Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
NF1 and pregnancy
Find information and support here if you have neurofibromatosis type 1 (NF1) and are pregnant or thinking about having children.
How bad did you turmors grow during pregnacney/
- By banana1946 · New reply November 24, 2009
- 9 replies
- Hello, My husband and I are planning on getting prego soon. We are going to do genetic counseling and gene selection to ensure our child wil not have NF. Just curious to all the NF women out there who ...
I have nf1 and expecting second child
- By youngmommywithnf1 · New reply November 12, 2009
- 1 reply
- for those that want kids and have nf1 go ahead have kids.. my 1st pregnancy was fine no complications at all I didnt even have morning sickness.. I am 15 weeks pregnant again and I am doing great and ...
Did your new growths during pregnancy go away?
- By BunnyMom · New reply November 4, 2009
- 11 replies
- I am due next month with my second child. With these two pregnancies I have had so far, a new growth has appeared on my face and other places. So far I've gotten them removed (the ones on my face) so ...
pregnacy
- By strawberry_chick33 · New reply November 2, 2009
- 4 replies
- how risky is it to have a baby of your own with mild NF. do u always get those bumps and can u get those removed and will they stay away? Does it affect the baby only or does the mother at risk too ...
Genetic Counseling
- By banana1946 · New reply October 30, 2009
- 1 reply
- Hey Everyone! Just curious if anybody out there accutally did do genetic counseling? If so, Im assuming you have to go the invetor route as well correct? I just was wondering what the price off all of ...
Why do people with NF keep having kids?
- By ash0312 · New reply October 29, 2009
- 95 replies
- With all the research out there and knowing that if a parent has NF there will be a 50% chance that it will be passed on to the child, why do people keep trying to have kids? I understand that sometimes ...
Pregnancy with NF1
- By JDMJAM · New reply October 27, 2009
- 11 replies
- My wife has NF1 and we are wondering about having children. Is there successful genetic testing for NF1 for in vitro? Is there complications for woman with NF to carry a baby to term? Her NF is fairly ...
having children if you know you have Nf1
- By Cara11 · New reply October 22, 2009
- 40 replies
- hello everyone, I'm new here. i'm a 31 year old female who was diagnosed with nf1 about 3 years ago. i'd had cafe ole spots on my body forever but never paid much attention to them thinking they were ...
Question about pregnacy
- By Senda990 · New reply October 19, 2009
- 7 replies
- Hello, I would like to ask you something if someone has heard something relevant. During pregnacy most women with NF notice that their tumors grow bigger, due to hormones etc. But, what happens after ...
Pregnant with neurofibromatosis
- By Karla12 · New reply October 19, 2009
- 23 replies
- Is anyone out there pregnant with neurofibromatosis? I have noticed a am constantly itching and have had several more tumors (everywhere). I do believe it is realted to the hormones. Can someone tell ...
NF and the decision to have childre
- By mandita210 · New reply October 11, 2009
- 17 replies
- I have a pretty mild case of NF 1, but always said I would never have children because of the chance of passing NF to them. But the problem is, I absolutely love children and I want to have children more ...
BirthControl
- By kels12 · New reply October 7, 2009
- 4 replies
- How does Birthcontrol effect NF. I know hormones have a lot to do with it. Has anyone noticed a huge change in their tumors or new ones coming with taking Birth control? (Oral hormone type) It is very ...
pregnancy
- By flinky29 · New reply October 2, 2009
- 7 replies
- Hi everyone,I am new to the community and was wondering if anyone could answer some questions. My long-time boyfriend has a mild case of NF1, and I'm wondering if we can have kids safely? Is there less ...
TTC and NF
- By mrsstokes · New reply October 2, 2009
- 10 replies
- Hello, My hubby and I are TTC and I have NF-1 (thankfully, i have a very very mild case, a few bumps, but no serious problems) I was, however wondering if people who have NF have trouble conceiving? We ...
please help
- By rosied80 · New reply September 28, 2009
- 27 replies
- hello everyone! im new to this group. im soo glad that they have something like this for grown-ups with NF-1. I am 28 years old and have NF-1. My husband and i really want kids and i have so many concerns ...
does nf1 make pregnanct more difficult
- By shanesgirl2009 · New reply September 25, 2009
- 10 replies
- I am currently 39 weeks pregnant and let me tell you I will never do it again....i have had a horrible pregnancy from pinched nerves to 6 kidney stones I have been in and out of the hospital...my eyes ...
New to NF
- By Cuteness · New reply September 9, 2009
- 3 replies
- Hey all...I am new on here. I have a few questions. I am 22 and have a very mild case of NF, I didn't know I had it til I was in std 7 and my mum took me to the doctor for this very werid looking birthmark ...
The Next Generation
- By blkdolfin · New reply September 1, 2009
- 22 replies
- My 20 year old daughter has NF1. She has decided not to have children because she doesn't want to pass it on but will adopt instead. While I am also an adoptive parent and wholeheartedly support her desire ...
Has anyone had this happen to them?
- By kaysey5003 · New reply August 22, 2009
- 1 reply
- Hi Im 32 years old female and living with NF but not sure which one other than that I pertty heathly. I didn't start showing signs untill I was in my 20's. I just have the bumps on my back and stomach ...
Wanting to kids of my own
- By krisinla · New reply August 9, 2009
- 3 replies
- Hi everyone. I am at a pointat in my life where i want to have kids now. I know that I can pass this on to a baby, but i was wondering what physical changes will my body go through. If anyone has any ...
