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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
surgery
- By Mandini152 · Posted September 6, 2009
- 6 replies
- i am so scared of haveing surgery on my leg ...
NF1
- By jared1978 · Posted September 2, 2009
- 26 replies
- I was recently diagnosed with neurofibroma(NF1). I have tumors that are located on my spine compressing the C1/C2 area, As well as C5/C6. I consulted with the neuro surgeon today. I do need surgery, which ...
I hate my body and the way i look.
- By Itoro24 · Posted September 1, 2009
- 8 replies
- With everyday that i wake up i find my self jus wishin dat i never did. I jus cant stand havin to wake up and lookin at my self in da mirror. When i look in da mirror all i see is tumors it sux dat i ...
How can we help research?
- By hopeful0712 · Posted August 31, 2009
- 1 reply
- Hi everybody, I found this info. I had sent to myself a while ago, I want to share it and maybe, someday in our lifetime we'll see a cure or at least treatment. I am grateful I have led a relatively normal ...
More pain wat else is new
- By Itoro24 · Posted August 31, 2009
- 7 replies
- Well its da beinging of my second week at a new school and in a new environment. Today i woke up wit the same new pain dat ive never had. i mean im used to havin pain but this one is ridiculous i mean ...
a little poetry
- By vandyson · Posted August 30, 2009
- 7 replies
- It's ok to look at me I'm sure you're wondering what could it be Won't you please take my hand because I'd be so happy to help you understand Neurofibromatosis is its name It is a condition that's serious ...
Its getting worse i dont know what to do.
- By Itoro24 · Posted August 30, 2009
- 3 replies
- I didnt think that my pains can get worse but it did. I guess you can say its been getting worse for like a week or two. I mean i've been had pain since i was diagnose at 4. Now im 24 and the pain is ...
Elbow Surgery
- By ncbabe · Posted August 26, 2009
- 0 replies
- I just had surgery on my right elbow, for a pinched nerve. But when the doctor was doing the surgery, he said that he has never seen a nerve as tight as mine was in my elbow.. That was a week ago, and ...
I'm starting to freak out!!!
- By Anjee_w · Posted August 25, 2009
- 9 replies
- (WARNING: I'M JUST VENTIING) Court is tomorrow and I'm so nervous and scared. It has caused me so much stress and depression. It's been 5 years total (3 years this round). I'm so tired of waiting.. SSI ...
NF2 mom
- By angelab1975 · Posted August 24, 2009
- 5 replies
- I am really new to Neurofibromatosis. My step daughter has the disease. It angers and saddens me at times but I am encouraged by information, just knowing more...which is pretty much anything right now ...
Hi everyone
- By nf1man · Posted August 22, 2009
- 3 replies
- Well let me tell you a little about me.I have nf1 and it pretty much put a big stop sign on my life.This has made me short skinny and a over sized head.I can hardly read and write because of this.About ...
nf tummors that can cause breathing problems
- By nickiee · Posted August 20, 2009
- 1 reply
- Has anyone heard of someone having nf tumors around the lung area that could cause copd like symthoms ...
Cleaning the bathroom
- By NikkiNF1 · Posted August 20, 2009
- 4 replies
- I woke up this morning convinced today was the day i'd hire someone from Craigslist to come help me clean my home and do small things around the house. I was in a ton of pain when I awoke and just an ...
A little bit of good news
- By momo3a · Posted August 18, 2009
- 4 replies
- Our daughter's most recent MRI showed slight growth in her left optic glioma, but her vision is unchanged and normal. The change in size was so slight, we almost opted for an every 6 month MRI schedule ...
Hello everyone
- By nellena · Posted August 14, 2009
- 7 replies
- So glad I found a site that wasn't years old. I am a mother of two children ages 4 and 6 and am scared to death. If there isn't one thing in life there is another. I guess I need someone to talk to. I ...
I'm a freak
- By swtlilwamom · Posted August 14, 2009
- 20 replies
- Just a simple poem I thought of today I AM A FREAK You stare and point, at something new. If I am a freak, than so are you. It's ok that you dont understand But I'm just like you, with bumps on my neck ...
Oh No I'm bored again......
- By Anjee_w · Posted August 11, 2009
- 1 reply
- Ok so since I don't do much of anything. I got this new software for my computer. Corel paint shop pro.... Well I'm looking for people to entertain my creativity. I know it sounds weird ( I promise I'm ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Crazy
- By Mommy2kodantj · Posted August 9, 2009
- 0 replies
- So my youngest is so amazing. He gets chemo yet he loves going to it. You cant tell anything is wrong just looking at him. My other son who is a year older then him is a great help. Hes still only 5 but ...
About Me
- By kelrog · Posted August 8, 2009
- 9 replies
- Hi! My name is Kelly. I am 24 years Fri,. I have NF. My mom has it too. I got it from her. I think I have NF1. I have never seen a doctor for it. My mom always told me it wasn't a big deal. As I get older ...
