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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
Pain
- By Pepsigirl · Posted 7:44 am
- 0 replies
- i have been suffering with leg and back pain for a long time. could this be related to NF. also my speech is not very good. I slur words, and sometimes my sentences come out all jumbled. people at work ...
Joint pain
- By NPAIN24-7 · New reply 6:20 am
- 3 replies
- Does any know if joint pain is related to NF1. Doc has rthritic done all these blood test for arthritis and they all came back normal. x-rays show some arthrtic changes. I have a very large bone spur ...
Looking for people to chat with
- By Krissy_49347 · New reply yesterday at 6:36 pm
- 5 replies
- I am 30 years old and i have NF1. And i work with Children with specail needs and i also work at meijers. And i am looking for people that have NF also to chat with. I have yahoo messenger if anyone cares ...
I have NF1
- By peteadams · New reply yesterday at 1:53 pm
- 5 replies
- I have NF1, some of my friends think it is a disease but if it was a disease it would be contiguous. I have not had many problems with my NF, except maybe with my right knee. I have had several corrective ...
Disability
- By gigglebox · New reply yesterday at 1:54 am
- 17 replies
- I am so so excited!!! After a year of waiting i got approved. I didn't even get the ususl first denial. I needed the insurance so bad. Now maby i can get to a doc that can be more help. Or will it be ...
I never met a doctor
- By jerecare · New reply November 19, 2009
- 13 replies
- I never met a doctor who I really liked and respected, at least initially. There's an issue of forgiveness that comes in later. That is for another journal entry. I never met a doctor who didn't act god-like ...
first neurology apt on 30th
- By Katie85 · New reply November 19, 2009
- 2 replies
- i am very nervous for my first apt. i am kinda scared a bit, i have been in pain for the last year so it is about time to figure out what is causing me so much pain. I can count at least ten tumors. was ...
Hi everyone
- By nf1man · New reply November 19, 2009
- 3 replies
- Well let me tell you a little about me.I have nf1 and it pretty much put a big stop sign on my life.This has made me short skinny and a over sized head.I can hardly read and write because of this.About ...
Removal of Neurofibromas
- By CRUEHD · New reply November 18, 2009
- 4 replies
- I just had 3 bumps removed from my arm today. This is the first time I actually saw then entire process from start to finish. It was pretty wild. After having major surgery last year, I never knew the ...
Beliefs
- By jerecare · New reply November 18, 2009
- 2 replies
- Many of you might have the impression that I have no problems, life is hunky-dory from a wordly perspective. That is not the case. There are many things I wrestle with, both physical and mental. I don't ...
Dr Appoinyment
- By E-Hagen · Posted November 18, 2009
- 0 replies
- Had my Dr appointment in Indianapolis at I.U. Hospital,it was not very good news,discovered a new tumor under my sternum about the size of a patato,have been experiencing trouble breathing a little and ...
natashas research
- By joslyn · Posted November 18, 2009
- 0 replies
- natasha as to go hospital on tusday for blood test,its for research into nf1,are doctor first gave natasha medication and sent her home,we moved back to our home town 2 years later and i took her to a ...
EEOC and Discrimination
- By FLiceman · Posted November 18, 2009
- 0 replies
- I contacted the EEOC in September, and due to heavy volume, they called me back last week. I was interviewed recently, and they will proceed with my case. Very unique, as I had to go over the nature of ...
me n my son
- By mark_elvis_hardacre · Posted November 17, 2009
- 0 replies
- HI My name is mark n im 20 years old i av nf n my son who is 1 has jus recently been diagnosed with this 2. does any1 else know what complications come with this as i am scared for little boy, if so please ...
I just dont know what to do
- By ButterFlyGirl86 · Posted November 17, 2009
- 0 replies
- I know its going to happen 1 or 2 times a year and I was thinking That well it has not happen this year yet that i am going to be good and its not going to happen. I am talking about my Antoimmune hepatitis ...
Inspiring Scriptures
- By jerecare · New reply November 17, 2009
- 17 replies
- I'll start off: Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me. Psalm 23:4 Let Us Run With Perseverance ...
macrobiotic cure???!!
- By KATIELEEN17 · New reply November 17, 2009
- 3 replies
- Has anyone tries the macrobiotic diet?? My surgey didn't work and my eye doctor recommended it. I hear it has been know to cure many things including tumors and cancer ...
Hope for the future
- By Alpacha-pal · New reply November 16, 2009
- 4 replies
- I would like very much to be a part o research that will find a cure or at lest relive some of the pain that NF causes. For myself, my children, grandchildren and others like me. I have been given that ...
how to tell 7 year old he has nf
- By carly4 · New reply November 16, 2009
- 17 replies
- i have been ignoring my sons conditon since he was dianosed at 3 mts[deniaL?] He is now a second grader and is having some problems-speech,handwritting,reading- i think its time for me to deal with this ...
Testament
- By jerecare · Posted November 15, 2009
- 0 replies
- My ankle hurt so bad I was up all night. My wife prayed and loved me and massaged me. Then my hip started hurting something awful. Felt like it was dislocated. Still I went to go hand out food boxes ...
