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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Hope
- By TaniaJ · Posted October 21, 2009
- 7 replies
- My 17 year old daughter Aimee was denied entry to the Navy recently on medical terms because of her NF, though we do have the right to appeal. She had an Opthamologists appointment last week and everything ...
NF and relationships
- By Plushie · Posted September 24, 2009
- 3 replies
- I was wondering how I can explain NF to my bf, he knows a little about it from me, research and a mutual friend but i dont think he fully understands it ...
Stiff Person Syndrome
- By Anisah-Flower · Posted September 7, 2009
- 7 replies
- I would like to know from all that have a diagnosis of Stiff Person Syndrome, how long have you been diagnosed? I would also like to know if it was your first diagnoses. Anisah Flower ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Water Electrolyte Balance/Hyponatremia
- By mandyblue · Posted July 8, 2009
- 1 reply
- Please check out the site listed below for information concerning water electrolyte balance. There is a video that I was not able to post in this journal. I am hoping that this site will be helpful to ...
Share your story via video!
- By TeamInspire · Posted June 15, 2009
- 28 replies
- Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...
Follow Inspire on Twitter and Facebook!
- By TeamInspire · Posted June 10, 2009
- 32 replies
- We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...
Electrolyte Abnormalities
- By mandyblue · Posted June 7, 2009
- 2 replies
- This information is being posted in "My Journal" for anyone who wishes to use it as reference material to help understand their electrolytes, and metabolic disorders. I have previously promised my friends ...
"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · Posted June 2, 2009
- 32 replies
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
Information Concerning Hypokalemia/Low Potassium Levels
- By mandyblue · Posted May 28, 2009
- 11 replies
- This is information that I think is very important for those who have problems with low potassium levels. Sometimes it is a metabolic problem that causes the loss of potassium, instead of just the use ...
Guestbooks are now live!
- By TeamInspire · Posted May 26, 2009
- 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
New member Neuromyotonia/Isaac
- By Langi · Posted May 20, 2009
- 3 replies
- Hallo, I´m a 28 year old woman from Germany, who suffers from neuromyotonia. It was diagnosed in February 2007. I would like to discuss with other people, who deal with this rare desease. ;o) kindly Langi ...
Guestbooks - An exciting addition to Inspire
- By TeamInspire · Posted May 20, 2009
- 35 replies
- Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...
mike life with cmt
- By cassie82 · Posted May 12, 2009
- 0 replies
- hi my name is cassandra my husbend mike has cmt he is 45 years old he is in a wheelchair i take care of him ...
Moms, you rock!
- By TeamInspire · Posted May 1, 2009
- 0 replies
- Looking for a unique and extraordinary way to say "thank you" to your mom? In honor of Mother's Day, good friend of Inspire Dr. Gwenn (of http://www.PediatricsNow.com and http://www.DrGwennIsIn.com) will ...
Just venting
- By PJ59 · Posted April 27, 2009
- 4 replies
- It's 4:30 in the AM & I'm stll up again. Although this is my favorite time because I am finally alone. I just left my daughters, who is my next door neighbor. I took her to youtuge to see some of the ...
please pray
- By louisianalannie · Posted March 17, 2009
- 9 replies
- my son brett is 13 and has nf and they found a tumor on the left side of his face and he has to go see a specilest about it he had on 5 yrs ago that was removed ...
MRI
- By sonwithNF1 · Posted February 18, 2009
- 2 replies
- Isaac is having his yearly MRI tomorrow (2/19). Praying that there's no change in his optic glioma and no new issues. Also, praying for him to be strong and not freak out when the catheter is put in his ...
diagnosis at last ??
- By kala · Posted February 14, 2009
- 0 replies
- i had a appointment with a genitist yesterday who said that he can get me tested in manchester to see if i have schwannomatosis or not in my opinion and his i have it but it'll be fantastic after 22 years ...
Update on my grandson
- By PJ59 · Posted January 22, 2009
- 0 replies
- His name is Keavion. We had him back at the eye Dr. on Monday. The news is not good. The rims of his pupils are fused to the lens exept for about a milimeter. He's seeing a surgen on Friday. They need ...
