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Newly diagnosed with NF2
Information and support for anyone recently diagnosed with neurofibromatosis type 2 (NF2).
nf2
- By njm047 · New reply November 17, 2009
- 5 replies
- Sounds like most users of this site have nf one. Is ther a better discussion board for nf2. Also has anyone gone to MD Anderson for their nf2 ...
how can i keep my identity as a person? or, how have you?
- By stillaperson004 · New reply November 7, 2009
- 10 replies
- hello, when i was 13 i was found out to have nf2. i lost my hearing and ability to move my face from the surgeries. i am now 18 and no one treats me like a person. my own parents label me "the deaf person ...
Our Story: details about our NF2 experience so far
- By AmieCN · New reply September 22, 2009
- 5 replies
- On May 16th at 5:30 AM, I was woken up by someone beating on my front door... Half awake I flung the door open to find Monica's friend and her Dad. The Dad said "I know you think Monica spent the night ...
Spine cord tumors
- By rontrix · New reply August 6, 2009
- 1 reply
- I read a very informative posts about treatment of tumors of the spinal cord. My young brother aged 28 has several spinal cord tumors and only had them diagnosed after one or two of them were affecting ...
Anyone from Massachusetts
- By sammy77 · New reply June 14, 2009
- 30 replies
- Hi, anyone here from Massachusetts? I see quite a few screen names, but not many that post ...
new dx of nf2
- By lesrn22 · New reply May 26, 2009
- 5 replies
- My son was recently dx with nf2. Still trying to learn everything I can about it. He just turned 17 and originally had some spots on his back and abdomen biopsed. Then we got sent to several different ...
NF2
- By flamingoqueendee · New reply May 18, 2009
- 3 replies
- What are the first steps to take when a child is first diagnosed with NF2 ...
COST- GENETIC COUNCILING
- By ladybair · New reply April 9, 2009
- 9 replies
- I HAVE NF AND I AM NOT SURE IF IT IS NF1 OR NF2 I HAVE READ ALOT ON THE TOPIC BUT IT SEEMS I HAVE A FEW SYMPTOMS OF BOTH TYPES. I WAS DIAGNOSED A YEAR AGO AND MY HUSBAND AND I ARE READY TO START THINKING ...
The disease
- By Kera · New reply March 20, 2009
- 7 replies
- My daughter, Kera was diagnosed last January '08 with this terrible disease then at the age of 25. She had 2 tumors in her brain, one the size of a orange in the middle of the brain and the other on the ...
Pain and NF treatment
- By WadeTC · Posted February 17, 2009
- 0 replies
- So, I hate living in this pain as long as I have, and I'm apprehesive about asking for pain meds. there is such a stigmatism. Also what are some of the standard treatments of NF. Unfortunatly this is ...
