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QSART test result

BehcetsGirl
  • By BehcetsGirl · Posted yesterday at 3:10 pm
  • Journal · 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...

Sorry It Has Been So Long time since my last post 4/16/2014

littlewhitedove35
  • By littlewhitedove35 · New reply yesterday at 1:26 pm
  • Journal · 2 replies
  • since my last post I have had 6 feeding tube changes, I got my AFO's , today I got the news that my walking issues my be repairable with back surgery. They are telling me that my back is messing up due ...

Autonomic neuropathy and something more?

state001
  • By state001 · New reply yesterday at 10:21 am
  • Discussion in My diagnosis · 4 replies
  • 23 yrs ago I was diagnosed with a ruptured disk at the L-5 and was told I have a L-6 which is unusal. I had 2 disksectomies, told I was a paralegic and trained myself to walk again. I returned to work ...

living with stiffperson syndrome

wheelchair-23
  • By wheelchair-23 · New reply April 16, 2014
  • Discussion in My diagnosis · 1 reply
  • HI my name is Ann with a sigh in of wheel chair23 My e-mail is annhallett89@yahoo.com. I have stiffperson syndrome. I have had it for several years but only diagnosed for 4 years. In these past for years ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

stiffperson syndrome

wheelchair-23
  • By wheelchair-23 · New reply April 14, 2014
  • Journal · 1 reply
  • I wad diagnosed 4 years ago. I never have s day without pain. I fall the the average of 1-2 Times a week.. I have torn multiple ligaments. I am.in a wheelchair now as to prevent the fall. I get IVIG every ...

Autonomic neuropathy and something more?

state001
  • By state001 · Posted April 8, 2014
  • Discussion in My diagnosis · 0 replies
  • 23 yrs ago I was diagnosed with a ruptured disk at the L-5 and was told I have a L-6 which is unusal. I had 2 disksectomies, told I was a paralegic and trained myself to walk again. I returned to work ...

Bad Mouth Taste

Tomh1313
  • By Tomh1313 · New reply April 5, 2014
  • Discussion in Symptoms · 1 reply
  • Does anyone else here suffer with a constant bad taste in their mouth? I have Parkinson's and I believe autonomic nerve disorder. No doctor around here has a clue ...

support

wheelchair-23
  • By wheelchair-23 · Posted March 28, 2014
  • Discussion in Symptoms · 0 replies
  • I have been diagnosed for three years. I receive IVIG every ten days and I still am limited in what I can do. I HAVE hello35 hrs through the state. My caregiver is the best one anyone could have. She ...

stiff person syndrome perm variant support group on facebook?

LaurylThomas
  • By LaurylThomas · Posted March 26, 2014
  • Journal · 0 replies
  • Hi guys, I was wondering if anyone has heard of this support group before? I somehow came across it while reading something. I am thinking of signing up, but wanted some input first as I have never been ...

IT IS JUST TO LATE

Kaiserslautern
  • By Kaiserslautern · New reply March 25, 2014
  • Journal · 16 replies
  • I AM 77 AND HAVE PERIPHERAL NEUROPATY SERIOUS FOR OVER 12 YEARS. I HAVE HAD EVERY TEST POSSABLE, WAS AT THE MAYO CLINIC FOR ONE WEEK. NOW IN THE LAST 2 YEARS A VERY PAINFUL PUDENDAL NERVE, AT MY AGE I ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Autonomic Disorders

Tomh1313
  • By Tomh1313 · New reply March 13, 2014
  • Discussion in Symptoms · 2 replies
  • I have been living with digestive problems for about 16 months. I had a plate and fusion on my cirvical c4/c5 in May of 2012. I was advised by my orthopedic surgeon that I would probably have some temporary ...

G COETZEE

coetzeegisela
  • By coetzeegisela · New reply March 13, 2014
  • Discussion in My diagnosis · 1 reply
  • BPPV - Clinical vertigo after head injury/surgery. Three years ago fell moving furniture, "coma" 8 weeks, 'vertigo', unbalanced gait since, but made way from wheelchair to walker to cane, now indoor cycling ...

Help Anyone, Please

Tomh1313
  • By Tomh1313 · New reply March 8, 2014
  • Discussion in Symptoms · 1 reply
  • I had surgery to fuse and place a spacer at the C4/C5 level almost 2 years ago. After surgery had month of swallowing/vomiting problems. Dr. Had advised I would have the symptoms probably for a short ...

small bowel follow through 6hrs

kim5204
  • By kim5204 · New reply February 27, 2014
  • Journal · 6 replies
  • Well my last small bowel follow through a year ago (done through my j tube didn't have to drink it) was 2hours long, had another one today (threw my j tube) was there for 6 hours. He told me to go home ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Cramp Fasciculation Syndrome or Isaac's disease

Margie
  • By Margie · New reply February 16, 2014
  • Discussion in Treatment · 3 replies
  • I was diagnosed with CFS 1-1/2 years ago. I am desperate to find a neurologist near my zip code of 91344, (Granada Hills, CA). My present neurologist has never heard of CFS. I have so many cramps, twitching ...

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