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Welcome to Inspire!
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Schwannoma (Brachial plexus/axilla)
- By mnmtassano · New reply September 22, 2009
- 2 replies
- I am a 38 year-old mother of 3, I just had my 2nd resection of a Schwannoma nerve tumor from my (r) brachial plexus/axilla in 4 years. I have seen a geneticist & my DNA tests negative for NF & I do not ...
help
- By justmesue · New reply September 14, 2009
- 2 replies
- ok here it goes... my mom who has been sick for as long as I can remember... diabetes, heart disease, etc... fibromyalgia was a main diagnosis for her pain... now this year, but has been going on for ...
need to get a new doctor. for my nf, any advice
- By Mandini152 · New reply September 11, 2009
- 2 replies
- my doctor acts like he has no clue whats going on with me ...
Chronic inflammatory demyalating polyneuropathy
- By hildamill4 · Posted September 9, 2009
- 0 replies
- Seems I'm unable to locate anyone with the rare health problem of Chronic inflammatory demyalating polyneuropathy. Can you help me get into a group discussion with the same health problem. Hilda ...
Disibilty questions/ Expremential drugs
- By GSXrreynolds · New reply September 9, 2009
- 5 replies
- Alright. I'm 19 years old. I am working. But it's really hard for me to work. I have several bumps close to my spine, and the back of my head. It causes me to have twitches at random times, leg pains ...
Google Crome
- By anthony204 · New reply September 7, 2009
- 6 replies
- Has anyone downloaded this? Is it a good idea or a mistake? What is your experience ...
need advice, might need surgery
- By Mandini152 · New reply September 5, 2009
- 2 replies
- hi im mandi and am 23 i have nf not sure if its 1 or 2 but i recently found a tumor about the size a maybe golf ball maybe bigger on the back of my leg and it is very close to the back of my knee like ...
Nf and severe mayalgia
- By balanced · New reply August 30, 2009
- 1 reply
- I have had Nf for about 11 years with severe mayalgia. Lessions, strokes,caffee latte,and several oporations for cycts. It all became dormant for about two years and now in 2009 I have suffered for seven ...
People with NF2 in MO
- By 1stukie · New reply August 25, 2009
- 10 replies
- Is there anyone with NF2 living in or around S.E. MO. It might be nice to correspond or meet someone with this. My grandson has this and we feel all alone in the middle of America. Thank you ...
Electro-Desiccation Doctors
- By CatQ · New reply August 17, 2009
- 13 replies
- I'd like to start a thread about the electro-desiccation procedure that is making Dr. Weinberg in NY so famous. I'm looking for a doctor who performs the same procedure in CT because Dr. Weinberg doesn't ...
Why do i get thundering in my ears when people are talking loud
- By colonelchimp · New reply August 10, 2009
- 10 replies
- Hi as the title says, when i am in company and people are talking, when the pitch hits a certain level i hear loud painful thunder in my ears and i have to put cotton wool in my ears to help ease it ...
NF1 Only one in family, big family that has NF1
- By FredLB · New reply July 26, 2009
- 15 replies
- I have the brown spots all over me, and small tumors all over me too. But the tumors are small but big enought to see and notice. I am in severe Pain one Doctor I had years ago, he was also a pathologist ...
Looking for a cosmetic, dermatologist in Toronto, ON.
- By Falon · New reply July 18, 2009
- 2 replies
- I have fibromas on my scalp and they constantly bleed and scab and bleed again. I went to a cosmetic dermatologist. He filed a request with OHIP. After waiting for months, I finally was told by the clinic ...
Looking for Neurologist in California
- By TIsabelle · New reply July 17, 2009
- 5 replies
- Hey everyone! I'm looking for a Neurologist in the Southern California/Orange County area who specializes in Neurofibromatosis...anyone know one ...
does anyone know more
- By mumsword · New reply July 3, 2009
- 12 replies
- my son has pseudarthurosis of his tibia does anyone have this too or have had it or knows of anyone that has.....only 8% of ppl with nf1 have this so i'm told ...
anyone from kalamazoo michigan, or just michigan?
- By Josh_B · New reply June 30, 2009
- 9 replies
- i would really like to make some new friends. So if anyone wants to talk to me please do ...
Please Help
- By worriedfriend · New reply June 28, 2009
- 8 replies
- Hello everyone. I'm wondering if anyone had any information on charities that could help a family who is in a very critical financial situation and who's daughter has schwannomatosis. She has had 11 opertations ...
??NF2??
- By CareBear · New reply June 15, 2009
- 3 replies
- I just had jaw surgery I am wired shut and boy I miss solid food.. While I was in the hosp. one of the doctors came in and said So you have NF1 and 2. I gave a look like O.o,.. I Ask.. "Say what ...
tumor
- By indnf45 · New reply May 12, 2009
- 1 reply
- Hi there I have a tumor on my left side above my waist and it is quite large. It is not painful but sometimes can be tender to the touch. I think it needs to be remoed before it causes other health problems ...
hello
- By mmsNF · New reply March 28, 2009
- 3 replies
- does anyone have growths on the back of the head and neck?I have several in this area. Could this be what makes my head feel numb sometimes? I also have them on the botom of my feet and the top of my ...
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