NF runs in my family. My grandfather had it and passed it onto all of his children. Since I was pregnant with my daughter, I've noticed strange spots popping up. My OBGYN sent me to a dermatologist for it and he claimed he had never seen anything like it in his life and had no idea what it was, so he sent me on my way (reason number 1,896 no one should ever see military doctors).
Since NF runs in my family, it crossed my mind that what I had going on was NF. I've spent the past year really researching it on my own and I've come to realize that I have all the signs of NF. Cafe au lait spots thoughout my body, a few smaller tumors, those "buttonhole" spots you can push in (I saw a picture of someones stomach with those, it looked EXACTLY like my stomach), I'm very short (I read people with NF are typically short).
Now I have a million questions running through my head that I'm hoping you guys can answer for me.
Where do I go from here? What kind of doctor do I go to if I want to see if I really do have NF? I've read that hormonal changes cause tumors to show up (I'm assuming that's why I just started noticing it during pregnancy), will being on birth control or getting off of it or switching forms of it cause tumors to pop up? If my daughter has most of her father's charactoristics could it mean the NF will pass her? If she doesn't get it does that mean there is no way her children could ever get it (unless their genes mutated on their own obviously)? What can I do to help tumors from not growing? I've read that tattoos can cause tumors to pop up faster than they would have, but I have a sleeve and a few other tattoos and since getting them I haven't noticed tumors popping up faster. My mom died of leukemia when I was 2, did NF have anything to do with that? Is there anyway I could be wrong about all this, and the spots showing up are just a coincidence?
Sorry for the length of that. As the title says, I'm freaking out about all of this.