Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Discussions
HELP WITH ISAAC'S SYNDROME
I THOUGHT I DID
Melkersson Rosenthal Syndrome
- By Grizz · Posted October 11, 2009
- In My diagnosis · 0 replies
- I am hoping I can come in contact with somebody that has been diagnosed or knows someone that has been diagnosed with Melkersson's. I have been to several specialists in Minnesota and I haven't come across ...
GSS Disorder
- By 4theloveofmary · Posted October 6, 2009
- In Family and friends · 1 reply
- I am new to the Inspire community with a search for those coping with GSS, a rare genetic disorder affecting 1 in 10,000,000. My wife passed a year ago and I am interested in members with families affected ...
neuromyotonia?
Heriditary Amyloidosis
- By kennethpletz · Posted July 11, 2009
- In My diagnosis · 3 replies
- Well, it finally showed. After countless tests always being negative, another nerve biopsy finally showed amaloids. Now, it appears the damage is already done and won't be able to be reversed? I meet ...
small fiber polyneuropathy
- By bigsky51 · Posted May 20, 2009
- In Living with a neurological disorder · 0 replies
- New with this problem and wondering if anybody else can give me some insight of what to look for with this Small Fiber Polyneuropathy? Thanks ...
Neuromyotonia/Issac Fatigue, loss of reflexes
- By Langi · Posted May 20, 2009
- In Living with a neurological disorder · 0 replies
- Hallo, I´m a 28 year old woman from Germany. I suffer from neuromyotonia. It was first diagnosed in February 2007. Now, I´m really lucky, that i found your group ;o) My symptoms are muscle twitching in ...
Triggers?
Schwannomatosis
- By highsailer · Posted February 23, 2009
- In Living with a neurological disorder · 2 replies
- I have had Neurofiromatosis for almost 15-20 years now. I've had 2 tumors removed from the bottom of my right foot two times, 1 tumor excised from the pinky finger on my left hand. Now I have to have ...
Non Specific Cerebral Ataxia
- By MrsWhite · Posted June 23, 2008
- In Family and friends · 0 replies
- Anyone with this disorder or have family with this ...
CIDP and Benfotiamine & Prednisone
- By kennethpletz · Posted April 3, 2008
- In Treatment · 0 replies
- I just recently started using Benfotiamine (a lipid-soluble form of vitamin B-1). From what I've been reading, it has helped others with this condition. Is there anyone out there familiar with it and ...
Isaac's Syndrome
- By rickthurbon · Posted March 21, 2008
- In Living with a neurological disorder · 0 replies
- If anyone wants to contact me my email is rickthurbon@bigpond.com Regards Rick Thurbon Sydney Australia ...
NEUROMYATONIA
- By mznita · Posted March 18, 2008
- In Living with a neurological disorder · 4 replies
- I would like to know if there is anyone out there with a child who has been diagnosed with this disease? My son was diagnosed in October '07. He has painful spasms all over, which has lately manifested ...
