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At times keeping a positive frame of mind is a difficult thing for me to do. This is especially true when dealing with SSDI, having a low income, and worrying in general about NF's symptoms, in particular my own depression.
For relief, I enjoy writing, cooking, and walking. I'm also really happy to have found Inspire.
What do others do to keep a positive attitude.
I hike and kayak. sit on my deck listening to the red-tailed hawks. Music helps a lot....
I know it's not popular around here, but, I try to look to God and draw strength from Him, and try to get encouragement from the Bible.
I also watch Joel Osteen, who is very positive. He presents a great message and helps me maintain a positive attitude.
There are still times when depression tries to overtake me, but, you just have to take authority over it! I know that might sound weird, but, it does work, for me at least.
I have several different hobbies. Namely any sort of needlework - Crochet, counted cross-stitch, sewing.
I love to cook and bake.
I also like to work with digital filmmaking.
I too, turn to God and at the same time, I put to use all of the talents He gave me.
Turning to God is the best for me as well. I also have found new hobbies such as learning to play the guitar and shooting pool with friends.
I get my solace from God and the Bible.
Also I get involved in what I enjoy doing--walking, spending time with friends, playing with my cat.
Well, I used to cook. Just loved to cook and I would alternated between Mediterranean and Eastern European. I tell you, I have never meet a potato or pot of sour cream that I don't like. But then I drink a good quantity of red wine with the meals and my weight shot up. Now, I cook a bit but I just love to take long walks. either exploring the differeny neighbor hoods ( I live in a mid sized city) or get out into the country and when I am lucky to the mountains.
Books are an escape and so is music. You can go anywhere.
And, faith is a mainstay.
My Savior Jesus, the Bible, my church and church family. Turning to God and putting your trust in Him does so much for me. More than I can put into words. Sure, I have my bad days. I will always hate this disease, but I have to trust that God has a plan. I still believe He can work miracles. He has given me hope. He blessed me with wonderful friends, a loving husband, and a beautiful son, who also has NF1 (but I know God has an amazing plan for his life, too). I find peace in God and His Word.
I also have a relationship wit Our Abba ( Our heavenly Father) Yeshua (Hebrew for Jesus)I talk to Him in thimes of trouble and when i need alone tome from the world. Its alwasy a great time to sit and discuss The Bible With Friends research and find things to go over in the Word.
My Wife is My friend , And Men Friends as well
I also have a few hobbies
Kim
acceptance for what I am and Im going to be and not to think or worry about my tumors, and go on to life's daily routine like a normal person.. and of course we must have God at our side, to whom I can ran to and get solace.... and honestly, If your the solo person in the family/community who have it .. there are times that you feel so alone & different... all I usually do is pray then get my self busy reading books and I go trekking & mt. climbing ... and of course the comfort of our family & friends presence really do hekp a lot.... :)
mike, try to get hold of Mitch Albom's Tuesday with Morrie-- :)
I would say my faith in God. I also read and do crossword puzzles. Some days the pain is unbearable and doctors are not very understanding. I am very lucky that I still have my father and we talk daily by phone. He lives 55 miles away and is health is not very good. I have no husband or children and walking at times is very difficult as I am now using a cane. I just take a day at a time and sometimes it is even an hour at a time. It can be hard as I wish there were things that I would like to do, but because of physical limitations, I just can't do physically do them. Also, being able to go into this, read and share has helped a great deal.
I stay posituve 90% of the time too with NF I lost my leg to NF1 after many operations on it since infancy 17 in all I wore a leg brace or was in a fulll plaster cast all my life. I developed a bone infection. I had a bowed tibia and once it breaks it NEVER mends no matter what. I lost my lge 6 years ago.
I keep positive knowing that I'm lucky and realizing people have it much worse than me. That't not to say I don't get down about it once in a while of coures I do. I think it normal to feel down abut tings once in a while. As long as we don't let it consume us.
I lol and know that God made me and He makes no mistakes. Genetics gave me NF1 but God gave me the strength to go forward. Just knowing I am to be here in this world no matter what is the thing. Nothing anyone can say or do will take the blessing of life from me.....be yourself and be happy....there are people around you who love you because you are you. Be the little engine that could and keep thinking " I know I can...I know I can" When you start to feel down about anything....remember there are folks out there who will have it worse and from that draw on the strength that if they can be possitive...you can to. Oh...it's ok to have a bad day and not be possitive....just don't let it control you or take over.....
Like so many others here, I too draw strength from my Savior Jesus Christ. My husband keeps me positive and looking on the bright side of life. I enjoy exercising, playing with my kids, reading, and cooking.
This is an amazing group and I am very happy to have found you people who understand and have collected so much understanding and faith in God despite this lifelong disorder we are in.
I love to dance or just listen to my music collection, going out with friends.
Anything to try and get my mind off NF.
It's very hard, but we have to stay strong.
Being on this support group has helped a lot.
Music for me has always ben my outlet. However I think it's important to make the best of what you got (or were given).
i try to look to god... jk there's nothing that helps
I'm really enjoying reading what others are doing.
Thanks to all of you for sharing.
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