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bretts mri

louisianalannie
  • By louisianalannie · New reply 10:37 am
  • Journal · 3 replies
  • bretts m r i came back normal his tumor hasnt grown since his last m r i.......now for me i went do a blood test and my red blood count is real low and so are my platelets does any one else have a problem ...

nf

Duke67
  • By Duke67 · Posted November 29, 2008
  • Journal · 0 replies
  • i just came to this site by just looking around on here on nf and i am going try do a journal on a weekly basics here and learn more on this and others and show my support ...

another operation over

kala
  • By kala · New reply November 29, 2008
  • Journal · 4 replies
  • I'm out of hospital after having my 14th operation. this one was easier than the others thank god, the other ones were on my spine and this one was on my shoulder so there was no learning to walk again ...

Why are we here?

Brian
  • By Brian · New reply November 28, 2008
  • Journal · 134 replies
  • When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

Rude people on the bus

simplydeliciouslove
  • By simplydeliciouslove · New reply August 13, 2008
  • Journal · 1 reply
  • I'm not trying to complain, well not really. I love watching my sister during her swim team pratice at the park everyday, even though some days I'm in a little pain. I can always take my meds to help ...

Upcoming improvements to the messaging system

Walter
  • By Walter · New reply July 7, 2008
  • Journal · 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

NEUROMYATONIA

mznita
  • By mznita · New reply June 23, 2008
  • Discussion in Living with a neurological disorder · 4 replies
  • I would like to know if there is anyone out there with a child who has been diagnosed with this disease? My son was diagnosed in October '07. He has painful spasms all over, which has lately manifested ...

Non Specific Cerebral Ataxia

MrsWhite
  • By MrsWhite · Posted June 23, 2008
  • Discussion in Family and friends · 0 replies
  • Anyone with this disorder or have family with this ...

Improvements to the message system are complete

Walter
  • By Walter · New reply June 22, 2008
  • Journal · 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

Doctors

simplydeliciouslove
  • By simplydeliciouslove · Posted June 15, 2008
  • Journal · 0 replies
  • It seems that as I've gotten older my NF has progressed. In the last few years I have developed scoliosis. When I was younger my doctors used to check for it all the time. Every single doctors visit I ...

Sometimes we make mistakes

Brian
  • By Brian · New reply May 27, 2008
  • Journal · 35 replies
  • Two months ago, when we launched Inspire 2.0, we added a group called 'Team Inspire'. We did this with the best intentions: we wanted the group to be a space for new members to get oriented, ask questions ...

Isaac Syndrome

rickthurbon
  • By rickthurbon · New reply April 20, 2008
  • Journal · 9 replies
  • Hello Beth Sorry to say, I like many others don't like the new site. Just before the changes there was a very active thread with about 75 posts on Isaac's - since the new site, there has been no activity ...

Welcome from TeamInspire!

TeamInspire
  • By TeamInspire · New reply April 7, 2008
  • Journal · 35 replies
  • Hello, old friends and new. Today is a big day for us! We have made numerous improvements to your community, most that were suggestions from you. As you can see the site is very different then before ...

CIDP and Benfotiamine & Prednisone

kennethpletz
  • By kennethpletz · Posted April 3, 2008
  • Discussion in Treatment · 0 replies
  • I just recently started using Benfotiamine (a lipid-soluble form of vitamin B-1). From what I've been reading, it has helped others with this condition. Is there anyone out there familiar with it and ...

Isaac's Syndrome

rickthurbon
  • By rickthurbon · New reply March 24, 2008
  • Journal · 5 replies
  • Anybody with Isaac's Syndrome please contact me rickthurbon@bigpond.com ...

Isaac's Syndrome

rickthurbon

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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.