My daughter was diagnosed with an optic glioma on 8/23. She had her first eye exam on 9/1 and her vision was 20/125. (She is two years old). Her next MRI on 11/23 showed now tumor growth but her eye exam (she is more verbal) was 20/400 in her left eye (where the glioma is). We met with an oncologist on 12/23 to discuss chemotherapy. They wanted to do vinchristine and carboplatin 1 x a week for 15 months. We asked for another eye exam since this was based on one exam. On 12/27 she had an eye check and with patching and glasses she was at 20/250. It was enough to wait on chemo for now but they told us that any vision loss between now and her February check will be permanent. Now I watch her constantly and though small it seems like we are losing ground again. I think we are going to ask for another vision test but I think I am scared they might recommend the chemo again. Has anyone been in this situation? I feel like this is a nightmare and I can't wake up. I always feel so anxious and depressed. I barely make it a day without crying. I just feel like this glioma has taken so much from our daughter and from our family.