Are there specific types of cafe au lait spots associated with NF1? I cannot really find a lot of internet resources that show exactly what the spots look like. I seem to find images of the same spots over and over again.
I am being told that my son's spots are not indicative of NF1 because they are so small. Both the pediatric dermatologist and geneticist are nearly dismissive about them. The geneticist specializes in NF. She has seen many, many cases. I can't see her misinforming us, especially since I have been so direct and questioning.
So, I am looking for images that I can compare to what I see. My son also has a hypopigmented macule, so we were at first worried about tuberous sclerosis. We go from one genetic disorder to the next with these birthmarks.