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So, I was just playing around. Decided to do a search of people in Oklahoma on this board. Located about 20. How many of you have dealt with nf2?
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Oklahomans
15 replies
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- Newest first
- By stumpythebumpy
- Posted November 7, 2009 at 10:48 am
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hmmmmmm...no there not usually quiet, geee i wonder why that is? lol
- By jerecare
- Posted November 7, 2009 at 5:02 pm
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this is hyperbolic for me but Jesus did say Only in his hometown, among his relatives and in his own house is a prophet without honor. Mark 6:4
In this case, a whole state :<>
- By Josh_B
- Posted November 8, 2009 at 12:50 am
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My sister Has a mild case of NF, and she lives in tushka Oklahoma. I think she is now 27 years old.
- By jerecare
- Posted November 8, 2009 at 7:34 am
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I have to admit, I never heard of tushka. Must be really small. nf1 or nf2 do you know?
- By Josh_B
- Posted November 8, 2009 at 3:36 pm
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Tushka is near Atoka. I think she has nf2 like me also.
- By jerecare
- Posted November 8, 2009 at 3:40 pm
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deaf? Rare it is to read from someone else who has experience with nf2. Really rare for in OK. I think there is a guy from Salina on here.
- By jerecare
- Posted November 8, 2009 at 3:45 pm
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mapquested it. Relatively close to Ada and Sulfur. Both places have a fairly large deaf community. Not saying you care. Just an observation. I am not culturally Deaf but I have lived with it long enough. Learned sign language. Enough to help me survive if that's how you want to put it. I don't know if I would but the word or phrase I am wanting is escaping me at the moment.
- By jerecare
- Posted November 10, 2009 at 6:50 am
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I did a rough calculation. There are ~3,500,000 people in OK. If 1 in 40,000 get nf2: 3500000 / 40000 = 87.5 people in OK. I've seen 20 signed up on this board. About 60 somewhere out there. "Somewhere over the rainbow, skies are blue..."
- By LumpsandBumps
- Posted November 10, 2009 at 4:23 pm
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I live in Salina,OK about 50 miles from Tulsa. I have met 4 others beside myself. There is a New CTF Chapter. http://ctf.org/Chapters-Affiliates/oklahoma-affiliate.html I know there are others.
- By jerecare
- Posted November 10, 2009 at 8:50 pm
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Thanks. CTF seems more focused on nf1, probably because there are more people who experience nf1. I just don't know if the nfs are similar enough to interact. I mean many people who experience nf2, deal with deafness which is foreign to many.
- By LumpsandBumps
- Posted November 10, 2009 at 8:53 pm
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I have a few symptons that point to an accoustic neuroma but getting my Doctor to listen to me. That's another story.
- By jerecare
- Posted November 10, 2009 at 9:36 pm
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If any of you are interested:
Journey to Justice Summit
December 2 & 3, 2009
Oklahoma City, Oklahoma
7a – 4p December 2nd. And 8a – 4p December 3rd.
FREE!
Attend this statewide summit about interpersonal
violence in Indian Country for tribal, state, and federal
leadership. Join us at this historic event that
will address and examine the collective response
to Native American victims of violent crime in
Oklahoma. Sponsored by the Office on Violence
Against Women, U.S. Department of Justice.
Registration is limited to 300 persons. Registration forms are available
for download at www.institutefornativejustice.org. Fax completed forms to
the Institute for Native Justice at (918) 458-5415.
- By jerecare
- Posted November 11, 2009 at 8:15 am
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I should mention that the sponsors really wanted to be accommodating for attendees with disabilities. I will be scheduling the interpreters for those of you who are deaf. Whether you know sign language really good or not, you will not be totally lost neither will you be alone. Maybe not OTHERS but ANOTHER will be there who understands your situation.
- By jerecare
- Posted November 13, 2009 at 4:35 pm
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Did I mention registration deadline is Nov. 17th.
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