I'm new here. i'm a 31 year old female who was diagnosed with nf1 about 3 years ago. i'd had cafe ole spots on my body forever but never paid much attention to them thinking they were just large birthmarks.
it wasn't until I was in my mid twenties, that i couldn't seem to get rid of the 'rash' on my chest. Doctors gave me creams etc, not knowing what it ws until i finally went ot see a dermatologist who knew what it was.
obviously my life hasn't been severely affected by it, but there are definitely things that make sense now.
i was told that I have a not-so-sever case... which I don't when i see what some people have. The bups are getting bigger and i get more of them as I age.
My first question may offend people, and i really hope it doesn't, its just something thats been on my mind.
Neither of my parents had it, so I guess i'm a mutant, ha ha.
But, since I know I have it, i guess i wonder if its responsible of me to have children knowing there is a 50% chance of having a child with NF1???
My life hasn't been awful, things I'd like not to have, but what if i have a child and their condition is much worse than mine? i would hate to do that all because I wanted a child for my own satisfaction/ gratification.
i'm really struggling with this at the moment.
Edited November 30, 2008 at 6:54 am