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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New
Hope
- By TaniaJ · Posted October 21, 2009
- Journal · 7 replies
- My 17 year old daughter Aimee was denied entry to the Navy recently on medical terms because of her NF, though we do have the right to appeal. She had an Opthamologists appointment last week and everything ...
HELP WITH ISAAC'S SYNDROME
I THOUGHT I DID
Melkersson Rosenthal Syndrome
- By Grizz · Posted October 11, 2009
- Discussion in My diagnosis · 0 replies
- I am hoping I can come in contact with somebody that has been diagnosed or knows someone that has been diagnosed with Melkersson's. I have been to several specialists in Minnesota and I haven't come across ...
GSS Disorder
- By 4theloveofmary · Posted October 6, 2009
- Discussion in Family and friends · 1 reply
- I am new to the Inspire community with a search for those coping with GSS, a rare genetic disorder affecting 1 in 10,000,000. My wife passed a year ago and I am interested in members with families affected ...
NF and relationships
- By Plushie · Posted September 24, 2009
- Journal · 3 replies
- I was wondering how I can explain NF to my bf, he knows a little about it from me, research and a mutual friend but i dont think he fully understands it ...
Stiff Person Syndrome
- By Anisah-Flower · Posted September 7, 2009
- Journal · 7 replies
- I would like to know from all that have a diagnosis of Stiff Person Syndrome, how long have you been diagnosed? I would also like to know if it was your first diagnoses. Anisah Flower ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
neuromyotonia?
Heriditary Amyloidosis
- By kennethpletz · Posted July 11, 2009
- Discussion in My diagnosis · 3 replies
- Well, it finally showed. After countless tests always being negative, another nerve biopsy finally showed amaloids. Now, it appears the damage is already done and won't be able to be reversed? I meet ...
Water Electrolyte Balance/Hyponatremia
- By mandyblue · Posted July 8, 2009
- Journal · 1 reply
- Please check out the site listed below for information concerning water electrolyte balance. There is a video that I was not able to post in this journal. I am hoping that this site will be helpful to ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- Journal · 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- Journal · 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Electrolyte Abnormalities
- By mandyblue · Posted June 7, 2009
- Journal · 2 replies
- This information is being posted in "My Journal" for anyone who wishes to use it as reference material to help understand their electrolytes, and metabolic disorders. I have previously promised my friends ...
"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · Posted June 2, 2009
- Journal · 32 replies
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
Information Concerning Hypokalemia/Low Potassium Levels
- By mandyblue · Posted May 28, 2009
- Journal · 11 replies
- This is information that I think is very important for those who have problems with low potassium levels. Sometimes it is a metabolic problem that causes the loss of potassium, instead of just the use ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
small fiber polyneuropathy
- By bigsky51 · Posted May 20, 2009
- Discussion in Living with a neurological disorder · 0 replies
- New with this problem and wondering if anybody else can give me some insight of what to look for with this Small Fiber Polyneuropathy? Thanks ...
New member Neuromyotonia/Isaac
- By Langi · Posted May 20, 2009
- Journal · 3 replies
- Hallo, I´m a 28 year old woman from Germany, who suffers from neuromyotonia. It was diagnosed in February 2007. I would like to discuss with other people, who deal with this rare desease. ;o) kindly Langi ...
Neuromyotonia/Issac Fatigue, loss of reflexes
- By Langi · Posted May 20, 2009
- Discussion in Living with a neurological disorder · 0 replies
- Hallo, I´m a 28 year old woman from Germany. I suffer from neuromyotonia. It was first diagnosed in February 2007. Now, I´m really lucky, that i found your group ;o) My symptoms are muscle twitching in ...
