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Active discussions
NF2 board
- By jerecare · New reply 12:42 am
- In Living with NF2 · 1 reply
- Is there anyone who has experiencd NF2 on this board who is also a member/frequent contributor to the NF2CREW board ...
Being in love and having NF.
- By casseyb · New reply yesterday at 8:33 pm
- In Living with NF1 · 9 replies
- I've always been worried that no one would fall in love with me cause of my NF. I always thought they would be disgusted by it or decide to leave me for it, so its always hard trying to find a mate when ...
I've just had ED (electro dessication)
- By tresham · New reply yesterday at 8:24 pm
- In Living with NF1 · 7 replies
- On Friday I had ED done on my trunk and back and a few removed from my face. The doctor at Concord hospital (Sydney) is wary of doing ED on the face so he just zapped a few from my chin. I have had 100s ...
Michigan Medical Marijuana, help pls!
Agent Orange Possible Cause of NF1
tumor doctor
- By alicia2408 · New reply yesterday at 6:02 pm
- In Off-Topic · 3 replies
- does anyone live in washington state? i dont know if you have a tumor doctor. my doctor is from the uw his name is Earnest Conrade. he is the number 1 tumor Specialist ...
Tumor in stomach??????
- By Jaylasmom · New reply yesterday at 3:39 pm
- In Living with NF1 · 8 replies
- Ive been having some pain in my stomach on the right side for a while now. These past 2 days it feels like theres some type of mass in there. This has bothered me before I was diagnosed and I thought ...
Was anyone scared to have children?
- By alicia2408 · New reply yesterday at 3:38 pm
- In NF1 and children · 19 replies
- My Husband and i are talking about having a child down the road but we are scared that the child will get nf 1 in a more severe way then what i have. i have a mild to moderate form it. does anyone feel ...
What Is The Differance Between NF 1 & NF 2
living NF1/NF2
- By HANDSARMSTRONG · Posted yesterday at 2:32 pm
- In Living with NF1 · 0 replies
- I, Leon Armstrong needs a local doctor, I been living with nf1/nf2 for over 50 years & I want to keep living with out too many more syntoms. PLEASE CAN ANYONE HELP. I LIVE IN LONG BEACH,CA ...
trying for ssi or ssdi
- By ccorri78 · Posted yesterday at 12:52 pm
- In Living with NF1 · 0 replies
- any have any help that will help get abouved for ssi easyer ...
Swimming in england
- By whoseyerdaddy · New reply yesterday at 12:51 pm
- In Newly diagnosed with NF1 · 8 replies
- hey just an idea but i hav not been swimming since i was about 13 because i hate my body and have lots of marks on my chest, maybe other people with same problem could all arrange to chip in and see if ...
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THANKSGIVING?
Pains in bumps
- By casseyb · New reply yesterday at 10:59 am
- In Living with NF1 · 1 reply
- I have a fair share of bumps on my body but whenever it is pressed they send this shocking pain throughout my body for just a second. Does this happen with everyone? And is there any way to fix this ...
What would you do?
- By gerry04363 · New reply yesterday at 10:25 am
- In NF1 and children · 25 replies
- I am here like so many other people, living with a terribel disorder or perhaps it is a loved one and we are in serach of the holy grail or cure that will save our loved one from an endless amount of ...
Scholarships? - 2010
son likely to have NF1
- By format · New reply yesterday at 9:30 am
- In NF1 and children · 5 replies
- My 16 month old son has several cafe au lait spots. We saw the pediatric neurologist today and he said it was likely he has NF1 and suggested we monitor him as if he has it. I am nervous and scared about ...
plexi growth rate
- By sami_mom · New reply yesterday at 9:13 am
- In NF1 and children · 2 replies
- My 6 year old has what is most likely a plexi on his side. It grew very fast. Has anyone else seen such fast growth ...
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