I woke up this morning and noticed I had a voice mail message. It was the nurse at my doctors office. The message said ". Your MRI was normal".... That's great! Then why do I feel so sad and confused? I don't want there to be anything wrong but I know there is. And for the doctor to say it is normal makes me feel crazy like some how my brain is making all this up and manifesting pain that isn't there. But if that were true and I was that crazy it would of showed up in the MRI.
All I know is I'm in pain it has increased rapidly since the car accident and All the test say I shouldn't be having any problems.
In a sad kind of way I guess I do want them to find something wrong. So I can have justification for the constant headache and back pain... So I can tell my Son why Mommy can't jump on the bed or wrestle... I want there to be something so they can say this is what it is and this is what you can do to help. If it's not from the Accident and it's from the NF having a growth spurt. Then I want them to figure out if that is what it is.
I Have Neurofibromatosis and always will. No matter how much the doctors or anyone else tries to treat me as a normal person. I am not Normal. I don't want to be treated as a normal person. I want to be respected yes but not treated like I am everyone else Because I'm not. I will have medical problems more then the normal person for the rest of my life. I won't try and hide that fact. It's my body and I know there is something wrong.
I have requested the MRI clinic to send me a CD of the images and the report. I'll be getting them in a few days. I'm not a doctor by any means and I'll have no clue what I'm looking at. But what I have that the Doctors don't is time. I can sit and look at the report over and over compare images online. Look over the images more then once. Because I won't take Normal for an answer. That's not good enough for me!!!!
What do you think am I over reacting? Am I sub consciously just wanting there to be something wrong so bad that I'm making myself feel pain?
I should be happy the doctors says I'm normal but all it did was made me sad. Is there something wrong with that? I know how much NFers fight to be treated as equals and feel Normal.... Right now I wanted to be treated as if I have tumors all over my body that cause pain. Can anyone understand why I feel this way? It sounds so bad and makes me look ungrateful. But thats not it at all I just don't know how to explain how hard this is for me how very alone I feel right now...



