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Touch
- By banana1946 · New reply 2:29 am
- Discussion in Living with NF1 · 2 replies
- I miss being touched. Just saying, would love a massage or something but the last time I went, the massage therapist told me people like me should refrain from massage.. RRRR, I hate NF. Sorry, just had ...
Word association game
Prayer Please
Long term effects of medications
- By GirlA · New reply 1:12 am
- Discussion in Living with NF1 · 9 replies
- Pain meds and even anti-depressants can be very helpful in the short term. Would like to know if anyone has experienced any long term effects from these. I try to limit the use of these medications because ...
Propolis
- By hayley5 · New reply yesterday at 11:17 pm
- Discussion in News, research and advocacy · 9 replies
- Has anyone ever tried propolis? has it made a differences? (they say it takes 3-6 months ...
Hair cut
- By GREENBAY1961 · New reply yesterday at 10:39 pm
- Discussion in Living with NF1 · 1 reply
- just had my hair cut and trim of my facial hair, first time with this styalist . We talked about several subjects we covered NF a little then talked about the new BASS PRO shop opening she said she could ...
Single neurofibroma but not neurofibromatosis
- By Jasiek · New reply yesterday at 9:41 pm
- Discussion in Newly diagnosed with NF2 · 6 replies
- Hi all! I'm new to this site and was just wondering if anyone has had similar problem. I have a single case of benign neurofibroma but not neurofibromatosis of any type. There is no family history, I'm ...
NF and LEarning Differences
- By jwmcc · New reply yesterday at 9:16 pm
- Discussion in NF1 and children · 9 replies
- My 14 year old daughter has NF1 (as does my husband, his brother, his sister who passed from a cancerous tumor at age 15, his father and his aunt and cousin). She also has learning differences. She has ...
Doctors in Kentucky dont know jack
- By Livewyre78 · New reply yesterday at 8:19 pm
- Discussion in Living with NF1 · 1 reply
- Hello all hope today is a good day your pain is low and life is good. this is a post saying that the doctors here in Ky dont seem to know jack bout NF at all. they have "read" about it in medical journals ...
I have nf and want to have a baby
- By Kaykay1990 · New reply yesterday at 8:16 pm
- Discussion in NF1 and pregnancy · 37 replies
- I am getting married soon and I have always wanted to have my own baby but info not know if I should? Can you tell me your stories ...
THE SONG GAME!!! Revisited
- By Miss-No-Name · New reply yesterday at 7:02 pm
- Discussion in Off-Topic · 3924 replies
- GAME RULES: *One person posts a song *Then the next person takes a WORD from that song & adds another song which contains that same word. example.. "Don't STOP believing" Journey (next person) "STOP In ...
Annual PA NF Picnic
- By seesnow · New reply yesterday at 6:15 pm
- Discussion in Living with NF1 · 2 replies
- http://www.schneeway.info/nf_pa_picnic.p hp Anyone with neurofibromatosis, their families, friends, doctors, etc. are welcome to attend the 12th annual PA NF picnic held in Manheim, PA on Saturday, June ...
NF 1 ILLINOIS
- By nf1father · New reply yesterday at 4:52 pm
- Discussion in Living with NF1 · 7 replies
- just wondering if any of you are from il, is so where , im in Kankakee very crap place to live ...
friends
- By bugboy · Posted yesterday at 3:37 pm
- Journal · 0 replies
- any time you need a ear to bend or to vent I'll do my best to help..you can Fb me Ann Thacker fredricksburg VA ...
NEED BETTER AFFORDABLE HEALTH INSURANCE.
- By redneckgal82 · New reply yesterday at 3:33 pm
- Journal · 3 replies
- I need better insurance so I can get my NF1& my scoliosis checked out plus have masses on my spine. I am in pain a lot & I do exercise & very active so what to do? To find better insurance ? I am worried ...
doc's
- By bugboy · New reply yesterday at 3:14 pm
- Journal · 1 reply
- I live in the Fredricksburg area of VA I was wondering if any adult NF doc's close by and does most insurance Co. pay for removing the the tumors ...
NF1 & NF1
- By Sohel · New reply yesterday at 3:02 pm
- Journal · 11 replies
- I AM SUFFERING FROM NF1&NF2. I FEEL VERY UNCOMFORTABLE FOR THIS. HOW TO REMOVE OR CURE OR STOP TO GROWING ANY ONE SUGGEST ME ...
cancer
- By daisy_1 (Inactive) · New reply yesterday at 2:51 pm
- Discussion in Living with NF1 · 9 replies
- So i have been researchin online..so scarey..cancer scares me. Idk y im askin afarid of the responses..but..how many ppl with nf have developed cancer due to nf..or if u know of someone who has..what ...
Why
- By Bklyn18 · New reply yesterday at 12:02 pm
- Discussion in Living with NF1 · 13 replies
- I live Brooklyn, NEW YORK. The city that is always open so tell why not a soul knows about NF a cat get lost and the whole city is on the go. So why is NF hidden, 30 years I went to a hospital in the ...
nf and Coeliac disease
- By FreyaF · Posted yesterday at 10:37 am
- Journal · 0 replies
- hi, do you have both nf and Coeliac disease? is here any conection ...
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