I am 35 years old, I was diagnosed when I was 19. If I remember correctly the doctors figured mine was NF1. I was very surprised to hear I had a "disease" I thought I was realatively healthy until I went to a nuerology appointment with my mother. She was seeing a specialist about NF because she was newly diagnosed with NF and they thought it was causing her seizures. They asked her if I had any problems and she said no. I was in the office looking at all of the literature on they signs and symptoms and I asked the dr about a spot on my arm he then asked how many I had. I showed him my back and stomach and he said it was very evident I also had NF. I asked what the mark on my arm was and he said it was just a tumor...I started to cry, he told me to buck up and not worry, and said for me to not cry about it and go to the library and educated myself. I couldn't eat for days thinking I had cancer and never really did much research because I was scared. I have struggled since Jr. High with learning disabilities the little research I have done stated many people with NF have some learning difficulities. Now that I'm a little older and have some life experiences under my belt, reasearch is not as scarey. but I would love any experiences or help with any others who have struggled with learning.
Thank you, Becky...aka littlefire76