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Journals
NF' ERS IN THE NY METRO AREA
- By CRUEHD · Posted September 22, 2009
- 0 replies
- Hi All, I live in NYC. I think it would be cool, if we can all get together once a month to meet and hang out. For those that live in NJ, CT, PA or those willing to drive within reasonable driving distance ...
Hell's Kitchen
- By guilty_spork · Posted September 22, 2009
- 9 replies
- Tonight is the 2 hour special. Sort-of a way of making up for no show last week, I guess. I have become rediculously addicted to HK. I'm a compulsive eater/food addict anyway so there is somthing about ...
Holiday
- By polarman1952 · Posted September 21, 2009
- 4 replies
- Well here i am looking forward to going to Las Vegas in 5 days so all i can say is roll on Sunday 27th ...
My Dear Friend
- By TobiasLee-KS · Posted September 21, 2009
- 0 replies
- God so loved "My Dear Friend" that He gave His one and only Son that if "My Dear Friend" believes in Him, "My Dear Friend" shall not perish but have eternal life. God did not send His Son to condemn "My ...
promises, promises
- By sadderstar · Posted September 21, 2009
- 0 replies
- I am actually only writing this entry because I have been a member for forever and a day. I got tired of seeing that whole "7 out of 8 completed!" on the right hand side of my browser screen. I am always ...
need information about NF
- By mariano85 · Posted September 21, 2009
- 2 replies
- hi, im mariano, im 23, from Peru, i don't know to much about NF, i was diagnosticated with NF when i was 14, i want to know if there is a range of age were the tumors grows, please help me with this ...
healing nicley
- By coco76 · Posted September 20, 2009
- 1 reply
- My surgery is healing very well. Hopefully I can have the tumors in my mouth removed this month ...
Mtnguru's quote of the day
- By Mtnguru · Posted September 19, 2009
- 0 replies
- I have a room all to myself; it is nature. Henry David Thoreau ...
Hey everyone....Im new here
- By jrlogue · Posted September 19, 2009
- 2 replies
- My name is Jessica I am 23 years old I was diagnosed with NF 1 when I was 11 years old. I have a beautiful 1 year old son, thankfully he does not have NF. I am engaged to a wonderful man who excepts me ...
Not able to talk to my husband
- By Garliclemon · Posted September 18, 2009
- 0 replies
- I have always suspected I have NF, My mother does and so did my sister. I have large cafe lait spots all over, have the freckling at the armpit and groin and have had skin tags removed. Most recently ...
Mtnguru's quote of the day
- By Mtnguru · Posted September 17, 2009
- 2 replies
- Believe that life is worth living and your belief will help create the fact. William James ...
SCIENCE DIRECTOR
- By PAOLAPAEZMD · Posted September 17, 2009
- 2 replies
- HELLO I´M INTERESTED TO KNOW WHO IS THE SCIENTIST DIRECTOR OF THE MEDICAL STAFF AT NEUROFIBROMATOSIS INC...THANK YOU ...
scolosis
- By blinnie · Posted September 16, 2009
- 2 replies
- hi there i was 14 when i was told that i had scolosis i have had the operation and i have had a rod insterted into my spine if i didnt have this operation i would be in a wheel chair, i recently found ...
what do i do?
- By a_powerfully_mind · Posted September 16, 2009
- 19 replies
- i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...
Why I cant have kids..
- By ButterFlyGirl86 · Posted September 15, 2009
- 2 replies
- I have Cirrhosis of the liver and the drs dont know why and how I got it. They found it when I was 15 or 16. I when to Tn and seen a Genetic dr. She told me it would be too much for my body and as the ...
why me
- By ButterFlyGirl86 · Posted September 14, 2009
- 11 replies
- I dont get why this has to happen to me, All my life I had to deal with this I wish I dont have this I am 23 now and Married, There is just so much I want to do with my life but I dont becaues of this ...
I'm afraid to let to anyone come close to me.
- By Itoro24 · Posted September 13, 2009
- 22 replies
- I've never been in a real relationship before, i've never ever been in love before. In fact i dont even know how it feels. Im afraid to let any guy come into my life because once i tell him about my NF ...
Skin is crawling
- By Haggis_Dave · Posted September 11, 2009
- 6 replies
- Does anyone ever get a feeling like your skin is crawling or something is crawling about underneath your skin, this noramlly happens with nerve pain or when you get the little shocks all over your body ...
NEW TO THIS ANYADSISE
- By JohnGia · Posted September 8, 2009
- 1 reply
- i'AM sory HAVE TO SAY THIS but " your family is totally unsupportive of your nf2 and anyone living with nf1,nf2,surgery,scmmoiius (my is nf1) can be a living nightmire surgerys. ect.. ect. ect the pain ...
Doctor App. 9-09-09
- By Mandini152 · Posted September 8, 2009
- 2 replies
- so i go to my neroligous wed. for my yearly check up and to talk about possible surgery on my tumor on my leg also to get a doctors note for work so i can sit when it starts to hurt from standing for ...
