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Journals
NF1 sugrgery Monday Oct5th
- By jared1978 · Posted October 3, 2009
- 29 replies
- I will be having my surgery this monday. Its going to be 6hrs long. Im a little scared, but also relieved that I'll finally have these tumors out of me. I will be in this hospital proly for the entire ...
I dont know why I cant get on this that much
- By ButterFlyGirl86 · Posted October 3, 2009
- 0 replies
- I dont know why but when i try to get on here something pops up about the cookies i dont know why is happens but its just not on my computer it does it on my moms too. something about this web sites not ...
10/3
- By KATIELEEN17 · Posted October 3, 2009
- 2 replies
- bUSY DAY! Church, then toys for tots meeting with mom and girls night after! Im hoping I can be a little nicer to my mom (considering i was really short with her after yesterdays disappointing appt ...
TODAY/surgery
- By KATIELEEN17 · Posted October 3, 2009
- 7 replies
- today was a tough day. I went to the eye doctor because my vision in my right eye is blurry. I was hoping it had nothing to do with the acoustic neuromas, but who am I kidding. They have completely taken ...
New Baby
- By rivergrl21 · Posted October 1, 2009
- 13 replies
- Well. I haven't written anything until today in the journal as many days I find it difficult to breath even. Daniel is growing so fast that I already miss him being so young and yet enjoy his growth into ...
Mtnguru's quote of the day
- By Mtnguru · Posted September 30, 2009
- 0 replies
- It takes a lot of courage to release the familiar and seemingly secure, to embrace the new. But there is no real security in what is no longer meaningful. There is more security in the adventurous and ...
Normal??
- By myasmommy · Posted September 30, 2009
- 6 replies
- I wake up every morning still so tired as if I didn't sleep at all wondering what is going to hurt when I get out of the bed. I am off the predisone but still don't feel good. I am so tired all of the ...
neurofibromatosis
- By pdlee · Posted September 29, 2009
- 1 reply
- The bottom of the left foot near the toe area. I have had several neurofibro tumors removed internally, one in the shoulder, back, and ankle. I am now very aware of the symptoms. Has anyone ever had one ...
One of my favorite quotes
- By TIsabelle · Posted September 29, 2009
- 0 replies
- Just one of my favorite quotes. i felt like sharing: "This is what you shall do: Love the earth and sun and the animals, despise riches, give alms to every one that asks, stand up for the stupid and crazy ...
Another Day
- By suzyq64 · Posted September 27, 2009
- 1 reply
- Yesterday was a good day for me.I cooked breakfast,did dishes and even did some laundry.I know it sounds all like work but it sure feels good to feel productive. Sure I rest inbetween each one and it ...
plexiform neurofibroma
- By Sumatra · Posted September 25, 2009
- 7 replies
- I haven't seen much on here about plexiform neurfibromas. I have a large one that is located between my ribs and skin and wraps around my torso. Does anyone else have these, and what are some ways to ...
damn headaches
- By TIsabelle · Posted September 25, 2009
- 16 replies
- you all know what i mean ...
Mtnguru's quote of the day
- By Mtnguru · Posted September 25, 2009
- 0 replies
- without darkness Nothing comes to birth, As without light Nothing flowers. -May Sarton ...
My journey so far
- By suzyq64 · Posted September 25, 2009
- 0 replies
- So I started all the NF2 business in June of 2009.Before that I had no signs of anything being wrong. I got real super dizzy one day and a bad headache and that was very unusal for me.I went to the ER ...
NF and relationships
- By Plushie · Posted September 24, 2009
- 3 replies
- I was wondering how I can explain NF to my bf, he knows a little about it from me, research and a mutual friend but i dont think he fully understands it ...
Thyroidism
- By TwylaWarner · Posted September 23, 2009
- 2 replies
- Ok so i have had some trouble with my thyroid, bloodwork showed my tsh levels were really low.. then when i had the blood work done agian it was normal. I am just wondering if this is linked to my nf ...
Update
- By Anjee_w · Posted September 23, 2009
- 2 replies
- So sorry I've been gone. When I thought my computer was all better it got sick again...lol... Now I have to wait for a Windows setup disk in snail mail to be able to get to a real computer. Well court ...
Mtnguru's quote of the day
- By Mtnguru · Posted September 23, 2009
- 0 replies
- Life's challenges are not supposed to paralyze you, they're supposed to help you discover who you are. -Bernice Johnson Reagon ...
pics on here..??
- By ButterFlyGirl86 · Posted September 22, 2009
- 3 replies
- i have a ? about this web site can you only add 1 pic up and thats it.??? thanks ...
So Happy
- By ButterFlyGirl86 · Posted September 22, 2009
- 2 replies
- I am so happy today I had to go to the eye dr today and he told me everything looked good no tumors in my eyes or anything, my prusher looked good i just have to keep it down. but he did see some prusher ...
