gastromomma · New reply yesterday at 3:02 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
I am going in for a tube change as I have once again destroyed another tube and they are giving me the option for sedation or no sedation. Have any of you had a tube change in IR done it without sedation ...

Meds in the jejudunm

By Lobug · New reply yesterday at 1:06 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
Hi I,m looking for advise on giving my 3 year old his medication in the jejudunm, he is prone to vomiting if I give it to him in the gastro tube and I,m afraid of him losing the meds. He is on oxybytynin ...

Travel Formula

By Miamijayhawk · Posted yesterday at 9:22 am
Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
I am planning a 15-day trip to Eastern Europe in the Fall. I use Nutren 2.0 formula to supplement my Vitamix-ed "concoctions that I have for breakfast and dinner. I travel with a "Bullet" for pureeing ...

Five million

By Brian · New reply June 17, 2013
Journal · 243 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

The value of the patient

By qpr · New reply June 17, 2013
Journal · 1 reply
Aside from the ups and downs of being a bowel transplant patient these last two weeks have been a welcome change from focusing on my own health challenges. Whilst phosphate levels continue to yoyo and ...

Update: PT/post Botox/Weaning off TPN

By candacepoet · New reply June 17, 2013
Journal · 11 replies
Hi, all, and Happy Father's Day to you fathers out there. I hope all have a good weekend. Here's my weekly update. PT is going well. I'm now walking the mile to PT, so no more treadmill. I can do it in ...

I'm so Happy and I'm Learning my Appliance Too

By Jer_ · New reply June 17, 2013
Journal · 33 replies
I'm so happy. I made several goals before I even had surgery with how I wanted to recover. The first three weeks after surgery were to strictly rest and relax. I did wash clothes, sweep floors, and walk ...

Chemo is over - by default

By daviandsteve · New reply June 16, 2013
Journal · 5 replies
Well, as of two weeks ago, I am finally done with chemo. I was supposed to have one more round of Carboplatin/Taxol, but my blood counts, especially the platelets, remain well under normal. My oncologist ...

J-tube popping open!

By Lobug · New reply June 15, 2013
Discussion in Home tube feeding (HEN, enteral nutrition) · 6 replies
Hi, I,m looking for advise, my little man has a Jedg tube, mic- key button, we,re getting on ok with it, after a few mishaps! But it has started popping open, well the adapter set attached to it pops ...

Really stupid question

By gastromomma · New reply June 15, 2013
Discussion in Home tube feeding (HEN, enteral nutrition) · 10 replies
This is probably really stupid but I have to ask. I have a J Tube and have only very rarely take solid food in by mouth. However, the last 2 times that I have taken more than a few bites I have had problems ...

Nepro and Vital Free to a good home!

By Laurieb926 · Posted June 15, 2013
Journal · 0 replies
I have: 90 cans of Nepro exp 8/13 70+ cans of Vital 1.2&1.5 These are free to a good home...I live in northern NJ and would need someone to either pick them up OR give me a UPS/FEDEX acct # for shipping ...

My Muse Speaks Again -- a poem

By candacepoet · New reply June 14, 2013
Journal · 7 replies
My poetry seemed to dry up on me for a while there. No matter how hard I tried, nothing seemed right, good enough for anyone else to read. But my Muse seems to have returned, and it feels good to share ...

Want info about Central Lines

By zawesome · New reply June 13, 2013
Discussion in Home IV feeding (HPN, parenteral nutrition) · 13 replies
I got a PICC on 22 Mar 13 for TPN. I live on a farm and move 50 pound bags. I move hay bails which weigh 100+ pounds (for my horses). I ride horses and take people out for trail rides. If they are beginners ...

Log in to see more

Things you can do

Support the Oley Foundation

Discussion topics

Helpful links from the Oley Foundation

Community leaders

Inspire others

Together we're better - Oley Foundation Support Community

Support your group with badges for your e-mail, website, blog, and more ...

About this community

The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Oley Foundation, an Inspire trusted partner.