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- By HeathBar · Posted 1:10 pm
- Discussion in Newly diagnosed with NF1 · 1 reply
- I'm seeing a geneticist in a few weeks and was just wondering what types of questions I should ask him. Apparently he is very knowledgeable about nf, but I don't really know what I can ask him that I ...
- By HeathBar · Posted 1:05 pm
- Journal · 2 replies
- I havn't said anything to anybody yet because I don't want to scare anyone. My brother is going to have a baby in July. I am the only one in my family known to have NF, but it is a somewhat mild case ...
- By ashernietiffany · Posted yesterday at 10:43 pm
- Discussion in NF1 and children · 1 reply
- can anyone help me with any ideas ihave three kids and they all also got nf1 my ex hubby blaming it on me but he knew long before we had kids what the changes were with each one i tried to tell him it ...
- By Jonesgirl · Posted yesterday at 10:37 pm
- Discussion in NF1 and children · 1 reply
- I am unsure at what age to tell my daughter about her NF1. I have a complete honesty policy with her but I can't imagine how to explain this condition to her as she is only 8. I would appreciate any insight/experience ...
- By C_S_NFPARENT · Posted yesterday at 4:21 pm
- Journal · 0 replies
- my son just started taking strattera for adhd. it is helping as far as reading and school. i was wondering if anyone knew if crying at the drop of a hat was a side affect. he has been doing that alot ...
- By cami1967 · Posted yesterday at 3:05 pm
- Discussion in Living with NF1 · 0 replies
- Just wanted to post this link. I have seen a few discussions about people not being able to find someone who will remove tumors. I know there are at least a few people on the ctf.org site that have gone ...
- By louisianalannie · Posted yesterday at 9:17 am
- Journal · 3 replies
- bretts m r i came back normal his tumor hasnt grown since his last m r i.......now for me i went do a blood test and my red blood count is real low and so are my platelets does any one else have a problem ...
- By Cara11 · Posted yesterday at 6:15 am
- Discussion in NF1 and pregnancy · 5 replies
- hello everyone, I'm new here. i'm a 31 year old female who was diagnosed with nf1 about 3 years ago. i'd had cafe ole spots on my body forever but never paid much attention to them thinking they were ...
- By grannyj · Posted November 29, 2008
- Discussion in Living with NF1 · 2 replies
- Recently my 5 year old grand son was about to lose his first tooth. He has some developmental difficulties, and was scared about it coming out. So I sat down with him and looked through my old picture ...
- By Duke67 · Posted November 29, 2008
- Journal · 0 replies
- i just came to this site by just looking around on here on nf and i am going try do a journal on a weekly basics here and learn more on this and others and show my support ...
- By oatmeal · Posted November 29, 2008
- Journal · 0 replies
- I was wondering if any one has gone to the CTF clinic for adults with NF1 in CO. I am an adult and have never been to one. Is it a good idea to go there instead of a regular DR. that does not know about ...
- By kala · Posted November 28, 2008
- Journal · 4 replies
- I'm out of hospital after having my 14th operation. this one was easier than the others thank god, the other ones were on my spine and this one was on my shoulder so there was no learning to walk again ...
- By Tlam72 · Posted November 27, 2008
- Discussion in Living with NF1 · 0 replies
- Can you get the medical card for nf1 We have ins but it is 80 20 Hubby and i both work but i just do not have the 20 And that makes me not want to go to the doctor . Just would like them to pick up the ...
- By grannyj · Posted November 27, 2008
- Discussion in Living with NF1 · 5 replies
- I haven't been able to see a doctor with NF knowledge on a regular basis. I was diagonsed 25 years ago by an internal specialist I was seeing for something not related to NF. He told me what it was. My ...
- By KAM111 · Posted November 27, 2008
- Discussion in Living with NF2 · 3 replies
- Hi...I have lived with NF2 for 4 years now. I was just wondering if there was anybody withen the ages 15-19 that have NF2? fill free to post here no matter what age or type of NF you have!!! KAM111 ...
- By KayCe234 · Posted November 27, 2008
- Journal · 1 reply
- I just want you to know that I am thinking of you and Ron today. I'm so Thankful that I have been given the opportunity to know you and that I was blessed to have known Sam. I know today will be difficult ...
- By oatmeal · Posted November 27, 2008
- Discussion in Living with NF1 · 17 replies
- I have very dark circles under my eyes. was wondering if any one else with NF does. My dad also had them and he had NF also ...
- By JPC · Posted November 27, 2008
- Discussion in Off-Topic · 2 replies
- This is wishing everybody a very Happy Thanksgiving. Enjoy and cherish today with family and friends ...
- By Aussierock · Posted November 27, 2008
- Discussion in Living with NF1 · 5 replies
- Does anybody have any ideas how to relax Something i have never been really able to do Dont know if its an Nf trait..probally though!! Im Always Tense Help ...
- By shellbell4045 · Posted November 26, 2008
- Discussion in NF1 and children · 4 replies
- Im in school right now studing to be a medical assistant, and for part of our grade, we had to do a report on a disease, so I figured why not do one with a disease that I am familiar with. Wow, I was ...
