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Discussions
What Is The Differance Between NF 1 & NF 2
living NF1/NF2
- By HANDSARMSTRONG · Posted 2:32 pm
- In Living with NF1 · 0 replies
- I, Leon Armstrong needs a local doctor, I been living with nf1/nf2 for over 50 years & I want to keep living with out too many more syntoms. PLEASE CAN ANYONE HELP. I LIVE IN LONG BEACH,CA ...
NF2 board
- By jerecare · Posted 1:10 pm
- In Living with NF2 · 0 replies
- Is there anyone who has experiencd NF2 on this board who is also a member/frequent contributor to the NF2CREW board ...
trying for ssi or ssdi
- By ccorri78 · Posted 12:52 pm
- In Living with NF1 · 0 replies
- any have any help that will help get abouved for ssi easyer ...
Being in love and having NF.
- By casseyb · Posted 8:44 am
- In Living with NF1 · 9 replies
- I've always been worried that no one would fall in love with me cause of my NF. I always thought they would be disgusted by it or decide to leave me for it, so its always hard trying to find a mate when ...
Pains in bumps
- By casseyb · Posted 4:17 am
- In Living with NF1 · 1 reply
- I have a fair share of bumps on my body but whenever it is pressed they send this shocking pain throughout my body for just a second. Does this happen with everyone? And is there any way to fix this ...
Scholarships? - 2010
affected for 8 years
- By Katie85 · Posted yesterday at 10:59 pm
- In Living with NF1 · 1 reply
- i was diagnosed when i was 16 when i had a growth removed when i was 16 from my eye and then i didnt really have any problems until i was 19 when i had a growth removed from my chest. then i really didnt ...
Finally i will get an awnser
- By mk74tom · Posted yesterday at 10:10 pm
- In Living with NF1 · 0 replies
- I have been waiting on edge for the past 2 weeks keep getting put of on rather i need to get surgery or not. i finally get an awnser on Dec 3. It been nerve racking they found new tumors and do to location ...
Agent Orange Possible Cause of NF1
THANKSGIVING?
JUST KEEPING IN TOUCH
- By pjkd · Posted yesterday at 4:37 pm
- In Living with NF1 · 3 replies
- How is everyone feeling today? Keeping everyone in my prayers. Have a great and wondeful day. Praise God for each new day ...
plexi growth rate
- By sami_mom · Posted yesterday at 1:45 pm
- In NF1 and children · 2 replies
- My 6 year old has what is most likely a plexi on his side. It grew very fast. Has anyone else seen such fast growth ...
Avastin treatment starts on Tuesday
- By cyndie · Posted yesterday at 12:08 pm
- In Living with NF2 · 3 replies
- Well, i start Avastin treatments on Tuesday.....I'm excited. I hope that it helps me.....my doc thinks it will. has anyone out there had Avastin treatments? what can i expect to experience ...
appt for genetics
- By mfehr · Posted yesterday at 11:18 am
- In Living with NF1 · 1 reply
- So I have had a partial removal of a plexiform off of the top of my foot, it was done by an oncologist because at first they thought it was a rapid growing cancer even though I told them its been there ...
Growing up with NF (Some inspiration)
- By casseyb · Posted yesterday at 6:59 am
- In Living with NF1 · 5 replies
- I've lived with NF my entire life, and within the recent years, around the past 5 or 6 years. I developed a "bump" on my forehead. And people have always asked me "Whats that thing on your forehead ...
photo
son likely to have NF1
- By format · Posted November 18, 2009
- In NF1 and children · 5 replies
- My 16 month old son has several cafe au lait spots. We saw the pediatric neurologist today and he said it was likely he has NF1 and suggested we monitor him as if he has it. I am nervous and scared about ...
A must read
- By DrNiblik · Posted November 18, 2009
- In Living with NF1 · 2 replies
- Hey troops. I was at work today and ran across a book you guys really ought to read. I leafed through it and made me smile. The book is called "The Velveteen Principles-- A Guide to Becoming Real" by ...
anyone in fl with nf1 or 2 have both
- By flnut38 · Posted November 18, 2009
- In Living with NF1 · 0 replies
- like to see if anyone in fl has the same thing, maybe we can talk about it. thank you ...
