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Welcome to Inspire!
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neck tumor due to NF
- By payanannet · New reply 7:41 am
- 3 replies
- im getting neck surgery on monday for this tumor on my neck can u please have me in your prayers has any one had a tumor in the neck and had it removed ...
arachnoid cyst
- By Ashleysister · New reply yesterday at 8:51 am
- 1 reply
- My sister has nf. I am doing some reaserch for her. She has been having constant pain in her head for several months. She has finally been able to have an MRI. She does not go to a neurologist until next ...
42 year old Brother with NF1 and newly diagnosed brain tumor in brain stem
- By Mountain · Posted November 5, 2009
- 0 replies
- Has anyone used Dr. Olivi at Johns Hopkins for a brain tumor? Has anyone had a brain tumor that can recommend a good Neurosurgeon ...
to who is trying to get ssi/ssa
- By janelle- · New reply November 1, 2009
- 41 replies
- to all that have nf1 or nf2 you are able to get ssi and ssa. im on it and only took about 1-2 months to get it. when filling out the app. put down what your disabilty (NF). they will ask you to bring ...
neck surgery
- By payanannet · New reply October 30, 2009
- 2 replies
- ok so i have this huge tumor on my neck for a long time the doctors didnt want to operate because its a dangerus surgery theres a high possibility that i can be on a fedding tube for the rest of my life ...
nerve sheath tumor spine/coxxys
- By lynnea · New reply October 28, 2009
- 2 replies
- Wondering if anyone in Ohio has had nerve sheath tumor/surgery/meds/etc. I go for biopsy Tuesday and am looking for docs that know their stuff. It's near coxxys/spine. Sorry don't know the type yet. Either ...
Help
- By jennsfriend · New reply October 27, 2009
- 6 replies
- My best friend has been living with an extreme case of NF1 &2 her entire life. As a result of the disease she has now got scoliosis and stenosis of her spine. She has had 6 surgeries in the past 10 years ...
ganglioneuroma
- By pj1955 · Posted October 22, 2009
- 0 replies
- My son has been told he has a gangioneuroma in his colon. I have read this can have something to do with NF. Has anybody had this ...
symptoms
- By shoestring · New reply October 21, 2009
- 1 reply
- Are there any skin symptoms of neurofibromotosis ...
tatoos
- By thefeatherstones · New reply October 18, 2009
- 23 replies
- im planing on getting a tattoo has any one had one who is a nf1 suffer and had any problems ...
NF and depression
- By racheladams · New reply September 29, 2009
- 7 replies
- nf and depression could they be related. There does not seem to be a med to help me i been on prozac and lexapro. please i am readyh to fight this depression ...
Sore legs
- By tkdwannabe · New reply September 28, 2009
- 4 replies
- I have really sore legs, achey and full.. when I sit with my legs folded underneath my knees my legs hurt so much. I thought I was very healthy and am not overweight and I can not understand why my legs ...
Tattoo's
- By polarman1952 · New reply September 24, 2009
- 6 replies
- Hi does anyone know if its ok to tattoo over a fibroma ...
Schwannoma (Brachial plexus/axilla)
- By mnmtassano · New reply September 22, 2009
- 2 replies
- I am a 38 year-old mother of 3, I just had my 2nd resection of a Schwannoma nerve tumor from my (r) brachial plexus/axilla in 4 years. I have seen a geneticist & my DNA tests negative for NF & I do not ...
help
- By justmesue · New reply September 14, 2009
- 2 replies
- ok here it goes... my mom who has been sick for as long as I can remember... diabetes, heart disease, etc... fibromyalgia was a main diagnosis for her pain... now this year, but has been going on for ...
need to get a new doctor. for my nf, any advice
- By Mandini152 · New reply September 11, 2009
- 2 replies
- my doctor acts like he has no clue whats going on with me ...
Chronic inflammatory demyalating polyneuropathy
- By hildamill4 · Posted September 9, 2009
- 0 replies
- Seems I'm unable to locate anyone with the rare health problem of Chronic inflammatory demyalating polyneuropathy. Can you help me get into a group discussion with the same health problem. Hilda ...
Disibilty questions/ Expremential drugs
- By GSXrreynolds · New reply September 9, 2009
- 5 replies
- Alright. I'm 19 years old. I am working. But it's really hard for me to work. I have several bumps close to my spine, and the back of my head. It causes me to have twitches at random times, leg pains ...
Google Crome
- By anthony204 · New reply September 7, 2009
- 6 replies
- Has anyone downloaded this? Is it a good idea or a mistake? What is your experience ...
need advice, might need surgery
- By Mandini152 · New reply September 5, 2009
- 2 replies
- hi im mandi and am 23 i have nf not sure if its 1 or 2 but i recently found a tumor about the size a maybe golf ball maybe bigger on the back of my leg and it is very close to the back of my knee like ...
