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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Recommended discussions
Removal of NF Tumors
- By reeny97 · Posted July 20, 2008
- In Living with NF1 · 6 recommendations
- I am going to NYC tomorrow to meet with Dr. Weinberg a plastic surgeon who removes NF tumors through a process called electro-desiccation. He can remove hundreds of tumors at time. My surgery is on Tuesday ...
to who is trying to get ssi/ssa
wondering on location of everyone
- By Sheleena · Posted July 27, 2009
- In Living with NF1 · 4 recommendations
- hey guys just wondered where everyone was from. I'm from Tennessee and have yet to meet anyone (other than my son) who has NF. I didn't even know what NF was until the doctors said that he had it. No ...
Anyone in Minnesota?
NF 1 tumors next to spine
- By pamamal · Posted August 27, 2009
- In Living with NF1 · 3 recommendations
- I was 5 yrd old when my parens found out. my dad ahd it also. i am now 40 and my 2 out 3 children have it also. I have a6.3 cm x 5.5 cm tumoe enxt to my spien adding pessure to my nerves and sine causng ...
"The Person Below Me" game
- By KittyLover · Posted August 25, 2009
- In Off-Topic · 3 recommendations
- This is a fun game that is addictive!! Here's how to play. One person will say something, for example, The Person (who posts) Below Me Plays the Cello. Then the next person will answer true or false ...
Latest Treatment for Neurofibromas
- By WayneK · Posted August 20, 2009
- In News, research and advocacy · 3 recommendations
- I was diagnosed with NF 20 years ago; I am 36 years old and suffer from many neurofibromas on my arms, chest, and back. They recently started coming on my face. I heard about CO2 laser treatment to remove ...
Scientists, Doctors anf the like
- By Brown-eyed-girl · Posted July 30, 2009
- In Living with NF2 · 3 recommendations
- Hi there just wondering why is it that the Doctors and everyone in "that" line of work can find medication or what ever to deal with every thing else but NOT NF1/NF2, i mean yeah i am happy that people ...
Tumor Humor
- By guilty_spork · Posted June 20, 2009
- In Living with NF1 · 3 recommendations
- NF shouldnt define us and we shouldnt miss an opertunity to laugh to ouselves. I look like a troll with a big misshapen torso and spindly arms and legs. Somone told me I look like a gumdrop with praying ...
Trouble Sleeping
- By dragonfly1980 · Posted April 21, 2009
- In Living with NF1 · 3 recommendations
- I have NF 1 and as far back as I can remeber I have always had a hard time sleeping. I have a hard time falling a sleep and when I do get to sleep I cant stay a sleep. I'm a very tired all time, I always ...
N F and tattoos
- By carolinabill · Posted March 29, 2009
- In Living with NF1 · 3 recommendations
- has any one had pain or trouble with tattoos about 1 1/2year ago i got a tattoo on my left upper arm in memerie of my mom during the time it was being done the guy asked me about the bumps i told him ...
Ghostwriter passed away this morning...
- By seesnow · Posted March 9, 2009
- In Living with NF2 · 3 recommendations
- Michael passed away this morning. I know no details at this time. His mom called me about 15 minutes ago and was in the ER. She said he had passed away about an hour earlier. She said she would call me ...
RELATIONSHIPS
- By leonaLONDON · Posted January 18, 2009
- In Living with NF1 · 3 recommendations
- I read a lot of entries and know that many people that suffer from NF don't let it distroy their social life. I am a 33 year old women, and it as totally controlled mine. I am so self consious about what ...
I don't feel pretty for my husband anymore
- By BunnyMom · Posted September 30, 2008
- In Living with NF1 · 3 recommendations
- I am 9 months pregnant and of course increase of NF as appeared all over my body plus other unusual growths. I just don't feel pretty anymore for my husband. I also seen a decrease of love and affection ...
clogged throat feeling...
The struggle so far...
- By guilty_spork · Posted November 13, 2009
- In Living with NF1 · 2 recommendations
- With the crusade atmosphere of late, I thought I'd take a minute to get back to why I'm really here on the site. Finally, after years of pushing and pleading and going from doc to doc, I found a doc who ...
HEAD ACHES AND NUMBNESS AND TINGLING
- By pjkd · Posted November 3, 2009
- In Living with NF1 · 2 recommendations
- Does any one ever get the head aches and numbness and tingling in there hands and legs. When I get head aches it feels like my head it going to pop off. The other I could not pick up my cell phone my ...
GHOST
When did you get dignosed with NF ?
- By xxpearlkellyxx · Posted October 14, 2009
- In Newly diagnosed with NF1 · 2 recommendations
- When did you get dignosed with NF ? xxx ...
Think Positive
- By Basenji53 · Posted October 10, 2009
- In Living with NF1 · 2 recommendations
- I want everyone with NF or who has a loved one with NF to think positive. People with NF can lead perfectly normal lives. I am 56 years old, married and have a successful career. I also have thousands ...
