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Welcome to Inspire!
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Discussions
Can't rember
- By Liz32 · Posted 9:05 am
- In Living with NF1 · 1 reply
- A while ago there was a discussion on a cream that help with fibromas and it begn with the letter A. Dose any ony rember what the name is ...
Ngo oiy ney a, Mahal kita, Saya cinta padamu, Aishiteru, Sarang Heyo
- By jerecare · Posted 7:49 am
- In Living with NF2 · 2 replies
- Are there any Asian Americans on here with nf2? African Americans (I did notice one photo I believe)? Native American? I love to meet&greet with others of other heritages ...
Speach
- By mk74tom · Posted 12:18 am
- In Living with NF1 · 0 replies
- I always had a speach problem with sluring. But I noticed lately I am sluring a lot more and starting to studder and repeat simple words. I know some of the slurng is due to location of new tumors in ...
neck tumor due to NF
- By payanannet · Posted yesterday at 10:42 pm
- In Help desk · 3 replies
- im getting neck surgery on monday for this tumor on my neck can u please have me in your prayers has any one had a tumor in the neck and had it removed ...
NF Symposiums - is anyone else frustrated?
- By wpcooper · Posted yesterday at 8:09 pm
- In Living with NF1 · 2 replies
- Hello: I just wanted to put something out there I was curious about. I have gone to a few of these symposiums which are usually held at hospitals. I went to one in the bay area a few years back and then ...
What's your outlet? Part Deux
Neuromas under the nail
- By debcal · Posted yesterday at 4:19 pm
- In Living with NF1 · 2 replies
- Hello Everyone: I was wondering if anyone has had experience with their neuromas growing under their nails. My ortho hand doc seems to think that is one of the reasons for the severe pain that I have ...
I'm a murderer! :P
- By KittyLover · Posted yesterday at 2:55 pm
- In Off-Topic · 9 replies
- If you've read my profile, you'll know that I love spiders. Yes - spiders. When I find them indoors, I will relocate them to a more suitable location - outside or, in the colder months, to our heated/attached ...
how can i keep my identity as a person? or, how have you?
- By stillaperson004 · Posted yesterday at 2:36 pm
- In Newly diagnosed with NF2 · 11 replies
- hello, when i was 13 i was found out to have nf2. i lost my hearing and ability to move my face from the surgeries. i am now 18 and no one treats me like a person. my own parents label me "the deaf person ...
facebook..
- By strawberry_chick33 · Posted yesterday at 2:29 pm
- In Off-Topic · 7 replies
- I was just wondering if anyone here has a facebook. If you do then let me know and we can try to become friends. I have never been able to talk to other people with NF. It would be nice to try and talk ...
What's your outlet?
- By noangel1987 · Posted yesterday at 11:03 am
- In Off-Topic · 12 replies
- Hey everyone! Well last night I was over at a friend's house and things got kind of heated between him and his teenage daughter. As a friend I gave him advice on how to calm down and find something he ...
New Treatment for Tumors........
- By MIRACLESOCCUR · Posted yesterday at 10:00 am
- In News, research and advocacy · 1 reply
- Light Sciences lines up $35M in credit, financing November 6, 2009 — 11:42am ET | By Maureen Martino Free newsletter via e-mail Related Stories * LSO rounds up $40M in third venture round * Light Sciences ...
Reminder
- By wpcooper · Posted November 6, 2009
- In Living with NF1 · 0 replies
- There is a workshop tomorrow at the Children's Hospital in Madera from 9 to 11 a.m. If you are in CA take the 41 and exit on Children's Blvd. See my previous post or email me if you want more information ...
Claustrophobic in my own skin
- By Anjee_w · Posted November 6, 2009
- In Living with NF1 · 0 replies
- Have you ever felt the weird sensation of being claustrophobic in your own skin? I remember it first happening when I was 8 about the time I was diagnosed with migraines. I use to get them a lot when ...
anyone out there with NF c
- By Krissy_49347 · Posted November 5, 2009
- In Living with NF1 · 4 replies
- anyone out there with nf care to chat. you can reach me on yahoo messenger at krissy_49347 ...
Nf and beta thalasemia trait
- By RikaIdris · Posted November 5, 2009
- In Living with NF1 · 2 replies
- Just diagnosed that i have beta thalasemia trait. Any of you have both NF and beta thalasemia trait ...
Oklahomans
42 year old Brother with NF1 and newly diagnosed brain tumor in brain stem
Mother And Daughter Both Diagnosed
- By Jaylasmom · Posted November 5, 2009
- In NF1 and children · 7 replies
- O.K. so I take my 21 month old to her first neurologist appt. She has had a huge spot on her right rib cage that goes from her back to her stomach. We have always just thought this was her birthmark ...
Vitamin D=Sunlight?
- By sweetiecat · Posted November 5, 2009
- In Living with NF1 · 10 replies
- I have a question and I'm hoping you all can help me with it. When I saw the neurologist at Cincinnati Children's he wanted me to take mega doses of Vitamin D. Like 50,000 units a day for 30 days. He ...
