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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
Journal Entries
- By jerecare · Posted November 6, 2009
- 59 replies
- Why do people feel compelled to a journal entry they don't care for? What draws people to read and comment to those topics for which they are offended? Could it really be a sore spot or has questioned ...
how to tell 7 year old he has nf
- By carly4 · Posted November 6, 2009
- 17 replies
- i have been ignoring my sons conditon since he was dianosed at 3 mts[deniaL?] He is now a second grader and is having some problems-speech,handwritting,reading- i think its time for me to deal with this ...
Looking for people to chat with
- By Krissy_49347 · Posted November 5, 2009
- 5 replies
- I am 30 years old and i have NF1. And i work with Children with specail needs and i also work at meijers. And i am looking for people that have NF also to chat with. I have yahoo messenger if anyone cares ...
Standing Tall
- By CareBear · Posted November 4, 2009
- 7 replies
- Funny as it sounds. I like to be tall stand on a chair stand as straight as I can. But there are other ways to stand tall. Growing up the other kids on the street would look to me for advise.. I guess ...
Good News
- By dragonfly1980 · Posted November 4, 2009
- 1 reply
- Well I have been fighting for insurance for many years. I finally got it. It is state insurance but it is insurance. I am so relived. I had to write my congress man but it worked. Just for all of you ...
WORK OUT
- By The-Dreamer · Posted November 4, 2009
- 6 replies
- Yesterday was the day, I started to work-out my exercises yestreday excludes calves abs along my tricepsalso i ran on the treadmill for 35,minutes.today i workout my Triceps,Biceps and a little on my ...
please reply
- By KATIELEEN17 · Posted November 3, 2009
- 4 replies
- it's been a few weeks since my partial resection of my right bilateral acoustic neuroma. I have really bad double vision, I have a very hard time walking,I can't hear out of my right ear (ifs very loud ...
how do you know???
- By purespirit · Posted November 2, 2009
- 4 replies
- how do you know if you have had a seizure???? i know there are different kinds of seizures and not all are shaking and convulsing,, i think i had one yesterday ,, i had this fluttering feeling in my head ...
Wondering
- By Manduh · Posted October 29, 2009
- 4 replies
- My Aunt has NF Type 2, and has had several complications from this, and I am sure that my mother has Type 1, but has not been diganosed.....she will not go to the doctor. I am wondering if I should have ...
Inspire members featured
- By Brian · Posted October 28, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
I Got Great News Why Am I SAD
- By Anjee_w · Posted October 28, 2009
- 21 replies
- I woke up this morning and noticed I had a voice mail message. It was the nurse at my doctors office. The message said ". Your MRI was normal".... That's great! Then why do I feel so sad and confused ...
Jornal Entries
- By TeamKoda · Posted October 27, 2009
- 0 replies
- I blog @ www.ricknvon.blogspot.com ...
Robert goes to Neuro-Optthalmology at NYU
- By MJ0724 · Posted October 27, 2009
- 0 replies
- So today I got a call from Angela Oreko at NYU and she said to call Dr.Foulavand and schedule an ASAP appointment. Robert has been expereiencing double vision from his periprial vision since he was in ...
Living with nf1
- By alicia2408 · Posted October 26, 2009
- 2 replies
- when i was younger i thought why did this happen to me? why im i the only one out of six kids to get it? as i got older i got made fun of called names i would get made fun of the way i walked. sometime ...
Insurance co denied treatment
- By rileyp · Posted October 22, 2009
- 11 replies
- I wonder if anyone has had the same or similar situation and what were they able to do in order to receive treatment. Here is the situation: My husband has MPNST high grade, 2 cancer centers recommended ...
hello
- By kellyjoe · Posted October 21, 2009
- 10 replies
- hello new to site kellyjoe ...
Hope
- By TaniaJ · Posted October 21, 2009
- 7 replies
- My 17 year old daughter Aimee was denied entry to the Navy recently on medical terms because of her NF, though we do have the right to appeal. She had an Opthamologists appointment last week and everything ...
Bumps on head
- By uraatlarge · Posted October 21, 2009
- 9 replies
- I have a few bumps on my head. Should i be worried? I don't know but it might be the reason why i get such constant headches all the time ...
Blah
- By Tank · Posted October 21, 2009
- 7 replies
- I really wish there was a NF doctor closer then Ann Arbor, Its a ways for us to travel. Our Income is 269.00 a month, 130.00 for rent, 80 for car insurance. My husband has applied for jobs from South ...
Rehab at cedars sinai
- By jared1978 · Posted October 16, 2009
- 9 replies
- Last week, Monday October the 5th i had my surgery and went well:) I'm in the rehab unit!!!! I've been here since sunday and will be here till oct 23rd. I'll still be doing outpatient therapy afterwards ...
