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Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Journals
Bumps on head
- By uraatlarge · Posted October 21, 2009
- 9 replies
- I have a few bumps on my head. Should i be worried? I don't know but it might be the reason why i get such constant headches all the time ...
Blah
- By Tank · Posted October 21, 2009
- 7 replies
- I really wish there was a NF doctor closer then Ann Arbor, Its a ways for us to travel. Our Income is 269.00 a month, 130.00 for rent, 80 for car insurance. My husband has applied for jobs from South ...
Rehab at cedars sinai
- By jared1978 · Posted October 16, 2009
- 9 replies
- Last week, Monday October the 5th i had my surgery and went well:) I'm in the rehab unit!!!! I've been here since sunday and will be here till oct 23rd. I'll still be doing outpatient therapy afterwards ...
There is Light at the end of the tunnel
- By MyJosie · Posted October 15, 2009
- 1 reply
- Well, we applied Josie for Disability in July, and it took until the end of August for a response. The response was that no one was responding to requests for documentation... So, I went around and collected ...
leg pains in winter
- By krissy372 · Posted October 14, 2009
- 6 replies
- Hello, i am 20 years old and for years i have had leg pains during the winter that keep me up at night. I have tried heating pads and warm baths but it doesn't ever help. I thought it might be that i ...
Pills Seizures
- By ankstar1 · Posted October 14, 2009
- 0 replies
- Im not one to generally post on these blogs but due to recent events I feel I have to just so no one ever experiances anything remotely close to what I did. Over the past few years I've seen my fair share ...
hi everyone, my first post
- By clak · Posted October 13, 2009
- 10 replies
- my daughter has nf. she is so frustrated because we have no nf specialists in n.d. she has a very small brain tumor, a tumor behind her ear,that pulls at her nerves, and others here and there on her body ...
uncle denny
- By uncledenny · Posted October 13, 2009
- 3 replies
- My uncle had NF most of his life. He lived to age 58 I believe. He developed it when he was maybe 5 or 6? In the end he looked like the elephant man. I never knew there were others out there and he never ...
book living with NF
- By jaykay · Posted October 13, 2009
- 7 replies
- Hi ALL, My daughter as written a book on living with NF in which all her medical doctors and other people involved in her care have kindly wrote something for it too. Kirsty wrote the book after we failed ...
Glomus Tumors
- By hopeful109 · Posted October 13, 2009
- 12 replies
- i have been trying to find others out there that might have these, I along with another family member as well as my 15 yr old son have them, however mine and my sons are the only ones that have pain with ...
NF's Hurt and Pain
- By MysticMIkel · Posted October 13, 2009
- 2 replies
- I've grown so much over the past say 7 years that I am now realizing how much pain there is with NF after a life time of hiding from it all. In all honesty I hurt lots right now. Social Security Disability ...
can anyone help me from USA about Mayo clinic
- By mie · Posted October 12, 2009
- 4 replies
- I´m from Denmark and have 2 tumors in my spine, they are very Complice too operate, bacause off that they won´t operate on me here in Denmark, and says I`ll have to wait and see what happens, but at ...
Is it normal
- By kara62698 · Posted October 11, 2009
- 0 replies
- Well I put Johnathon on risperdall for his ticks and instead off giving him a half that didn't eork of 0.25 I started giving him a whole 0.25 and for a week it worked well and at times his twitches are ...
NEVERSTOPPERS
- By JohnGia · Posted October 10, 2009
- 2 replies
- IS your tumors ON TOP YOUR BACK? MY TUMORS, ARE UNDER THE SKIN, 3 NEED TO be REMOVED BUT DOC, ALL 3 IN VERY BAD SPOTS. ,,,LOL (WONDERFUL LUCK HUH) I'am NF1. but i have a huge on in my right ear canal ...
sick of my body
- By grammy615 · Posted October 9, 2009
- 10 replies
- i can say that i'm sick of my body image. i want something done. i get tired of people looking at me like i'm some kind of monster. i'm not and i'm willing to do most anything to get rid of them. i have ...
Jillian Micheals broke me!
- By NikkiNF1 · Posted October 9, 2009
- 4 replies
- You know how she screams at the contestants on Biggest Loser that she is going to break them well she actually broke me :-) I was working out with the Wii Jillian Micheals ultimate fitness 2009 game running ...
true life
- By theyrethere24 · Posted October 8, 2009
- 1 reply
- true life called today. i dont care if i get on it. just the facty people need to know what we go threw. good luck to anyone that got the good threw ...
looking for info
- By maximelt76 · Posted October 6, 2009
- 5 replies
- doe's anybody know wear N.F oridgenated from.please excuse my spelling ...
Mtv True life called...
- By KATIELEEN17 · Posted October 6, 2009
- 47 replies
- so mtv true life called today...we talked for an gr and a half and they want a video. If they decide to film me they will be here as soon as next week for my surgery. I dont know what to do. only my parent ...
Mentally Challenged With StageIV Lung Cancer
- By NF1Jackie · Posted October 6, 2009
- 7 replies
- My brother of fifty-six was diagnosed with this late stage cancer about two months ago. He has been given eight to twelve weeks to live, that is how bad he is. Norman has lived in a hospital where his ...
