Find information and support here if you have neurofibromatosis type 1 (NF1) and are pregnant or thinking about having children.
- By Cara11 · New reply yesterday at 3:28 pm
- 5 replies
- hello everyone, I'm new here. i'm a 31 year old female who was diagnosed with nf1 about 3 years ago. i'd had cafe ole spots on my body forever but never paid much attention to them thinking they were ...
- By Amy74 · New reply October 30, 2008
- 27 replies
- Has anyone recently thought about having children but their spouse is the one with NF1. We are torn on our choices about how to make a baby ...
- By BunnyMom · New reply October 28, 2008
- 7 replies
- I am due next month with my second child. With these two pregnancies I have had so far, a new growth has appeared on my face and other places. So far I've gotten them removed (the ones on my face) so ...
- By vjb0511 · New reply October 26, 2008
- 23 replies
- I just want to know what other people have went through and done. I am 30 and want desperatly to have a baby, my husband has NF type 1 and he has given me the facts such as the 50/50 and that only a 5 ...
- By Karla12 · New reply October 1, 2008
- 4 replies
- Is anyone out there pregnant with neurofibromatosis? I have noticed a am constantly itching and have had several more tumors (everywhere). I do believe it is realted to the hormones. Can someone tell ...
- By Bailey · New reply September 7, 2008
- 16 replies
- Has anyone with NF1 had a baby and if so did your condition get worse or stay the same while you were pregnant? I am just curious and I know it may vary from case to case but any help on this would be ...
- By shebie226 · New reply August 30, 2008
- 5 replies
- I want to start a family but concerned about how my nf will be affected. I would like people to let me know their experiences and how pregnancy affected their nf. did you notice growth of existing neurofibromas ...
- By luisellar1 · New reply July 29, 2008
- 9 replies
- Just wondering if any one has gone though this process....... im currently doing ivf pgd ......... in this prossess they test the embryos priorto im planting and thenb implant only nf free ones..... please ...
