Share your story, find support and information, and discuss symptoms and management of neurofibromatosis type 2 (NF2).
- By KAM111 · New reply 7:18 pm
- 3 replies
- Hi...I have lived with NF2 for 4 years now. I was just wondering if there was anybody withen the ages 15-19 that have NF2? fill free to post here no matter what age or type of NF you have!!! KAM111 ...
- By angelle1 · New reply 3:19 pm
- 4 replies
- I had gamma-knife (laser) surgery on my left acoustic neuroma, and later had to take steroids to make the swelling go down a regain partial facial-muscle function; I have not felt normal since. Constant ...
- By mshollieb · New reply 3:07 pm
- 10 replies
- Hi All, My name is Hollie. I'm 24 and have NF2. I was first diagnosed with at age 9. More importantly though, I'm a big sister, college graduate, thrill seeker, ambitious professional, aspiring world ...
- By cyndie · New reply November 19, 2008
- 4 replies
- I'M LOOKING FOR SOMEONE WHO HAS NF2 TO TALK TO ABOUT DAILY LIFE WITH ALL IT'S ACHES AND PAINS AND DIFFICULTIES ...
- By dizzybee · New reply October 31, 2008
- 4 replies
- Hello all, new to this site. I am a 45 yo white female, my mother was almost 35 when I was born and she smoked throughout her pregnancy. My brother had mumps and german measles, which my mother exposed ...
- By oldeschool · New reply September 5, 2008
- 4 replies
- My son has lumps that are showing up on many of his extremities, one of his doctors mentioned that they might be plexiforms. All of the rest of the doctors that we have seen have dismissed this idea because ...
