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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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New
Can't rember
- By Liz32 · Posted 9:05 am
- Discussion in Living with NF1 · 2 replies
- A while ago there was a discussion on a cream that help with fibromas and it begn with the letter A. Dose any ony rember what the name is ...
Support
- By jerecare · Posted 8:06 am
- Journal · 0 replies
- I've been accused of being unsupportive. I think it was an unfair accusation, so I want you to tell me how YOU like support and encouragement. Some people might like more hand holding. Virtual hugs. Nothing ...
Ngo oiy ney a, Mahal kita, Saya cinta padamu, Aishiteru, Sarang Heyo
- By jerecare · Posted 7:49 am
- Discussion in Living with NF2 · 2 replies
- Are there any Asian Americans on here with nf2? African Americans (I did notice one photo I believe)? Native American? I love to meet&greet with others of other heritages ...
Speach
- By mk74tom · Posted 12:18 am
- Discussion in Living with NF1 · 0 replies
- I always had a speach problem with sluring. But I noticed lately I am sluring a lot more and starting to studder and repeat simple words. I know some of the slurng is due to location of new tumors in ...
neck tumor due to NF
- By payanannet · Posted yesterday at 10:42 pm
- Discussion in Help desk · 3 replies
- im getting neck surgery on monday for this tumor on my neck can u please have me in your prayers has any one had a tumor in the neck and had it removed ...
NF Symposiums - is anyone else frustrated?
- By wpcooper · Posted yesterday at 8:09 pm
- Discussion in Living with NF1 · 2 replies
- Hello: I just wanted to put something out there I was curious about. I have gone to a few of these symposiums which are usually held at hospitals. I went to one in the bay area a few years back and then ...
Disability
- By gigglebox · Posted yesterday at 7:52 pm
- Journal · 4 replies
- I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...
What's your outlet? Part Deux
Neuromas under the nail
- By debcal · Posted yesterday at 4:19 pm
- Discussion in Living with NF1 · 2 replies
- Hello Everyone: I was wondering if anyone has had experience with their neuromas growing under their nails. My ortho hand doc seems to think that is one of the reasons for the severe pain that I have ...
in lieu of medicine
- By jerecare · Posted yesterday at 4:07 pm
- Journal · 7 replies
- Orange juice was my elixir of choice for a long time. We had to get the off-brand kind to save a few pennies, but it wasn't that good. Usually I will eat/drink anything (except alcoholic), but I've become ...
I'm a murderer! :P
- By KittyLover · Posted yesterday at 2:55 pm
- Discussion in Off-Topic · 10 replies
- If you've read my profile, you'll know that I love spiders. Yes - spiders. When I find them indoors, I will relocate them to a more suitable location - outside or, in the colder months, to our heated/attached ...
how can i keep my identity as a person? or, how have you?
- By stillaperson004 · Posted yesterday at 2:36 pm
- Discussion in Newly diagnosed with NF2 · 11 replies
- hello, when i was 13 i was found out to have nf2. i lost my hearing and ability to move my face from the surgeries. i am now 18 and no one treats me like a person. my own parents label me "the deaf person ...
facebook..
- By strawberry_chick33 · Posted yesterday at 2:29 pm
- Discussion in Off-Topic · 8 replies
- I was just wondering if anyone here has a facebook. If you do then let me know and we can try to become friends. I have never been able to talk to other people with NF. It would be nice to try and talk ...
Help
- By gagelonely · Posted yesterday at 12:48 pm
- Journal · 0 replies
- So i am worried about my wife she has nf, a huge arachnoid cyst in her brain and hydrocephlus She has constant headaches and i think she may have some other probs too. The docs we've seen are just writing ...
Where is everyone from?
- By gagelonely · Posted yesterday at 12:44 pm
- Journal · 15 replies
- Just curious ...
HEY!!!!!!!!!!!!
- By gagelonely · Posted yesterday at 12:41 pm
- Journal · 5 replies
- How is everyone today ...
MUST READ!!!!!!!!
- By gagelonely · Posted yesterday at 12:31 pm
- Journal · 3 replies
- I don't have nf but my wife does. She is lhe love of my life, and i would do anything for her. I am so happy she has found this site. It has been so great for her. She can vent about docotors who don't ...
What's your outlet?
- By noangel1987 · Posted yesterday at 11:03 am
- Discussion in Off-Topic · 12 replies
- Hey everyone! Well last night I was over at a friend's house and things got kind of heated between him and his teenage daughter. As a friend I gave him advice on how to calm down and find something he ...
Happy to have found Inspire
- By carly4 · Posted yesterday at 11:03 am
- Journal · 3 replies
- I have yet to actually meet anyone who even knows what NF is let alone information about it . I find it very hard to explain the condition to people- so i just dont even try. Thanks again for all the ...
Let's try again
- By jerecare · Posted yesterday at 10:41 am
- Journal · 7 replies
- There are some benefits of growing up pentecostal that prepared me for having HAD nf. For a time, I got sucked into the charismatic, specifically Word of Faith, movement. I am more discerning now. His ...
