I'll start with a question about myself, though now I'm also worried about my elder daughter. Hope you'll help me with information and advice.
I was born with several CAL spots (can't say how many) and one large white spot on my torso. The doctors told my parents, nothing to worry about. True, the spots completely disappeared near puberty. Not a trace of them was left.
As a young adult I noticed a small and pale CAL spot under my right arm. It's still there! I read that in diagnosing NF, one axillary freckle is more important than 6 CALS. I assume, I might be NF-affected...
I'm now in my early 30ies, have two kids. My skin is quite smooth and good (definitely, no bumps). I've been a bit short-sighted since high school, but my iris is clear. Have a mild scoliosis, also since high school, which has never required any treatment or caused any problem. No major health issues.
A qualified geneticist is not available where I live (I've been to a geneticist - no use). Doctors are very ignorant about NF. I tried to look for CALS on my body, and noticed just one on my right hand. It's visible only in winter, when the skin is not tanned. I'm not sure about the size (maybe 2-3 cm), because it's too pale and the border lines aren't sharp - you can't see where exactly it begins or ends.
Does it happen sometimes that CALS go away as you grow up? Can NF be really so VERY VERY mild that it causes nothing but one small spot in the armpit? Or shall I expect that other symptoms (numerous CALS, freckles, bumps) appear later in life, say, after 40? Is it possible (I know, chances are slim) to have an axillary freckle and have no NF?