Oley Foundation Support Community

The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

G-Tube Opening Stretched & Leaks

By bardan · New reply 2:14 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
My hubby's G-Tube opening stretched because the nurse(s) pushed the feeding bag tube into it too far too many times. When we take the bag connectionb out of the tube, the cap closes, but the tube leaks ...

Sometimes it's ok to just be a patient

By qpr · Posted 1:40 pm
Journal · 0 replies
The British Medical Journal just came out with a heading that should have all patient’s jumping for joy - Let the patient revolution begin. As one of those patients who talks tirelessly about how important ...

Visit to GI

By candacepoet · New reply 12:53 pm
Journal · 1 reply
I saw Dr. Chang this morning. He's happy that the Botox is allowing me to keep solids down, but, as I expected, doesn't feel that I've gained enough weight to start thinking about tapering down the TPN ...

G-Tube Leak

By Brentwoodwalla · New reply 12:30 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 12 replies
My 32YO daughter has a G-tube that is leaking very bad for last 3 years. For first 15 years it did not leak at all. We have switched from Mikey to Mini brand G-tube. The surgeon advised us to change to ...

Do you feel things moving?

By gastromomma · New reply 12:25 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
My last J tube balloon deflated after only 6 weeks and fell out and I had a new one placed about a week ago. I am a neurotic mess that it is going to happen again. This one has a much longer "tail" after ...

Severe Reflux

By baby321 · Posted 9:45 am
Journal · 0 replies
My granddaughter is 6 months old and was born with a very rare heart defect and has had 2 major surgeries. On top of that, she also has Severe Reflux and dairy allergy. She has never sucked a bottle and ...

Please help!

By nwhite2 · New reply 8:35 am
Discussion in Home tube feeding (HEN, enteral nutrition) · 6 replies
I have a 13mo old boy with sbs. He started eating last September, small amounts but its something! Then around february or so he stopped wanting to eat completely. I believe really bad acid reflux caused ...

Six weeks post Botox

By candacepoet · New reply 7:05 am
Journal · 11 replies
Good morning, all. I hope you all have a good weekend. I'm getting a little discouraged, as I dropped two of the four pounds I had gained, even after starting the marinol, which doesn't seem to impact ...

Vitamin shortage

By RCarol · New reply 4:18 am
Discussion in Home IV feeding (HPN, parenteral nutrition) · 8 replies
Those on tpn know that occasionally there are ingredient shortages like the lipids. Well, this week, the vitamins have gone on the endangered list! My tpn was delivered with three viles of vitamins to ...

J-TUBE FORMULA FOR DIABETIC

By groveavenue · New reply 2:43 am
Journal · 3 replies
This is for a neighbor of mine, Arnold. He is on a J-Tube and is a diabetic. He's is being told by his medical team that he cannot use a diabetic formula because it has too much fiber in it and will clog ...

A Birthday at Home!!

By candacepoet · New reply 1:04 am
Journal · 44 replies
Today is my 62nd birthday, and the first birthday in four years that I haven't been in the hospital! It feels great to be at home for my birthday (and the 7th anniversary of my ileostomy). It's been a ...

Who supplies your TPN? TPN or Death?

By skp817 · New reply yesterday at 11:16 pm
Discussion in Home IV feeding (HPN, parenteral nutrition) · 14 replies
New to site. My mother lives in FL (76) and had stage 3 Ovarian Cancer last April and this April she found out her small intestines is covered with tumors that have caused several intestinal blockages ...

Week 3 post-op gastrectomy

By Jeastlund · New reply yesterday at 10:55 pm
Journal · 8 replies
Hello everyone~ thought I'd post an update as to how its going. Finally, at week 3, I'm not in misery. I'm able to work all day and not need a long nap before bed. I'm able to tolerate some oral intake ...

Questions concerning G-tube

By Tauno · New reply yesterday at 10:50 pm
Discussion in Home tube feeding (HEN, enteral nutrition) · 8 replies
My wife has advanced Alzheimers. She is unable to communicate. She has a 20 french G-Tube . We use the bolus method of feeding. We feed her 4 times daily. 20 cc's of warm water to flush, 30 cc's of room ...

Gattex

By chuda · Posted yesterday at 10:34 am
Discussion in Home IV feeding (HPN, parenteral nutrition) · 0 replies
Ok, so the day is finally here! I start Gattex tomorrow and I am pretty nervous. Any tips ...

Who's gunna let me know

By cole0345 · New reply yesterday at 9:35 am
Discussion in Home IV feeding (HPN, parenteral nutrition) · 13 replies
I a getting my J- tube on Wednesday and then: who tells me if I use a pump, gravity, or bolus to feed? Who is going to tell me what formula to use and calculate it? All they told me was when to report ...

Please Help!!!!

By nwhite2 · New reply yesterday at 3:04 am
Discussion in Parents' corner · 1 reply
I have a 13mo old boy with sbs. He started eating last September, small amounts but its something! Then around february or so he stopped wanting to eat completely. I believe really bad acid reflux caused ...

Importance of keeping a Food Diary

By candacepoet · New reply May 19, 2013
Journal · 29 replies
Hi. This is mostly for the newbies, but it applies to all of us, those with digestive disorders and those with ostomies. That's why I'm posting it in all my groups. Keep a food diary, noting what you ...

Portable hen pump

By Mom2jandm · New reply May 18, 2013
Discussion in Home tube feeding (HEN, enteral nutrition) · 9 replies
My last question for tonight, I promise. So my dr had told me the hen pump would be portable. I have a 4 yo and 5yo and can not be attached to the IV pump all day to feed. My dme company says they do ...

Five weeks post Botox

By candacepoet · New reply May 18, 2013
Journal · 8 replies
Hi, all. I hope you all had a great weekend, especially the other mothers on the site. I was able to eat more than half of a Wendy's chicken flatbread sandwich (hold the lettuce and tomato), and keep ...

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The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Oley Foundation, an Inspire trusted partner.