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Journals

SomeTimes I just dont know what to do anymore

ButterFlyGirl86
  • By ButterFlyGirl86 · Posted yesterday at 3:29 pm
  • 4 replies
  • I have been thinking alot about why things happen and I know that things happen for a reason we just dont know why it happens at the time. But I would love to know why now. I am only 23 and happly married ...

After Operation

Tank
  • By Tank · Posted February 6, 2010
  • 0 replies
  • Well the incision above my eye finally closed I go back in 6 months so he can correct the scar with some type of laser. I asked about total removal but my doctor had said it would cause severe disfigurement ...

baby girl

luv2teachlttle1s
  • By luv2teachlttle1s · Posted February 6, 2010
  • 9 replies
  • Welcomed my baby girl into the world last night 2/5/10 by emergency c section. 6.5 lbs 18.5 inches ...

Java

jerecare
  • By jerecare · Posted February 4, 2010
  • 14 replies
  • Man!! Java gives me a buzz now. It wasn't always like this. It seems the cheaper the quality of the coffee, the worse it gets. Bordering the psychedelic. Even the smell can incite mental anguish. To borrow ...

I talked to my team leader program manager

countrykp
  • By countrykp · Posted February 2, 2010
  • 1 reply
  • I talked to Jenn yesterday about conversation with NF SW and she was very supportive. She was remarkable. She is a true leader among leaders. She is an inspiration that I can only wish I could be like ...

Baby girl on the way.. due 2/8/10

luv2teachlttle1s
  • By luv2teachlttle1s · Posted January 30, 2010
  • 17 replies
  • I have NF1 and am expecting my first child in Feb. I am very nervous and scared that she will get this disease. :( Please pray that she won't have this disease or any other health problems. Worried about ...

Bad Storm on its way here

ButterFlyGirl86
  • By ButterFlyGirl86 · Posted January 28, 2010
  • 19 replies
  • They are telling me that we are going to being 7 to 8ins of snow tonight and up to sun i just hope its not like it was like last year here, we had now power and water nothing for a week, it was bad. but ...

Mtnguru's quote of the day

Mtnguru
  • By Mtnguru · Posted January 27, 2010
  • 0 replies
  • God Gave Me Nothing I Wanted Swami Vivekananda When I Asked God for Strength He Gave Me Difficult Situations to Face When I Asked God for Brain & Brawn He Gave Me Puzzles in Life to Solve When I Asked ...

helllo

nikki_ph
  • By nikki_ph · Posted January 27, 2010
  • 4 replies
  • hi friends,,,,, just get back from this site ...

2010 checkup

stujo
  • By stujo · Posted January 26, 2010
  • 5 replies
  • January 19 I went to have an MRI but the gas passer wouldn't give me a sedative since I haven't had a physical in the last 30 days. January 20 had a physical with my personal doctor. He thought it was ...

peoples inconsideracy

theyrethere24
  • By theyrethere24 · Posted January 24, 2010
  • 1 reply
  • ya know ive had to deal with the diagnoses. the changes in my life i have to deal with. i am a total music lover. use to love it loud as day. but from the tumars being under the brain certain noises affect ...

In Loving Memory

mommybear1965
  • By mommybear1965 · Posted January 24, 2010
  • 2 replies
  • I am here and doing this in memory of my daughter. Jennifer Lynn Begley. who passed January 10th. 2006 ...

This is my life and welcome to it

Unclesteven
  • By Unclesteven · Posted January 23, 2010
  • 11 replies
  • I was born not hatched way back in 50's yes that long ago ...

Health system.

Stacey1988
  • By Stacey1988 · Posted January 20, 2010
  • 3 replies
  • Just having a rant to get this off my chest. I have a plexi on my brachial plexus. After over a year of being mucked around they finally booked me in for a biopsy. I wasnt to concerned about the pain ...

Letting go after attempts at normalcy fail

NFmomm
  • By NFmomm · Posted January 20, 2010
  • 12 replies
  • I am so sad. Today at my son's doctor's appointment, the doctor told us that my son should not attempt to learn to drive a car. He does not have the reflexes in his legs necessary to do it safely. I guess ...

People in WI who have NF

lockmup
  • By lockmup · Posted January 16, 2010
  • 10 replies
  • Is there anyone out there in WI suffering from NF? If so, reply back. I am looking to start up support group here. Thx ...

Thankful for this place

jsshotter
  • By jsshotter · Posted January 15, 2010
  • 2 replies
  • I wish they had this place twenty years ago.. a little problem with computers. I really needed the support back then ...

Blogging

dbsherri
  • By dbsherri · Posted January 15, 2010
  • 0 replies
  • My blog, NFpain.blogspot.com is a place I talk about pain related issues with NF. If you want me to post something you've written about living with NF, send it to me through this site and I'll post it ...

my mom is my bestfriend

Angiebug92
  • By Angiebug92 · Posted January 13, 2010
  • 2 replies
  • I am the only one in my family with NF in my family. It is very hard to be the only one and the youngest one in the family. Sometimes i feel alone nobody else quite understands. My sister thinks i get ...

looking for information on research

marymax
  • By marymax · Posted January 13, 2010
  • 2 replies
  • hello everyone this is real new to me i've never done this on any website. My family has nf1 and has had it as long as i can find out. my mom just turned 80 years young she has bumps (we call thems bumps ...

Group leaders

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