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Welcome to Inspire!
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What Is The Differance Between NF 1 & NF 2
- By Robtygart · New reply yesterday at 11:44 pm
- 5 replies
- I was wondering what the differance is between NF1 and NF2? Thanks Rob ...
Agent Orange Possible Cause of NF1
- By casseyb · New reply yesterday at 11:22 pm
- 16 replies
- I have NF1 and my father was in the Vietnam war. I've done some research on how NF can be caused and in one of the sites I looked at it said that NF1 can be caused by Agent Orange. I went to the US Embassy ...
Unknown Formations
- By casseyb · New reply yesterday at 2:44 pm
- 6 replies
- I'm not exactly sure how to explain this but I'm going to do the best I can with this. So basically we all have bumps but I've noticed a number of "bumps" on my body that don't stick out, its basically ...
Scholarships? - 2010
- By casseyb · New reply yesterday at 11:44 am
- 2 replies
- Is there a scholarship fund for those of us who have NF? I've checked this site for other people who have asked the same question, but I was just wondering if it has changed now for 2010 ...
photo
- By chippie · New reply November 20, 2009
- 6 replies
- how do i transfer a photo from my computer to journal i have had several attempts and the message tells me the adress is wrong , yet it allows me to sighn on for other use such as this computer illitrate ...
Neurofibromatosis
- By Minima64 · New reply November 14, 2009
- 5 replies
- I am a 45 yr old woman living with neurofibromatosis. But I don't know which type it is. I inherited it from my father. My elder brother also got it but my younger sister has no sign of it . I had a few ...
neck tumor due to NF
- By payanannet · New reply November 13, 2009
- 12 replies
- im getting neck surgery on monday for this tumor on my neck can u please have me in your prayers has any one had a tumor in the neck and had it removed ...
arachnoid cyst
- By Ashleysister · New reply November 7, 2009
- 1 reply
- My sister has nf. I am doing some reaserch for her. She has been having constant pain in her head for several months. She has finally been able to have an MRI. She does not go to a neurologist until next ...
42 year old Brother with NF1 and newly diagnosed brain tumor in brain stem
- By Mountain · Posted November 5, 2009
- 0 replies
- Has anyone used Dr. Olivi at Johns Hopkins for a brain tumor? Has anyone had a brain tumor that can recommend a good Neurosurgeon ...
to who is trying to get ssi/ssa
- By janelle- · New reply November 1, 2009
- 41 replies
- to all that have nf1 or nf2 you are able to get ssi and ssa. im on it and only took about 1-2 months to get it. when filling out the app. put down what your disabilty (NF). they will ask you to bring ...
neck surgery
- By payanannet · New reply October 30, 2009
- 2 replies
- ok so i have this huge tumor on my neck for a long time the doctors didnt want to operate because its a dangerus surgery theres a high possibility that i can be on a fedding tube for the rest of my life ...
nerve sheath tumor spine/coxxys
- By lynnea · New reply October 28, 2009
- 2 replies
- Wondering if anyone in Ohio has had nerve sheath tumor/surgery/meds/etc. I go for biopsy Tuesday and am looking for docs that know their stuff. It's near coxxys/spine. Sorry don't know the type yet. Either ...
Help
- By jennsfriend · New reply October 27, 2009
- 6 replies
- My best friend has been living with an extreme case of NF1 &2 her entire life. As a result of the disease she has now got scoliosis and stenosis of her spine. She has had 6 surgeries in the past 10 years ...
ganglioneuroma
- By pj1955 · Posted October 22, 2009
- 0 replies
- My son has been told he has a gangioneuroma in his colon. I have read this can have something to do with NF. Has anybody had this ...
symptoms
- By shoestring · New reply October 21, 2009
- 1 reply
- Are there any skin symptoms of neurofibromotosis ...
tatoos
- By thefeatherstones · New reply October 18, 2009
- 23 replies
- im planing on getting a tattoo has any one had one who is a nf1 suffer and had any problems ...
NF and depression
- By racheladams · New reply September 29, 2009
- 7 replies
- nf and depression could they be related. There does not seem to be a med to help me i been on prozac and lexapro. please i am readyh to fight this depression ...
Sore legs
- By tkdwannabe · New reply September 28, 2009
- 4 replies
- I have really sore legs, achey and full.. when I sit with my legs folded underneath my knees my legs hurt so much. I thought I was very healthy and am not overweight and I can not understand why my legs ...
Tattoo's
- By polarman1952 · New reply September 24, 2009
- 6 replies
- Hi does anyone know if its ok to tattoo over a fibroma ...
Schwannoma (Brachial plexus/axilla)
- By mnmtassano · New reply September 22, 2009
- 2 replies
- I am a 38 year-old mother of 3, I just had my 2nd resection of a Schwannoma nerve tumor from my (r) brachial plexus/axilla in 4 years. I have seen a geneticist & my DNA tests negative for NF & I do not ...
