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Shivering and shaking after sleeping...

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My 4 year old has these "seizure like" movements after he wakes up from a deep sleep. He shakes and shivers and has a hard time controlling it for about 15-20 seconds after he first wakes up. When he finally wakes up fully he is fine. He has NF1. Does this sound familair to anyone? Should I be concerned? I have a call out to the neurologist but wont hear back from them until Monday.

2 replies

hi my name is ursula i too have seizure
but its only been about year sent they been happen too me

Seeing a neurologist is good. Has he had any MRI's? I'm wondering if he could have a brain lesion or tumor.

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