NF & Hysterectomy

I have nf 1 and just found out i have polycystic overian syndrom. The doctor is talking about doing a Hysterectomy. PArt in due to the fact that hormones make my tumors grow, and every month I have more andmore issue during that time of the month....Anyone ever had anythig simular?

Edited July 25, 2009 at 12:29 am

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i have nf2. i had a hsytorectomy at age 24 because of cervical cancer. docs never mentioned it affecting the nf.

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I had a hysterectomy at age 28 due to endometriosis and ovarian cysts. I didn't know I had NF at that time. But, now i wonder??? because I had my left ovary removed when I was 27 due to a mass. I think the pathology would have shown the nf??

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I had a hysterectomy done at age 36, my ovaries were left. My utereus was the size of a 4 month pregancy, nothing was ever said it was because of NF, but I can't help but think that it was.

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I have NF1 and had a hysterectomy at the age of 34. I have 10 tumors removed, 3 the size of grapefruits! The doctor mentioned NF.

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same boat, HUGE fibroids on my uterus. I didn't notice any more growths or any that got bigger. Three years after the uterus was removed, I had to have my ovaries taken, same reason, large fibroids formed. They were not NF related. I was 40 when I had my first surgery.

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