I joined today =)
I was reading this incredible post: http://www.inspire.com/groups/neurofibromatosis-inc/discussion/experimental -treatment-with-pure-alcohol/
I got absolutely interested, as my elder brother, with NF1, went to surgery for neurofibromas removal again. This time doctor removed 8 from face, 7 from hand, and a very big one from a toe. We were considering for him the laser for a multiple removal, of course that is expensive and no way, it's considered cosmetic, you know...
so this possibility, about "shrinking" them with injections, seemed very interesting!
I'd like to know if there are more experiences,
or more about 3Pacers and Bluevelvet, who were trying it (this topic was 2 years ago)
We live in Argentina. You are closer to researchs and results, I hope some of you know more about this.
thanks a lot