Avastin chemo theraphy for nf2 -India

Anybody here from India who is done Avastin chemo theraphy for NF or Nf2 ..
Please help me..

contact my email
rohan.denzil10@gmail.com

Edited June 7, 2013 at 8:08 am

Report post

15 replies. Join the discussion

hi I am from india but I have not done ony therapy for my nf1

Report post

Hello Sam.. Do you know Hindi??

Report post

Avastin is not a chemotherapy! Chemotherapy causes The tumors to grow bigger.. It's called Avastin treatment. That's a huge different. So be careful out there, so the doctors don't put you on chemotherapy

Report post

Lol avastin is a form of chemo, I'm pretty sure all treatments that are in the trials phase or have been in trials toshrink nf tumors have been some form of chemo. Radiation treatments are what causes tumors to grow.





The search bar is my friend.

Report post

I've been on avastin for 2 years. You get chemotherapy and Avastin in The same way. But it is not the same thing at all. Like.. If you give someone the same cure as someone who have cancer (chemotherapy) to someone with NF2 you can jump of The tallest building you see instead. The tumor will grow faster then The population of China :o
But Avastin has been given among with chemotherapy :)

Report post

Hi my name is sagar and I know hindi I am living in vadodara gujarat india

Report post

Hi me too from india I'm from Delhi..me too never done any therapy,radiation,surgery, I wanted to do but from proper NF doctor..not from any neurological..I'm scared..you guys ever went on surgery..or taking homeopathy medicine,or Ayurvedic medicine plz let me know...have you ever try to go USA to treat NF because they have really good doctor and hospitals..still then take care..

Report post

Hi Tenzin..
India me bahuth ache docters hai.
USA me treatment bahut expensive hai..
Apka nf kaisa hai??

Report post

Hi Rohan Oh really.... When I searched in net on NF doctor in india.i didn't get any specialist doctor on NF only...if you know than plz give me his contact no or address..I have NF2 . and my bumps are growing more day by day.. i just wanted to control those bumps.. i know no cure for nf...but its good if can control them...I don't know what to do..did you done any surgery..

Report post

hi 10zin..
Apka Tumour kaisa hai? Kitna bada hai (size) aur hearing?? ..
Surgery karenge tho hearing sacrify karna padega..

Report post

Size not that big bit small one..hearing tho thik hai Babi....are you 100% sure if I do surgery thn I have to sacrifice my hearing...ya some people they got lost their hearing after surgery..but some feel better no hearing problem...thus y I'm scared doctor frm here...thy don't have much experience for surgery on NF..they might do it for let's try it.. And ya once I went to doctor he is frm Jaipur he is quite famous too..he said these bumps surgery is simple...will be normal within 15 to 18 days..he knows that is NF tumors not like simple skin bumps..that he can took out easly... He said come tomorrow for surgery.. He didn't said do MRI first..he will check my tumors size..how deep it's located in nerves...like simple hai hojaye gha..my heart says no don't do and don't go to that doctor...after that I didn't look back to that doctor again....like him there are so many docter who says they can do....but I don't trust any doctor frm here...going abroad for treatment yes it's very expensive..first of all its hard to get visa....lets hope for the best..

Report post

Best of luck tenzin...

Report post

Dr. Rohit Jain

S-341, Basement

Panchsheel Park

Delhi-110017 India

Mobile : 0091-98 1129 2534

Emails : rohit@vitalforce.in, adyajain10@gmail.com

Websites : www.VitalForce.in, www.HomeopathicTreatment4U.com and www.HomeopathyDoctorDelhi.com

Salient Features of VitalForce Online Homeopathic Clinic

Report post

Call Fortis? I bet they know something!

Report post

www.nf2is.org

Report post

This discussion is closed to replies. We close all discussions after 90 days.

If there's something you'd like to discuss, click below to start a new discussion.

Things you can do

Support the Neurofibromatosis Network

Help the Neurofibromatosis Network reach its goals and support people like yourself by making a donation today.

Donate to the Neurofibromatosis Network

Discussion topics

Beauty Mark Nation

Beauty Mark Network

Resources from NF Network

Find an NF Walk Near You

Find an NF Walk Near You

Community leaders