The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
digestible tube feeding
- By kydi · New reply 7:44 am
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- My husband is new to a PEG tube feeding and is having lots of trouble tolerating any bolus feedings or even bolus water. The food seems to make him feel nauseated if he takes more than a small amount ...
Help for my sister
- By Peep · New reply yesterday at 4:44 pm
- Discussion in Family and friends · 3 replies
- My kid sister (OK, she's 42) has battled Crohn's disease for her entire adult life. About 18 years ago, her large bowel and some of the small bowel was removed. She soldiered on with a blockage every ...
Getting together in San Francisco Area
- By ranee · New reply yesterday at 4:32 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 11 replies
- Hello. I was wondering if anyone is interested in getting together in the San Francisco area for an impromptu support group ...
showering with a Hickman
- By serrittia · New reply yesterday at 1:57 pm
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 12 replies
- Curious what others do about showering with a Hickman. When I was working, our Oncologists told patients they could swin, shower as long as the insertion site was kept dry with Tegaderm. I cover the caps ...
Busy times... As usual.
- By Adventure_Girl · New reply yesterday at 1:31 pm
- Journal · 15 replies
- UPDATES IN THE REPLIES :-) This morning my diatician came over to drop of a box of new formula (Peptamin 1.5) because my other formula (Isosource 1.5) is causing problems. I am having extremely slow gastric ...
http://www.chp.edu/CHP/Microvillus
- By bbidals · New reply yesterday at 8:27 am
- Discussion in Parents' corner · 4 replies
- My grandson was born on Dec 2, 2010. He was in critical condition and air flighted to Mass General, back to NICU in Springfield and then back to Boston's Children's Hospital. They just found out this ...
Where to get a mickey
- By longislandtuber · New reply yesterday at 5:08 am
- Journal · 3 replies
- Does anyone have any experience with obtaining mickey tubes? I have purchased some tubes out of pocket, yet I'm told my insurance company covers supplies. What should my course of action be in getting ...
peg tube formulas
- By kydi · New reply February 7, 2010
- Discussion in Home tube feeding (HEN, enteral nutrition) · 6 replies
- Does anyone know of a digestible tube feeding that would contain glutamine, arginine and omega 3 fatty acids. I found Impact Glutamine, but it is very expensive. I am needing this to support my husband ...
Silver nitrate application - do it yourself?
- By Woeful · New reply February 7, 2010
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 26 replies
- I've a question for those of you who have used silver nitrate sticks to burn off granulation tissue build-up. Do you do it yourself? My last visit to my surgeon, I asked him if he could give me the sticks ...
trouble dealing with not eating orally a lot
- By prettykitty · New reply February 7, 2010
- Journal · 19 replies
- Well, 2 weeks ago, I went to my gastroenterologist and he said that since he took me off of the Reglan and I've started to vomit solid foods almost every night, he wants me to be on mostly enteral formula ...
Traveling to Hawaii
- By MariaJesus · New reply February 6, 2010
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 4 replies
- I live in Valencia, in Spain, but me and my husband plan to go on holidays to Hawaii. Anyone has information about Hospitals there ...
Why am I my own worst enemy????
- By Sunshinebaby7806 · New reply February 6, 2010
- Journal · 10 replies
- Ugh, I hate to admit but I am my own worst enemy! Throughout this pregnancy I have gone from not hungry at all, to starving! Somedays I can eat something no problem.. other days even Jello wants to reflux ...
Roux-en-Y jejunostomy button
- By Ems-mom · New reply February 4, 2010
- Discussion in Home tube feeding (HEN, enteral nutrition) · 8 replies
- Emily has had a G-J tube for 4 years. She had a mickey button for 6 years prior to that. I liked the Mickey button because I could change it myself. We had to go with the G-J tube because she needed to ...
CTD being diagnosed, Total hip repl. on the 9th, addisons , ne clues??
- By Rodeogrl02 · New reply February 4, 2010
- Journal · 2 replies
- My gastroparesis is finally tolerable, I have my J-tube for feedings (24 hrs per day) and for meds, and I have my Peg (g-tube) for venting all teh bile and stomach goo out that makes me nauseated. The ...
Relationship hardtimes with a chronic condition
- By Sunshinebaby7806 · New reply February 3, 2010
- Journal · 21 replies
- Since 2006 I have gotten progressivly worse with gastroparesis... I use to be fun, carefree, ready for anything... and since getting sick I am not that person. I try my hardest to be that person.. but ...
Getting a j-tube soon and wondering what to expect...
- By Em42 · New reply February 2, 2010
- Discussion in Home tube feeding (HEN, enteral nutrition) · 14 replies
- I just found this group and Oley a few weeks ago and I'm so thankful to be able to read posts from all of you guys about the struggles (and triumphs) we're all going through. I am 22 years old and I have ...
It's been a while
- By margamouse · New reply February 2, 2010
- Journal · 2 replies
- Hi everyone. Hope this finds you all having a good tummy day!! I haven't done an entry in quite a while. So here goes... Having good days and bad days, as do we all. The pain in the left side got me sent ...
Multiple port infections
- By DAVIDSTEVENS · New reply February 2, 2010
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 6 replies
- Hi Everyone, I am a 56 yr old with a life long history of crohn's Disease. I now have short gut syndrome due to the small amount of small bowel I have remaining. I have been on TPN for six years. No matter ...
j tube
- By smileyface102 · New reply February 2, 2010
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 reply
- I have a g tube because of sbs...what exactly is a j tube and how does it differ from a g tube ...
Barrier cream
- By Juhint · New reply February 1, 2010
- Discussion in Home tube feeding (HEN, enteral nutrition) · 25 replies
- I have been told to use some sort of barrier cream for my g-tube stoma, as the stomach acid really irritates my skin and contributes to getting excema. :-( I have tried the cavilon non-sting barrier film ...
- More »
- New
- Active
- Discussions
- Journals
Sign in to see more
Inspire others
Helpful links from the Oley Foundation
Group leaders
Discussion topics
You
About this group
The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Oley Foundation Support Community is sponsored by the Oley Foundation in partnership with Inspire.